“Umut Vazgeçilmez Yaşam Gücüdür”: Lenfoma Hastalarının Yaşam Deneyimlerinde Umudun Anlamı Üzerine Nitel Bir Çalışma

Öz

Amaç Kanser hastaları için umudun hayati bir öneme sahip olduğu düşünülse de, lenfoma hastalarında umut be¬lirsizliğini korumaktadır. Bu çalışma, lenfoma hasta¬larının yaşam deneyimlerini incelemeyi ve umudun anlamını ortaya koymayı amaçlamaktadır. Yöntem Bu çalışmada hermeneutik-fenomenolojik bir tasarım kullanılmıştır. Kemoterapi alan 19 lenfoma hastası görüşmelere katılmıştır. Katılımcılar amaçlı örnekleme yöntemi ile seçilmiş ve kayıt altına alınmıştır. Verile¬ri analiz etmek için fenomenolojik-hermeneutik yak¬laşım kullanılmıştır. Bulgular Hastaların yaşam deneyimlerini ve umudun anlamını özetleyen üç tema ve 12 alt tema ortaya çıkmıştır. Bu temalar: ‘Var olmak’, ‘Umut vazgeçilmez yaşam gücüdür’ ve ‘Umut her zaman vardır fakat değişken¬lik gösterir’. Alt temalar kapsamında bu çalışma, katılımcıların fiziksel ve duygusal iyilik hallerinde değişimler olduğunu ve anı keşfetmenin önemini göstermiştir. Umudun anlamını ‘tekrar rutine dönme isteği, bugünden geleceğe bir köprü’ olarak ortaya koyan bu çalışma, umudun hastalardan ve hastalıkla ilgili faktörlerden etkilendiğini vurgulamıştır. Sonuç Bu çalışma lenfoma hastalarının fiziksel ve duygusal iyilik hallerindeki değişimleri, yaşam deneyimlerinde umudun anlamını ve umudu etkileyen faktörleri orta¬ya çıkarmıştır. Elde edilen bulguların, sağlık çalışanları tarafından lenfoma hastalarında umudun güçlendi¬rilmesine yönelik psikososyal destek sağlama ve bakımı planlamaya katkı sağlayacağı, gelecekteki çalışmalara rehberlik edebileceği düşünülmektedir.

Anahtar Kelimeler

• kemoterapi
• umut
• yaşam deneyimi
• lenfoma
• nitel araştırma

“Hope is the Indispensable Life Force”: A Qualitative Study of the Meaning of Hope in the Life Experiences of Lymphoma Patients

Öz

Aim Although hope is considered to be of vital importance for cancer patients, it remains uncertain in lymphoma patients. This study aimed to examine the life experiences of patients with lymphoma and reveal the meaning of hope. Method A hermeneutic-phenomenological design was used in this study. 19 lympho¬ma patients who were receiving chemotherapy participated in interviews. Participants were selected through the purposive sampling method, and the interviews were audio-recorded. A phenomenological-hermeneutic approach was used to analyze the data. Results Three themes and 12 sub-themes emerged that summarized the life experiences of patients and the meaning of hope. These themes were as follows: ‘Being in existence’, ‘Hope is the indispensable life force’, and ‘There is always hope, but it varies’. Within the scope of the sub-themes, this study showed that there were changes in the physical and emotional well-being of participants and the importance of discovering the moment. This study, which reveals the meaning of hope as a “desire to return to routine, a bridge from now to the future”, emphasized that both the patients affect hope and the factors related to the disease. Conclusion This study revealed the changes in the physical and emotional well-being of lymphoma patients, the meaning of hope in their life experiences, and the factors affecting hope. It is thought that the findings obtained will contribute to the provision of psychosocial support and care planning by healthcare professionals to strengthen hope in lymphoma patients and may guide future studies.

Anahtar Kelimeler

• chemotherapy
• hope
• life experience
• lymphoma
• qualitative research

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