Investigation of awareness of parents of children with cerebral palsy about illness, physiotherapy and rehabilitation

Yıl 2024, Cilt: 29 Sayı: 2, 158 - 169, 29.05.2024

Hatice Seçinti Hatice Adıgüzel Nevin Ergun

https://doi.org/10.21673/anadoluklin.1349686

Öz

Aim: This study aimed to examine the awareness levels of parents who provide primary care to children with Cerebral Palsy (CP) about the disease, physiotherapy, and rehabilitation.

Methods: Parents (n=78) of children with aged 4-18 years diagnosed CP, were included in the study. Cerebral Palsy Disease, Physiotherapy, and Rehabilitation Awareness Evaluation Questionnaire was used to determine the level of awareness.

Results: The majority of the survey participants were mothers (85.9%). It was determined that the general awareness levels of the parents were low (5.17%), medium (56.41%), and high (38.46%). Awareness levels were found to be similar according to the education level and economic status of the parents (p>0.05). In addition, although parental awareness levels of children with CP increased according to their surgery history, age distribution, and gross motor function levels (GMFCS), there was no significant difference between them (p>0.05).

Conclusion: It was determined that the awareness levels of parents with children with CP about the disease, physiotherapy, and rehabilitation were generally medium and high. It was observed that the awareness levels were not affected by the education levels of the parents, the GMFCS levels of their children, the age of the children, and the economic status of the family.

Anahtar Kelimeler

Awareness, cerebral palsy, parents, rehabilitation

Teşekkür

The authors would like to thank to all of the parents who participated to study.

Serebral palsili çocukların ebeveynlerinin hastalık, fizyoterapi ve rehabilitasyon hakkındaki farkındalık durumlarının incelenmesi

Öz

Amaç: Bu çalışmanın amacı Serebral Palsi’li (SP) çocuklara primer bakım veren ebeveynlerin hastalık, fizyoterapi ve rehabilitasyon hakkındaki farkındalık düzeylerini incelemektir.

Yöntemler: Çalışmaya 4-18 yaş arası SP’li çocuğu olan 78 ebeveyn dâhil edildi. Farkındalık düzeyleri yarı yapılandırılmış görüşmelerle araştırmacıların hazırladığı Serebral Palsi Hastalık, Fizyoterapi ve Rehabilitasyon Farkındalık Değerlendirme Anketi ile belirlendi.

Bulgular: Anket katılımcılarının büyük oranda annelerden oluşuyordu (%85,9). Ebeveynlerin genel farkındalık düzeylerinin düşük (%5,17), orta (%56,41) ve yüksek (%38,46) düzeyde olduğu belirlendi. Ebeveynlerin eğitim düzeyi ve ekonomik durumuna göre farkındalık düzeyleri benzer bulundu (p>0,05). Ayrıca SP’li çocukların ameliyat öyküsü, yaş dağılımı ve kaba motor fonksiyon düzeylerine (GMFCS) göre ebeveyn farkındalık düzeyleri artmış olsa da, farkındalık seviyeleri arasında anlamlı fark bulunmadı (p>0,05).

Sonuç: SP’li çocukları olan ebeveynlerin hastalık, sosyal ve günlük yaşam aktiviteleri ile fizyoterapi ve rehabilitasyon hakkındaki farkındalık düzeylerinin genel olarak orta ve yüksek olduğu saptandı. Farkındalık düzeylerinin, ebeveyn eğitim düzeylerinden, çocuklarının kaba motor fonksiyon seviyelerinden, çocukların yaşlarından ve ailenin ekonomik durumlarından etkilenmediği gözlendi.

Anahtar Kelimeler

Ebeveyn, farkındalık, rehabilitasyon, serebral palsi

Kaynakça

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