The Knowledge Level of Turkish Rheumatoid Arthritis Patients About Their Diseases

Yıl 2018, Cilt: 23 Sayı: 1, 12 - 19, 01.01.2018

Gülnur Taşçı Bozbaş , Gücan Gürer

https://doi.org/10.21673/anadoluklin.325831

Cited By: 2

Öz

Aim:
This study aims to assess the level of disease specific knowledge of the
patients with Rheumatoid Arthritis 

Materials and Methods: A total of 225 RA patients were included in this
study. Patients’ demographic and clinic data and information resources were
recorded. In order to evaluate the 
awareness levels of patients, the “Patient Knowledge Questionnaire in
Rheumatoid Arthritis (PKQ-RA)” was used.

Results: The mean age and disease duration of patients were found to be 52.8±10.8 and 6.7±6.5 years, respectively. Most of the patients (86.7%)
reported that they had gained the information about RA from their physicians.
Internal consistency of the Turkish version of PKQ-RA was high with Cronbach’s
alpha of 0.71 and test-retest intra-class correlation coefficient was 0.94. The
total PKQ-RA scores were 15.1±12.6 (ranging: 0-27). Patients’ knowledge levels
differentiated according to their age, education, socioeconomic status, and
family history of disease.

Discussion and Conclusion: This is the first study to investigate Turkish RA
patients’ awareness levels of the disease. Having insufficient information
about the disease has always been a general problem in RA patients. In this
study, it was determined that the knowledge levels of our patients were not
significantly high. Thus, to be able to increase the patients’ awareness, some
individualized precautions should be taken by 
physicians.

Anahtar Kelimeler

Rheumatoid arthritis, knowledge, education, treatment

Türk Romatoid Artrit Hastalarının Hastalıkları Hakkındaki Farkındalık Düzeyi

Öz

Amaç:Bu
çalışmanın amacı Romatoid Artrit hastalarının hastalıkla ilişkili farkındalık
düzeyini belirlemektir.

Materyal
metod: Çalışmaya toplam 225 RA hastası alındı. Hastaların
demografik ve klinik verileri ile bilgi kaynakları kaydedildi. Farkındalık
düzeyini değerlendirmede “Romatoid Artrit Hasta Farkındalık Anketi ”
kullanıldı.

Sonuçlar:
Hastaların ortalama yaşı 52.8±10.8
ve hastalık süresi 6.7±6.5
yıldı. Hastaların çok büyük kısmı (%86.7) bilgi kaynağının doktoru olduğunu
ifade etti. Romatoid Artrit Hasta Farkındalık Anketi’nin Türkçe versiyonunun iç
tutarlılık değeri Cronbach alfa’sı 0.71 ve test-retest korelasyon katsayısı
0.94 idi. Ortalama farkındalık skoru 15.1±12.6
idi (aralık 0-27). Hastaların bilgi düzeyleri yaş, eğitim, sosyoekonomik durum
ve ailede hastalık öyküsünün olup olmamasından etkilenmekteydi.

Tartışma:
Bu çalışma Türk RA hastalarının farkındalık düzeyinin değerlendirildiği ilk
çalışmadır. RA hastalarının hastalıkları hakkında yetersiz bilgiye sahip
olmaları global bir sorundur. Bu çalışmada RA hastalarımızın farkındalık
düzeyinin çok yüksek olmadığını saptadık. Bu nedenle de farkındalığı artıracak
bireye özgü bir takım önlemler almamız gerektiği sonucuna vardık. 

Anahtar Kelimeler

Romatoid artrit, farkındalık, eğitim, tedavi

Kaynakça

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