Engelli Çocuğu Olan Ailelerin Yaşam Kalitesi

Yıl 2015, Cilt: 4 Sayı: 2, 34 - 40, 01.10.2015

Rabia Sohbet Fatma Geçici

Öz

Engellilik; engelli bireyi, ailesini, yakın çevresini ve ait olduğu toplumsal yapıyı ilgilendiren bir olgudur. Bu araştırma Muğla İli, Fethiye İlçesinde bulunan tüm Özel Eğitim ve Rehabilitasyon merkezlerinde eğitim alan engelli çocuğa sahip 160 ailenin yaşam kalitesini belirlemek üzere planlanmış, tanımlayıcı alan araştırmasıdır. Verilerin toplanmasında araştırmacı tarafından oluşturulan geliştirilen anket formu kullanılmıştır. Araştırmaya katılanların %85.6’sı anne, engelli çocuğun %51.9’u 7–12 yaş grubunda, %53.2’sinin erkek olduğu, çocukların %3’ünün işitme engeli%3.4’ünün ruhsal ve duyusal engeli, %36.6’sının zihinsel engeli %25.7’sinin ortopedik engeli, %25.7’sinin konuşma bozukluğu %5.6’sının öğrenme güçlüğü vardır. Aile eğitimleri ile çocukların geleceklerinden kaygılanma, çocukların ayak bağı olduklarını düşünme, çevrelerinin bakış açısından rahatsızlık duymaları arasında istatistiksel açıdan önemli fark bulunmuştur p

Anahtar Kelimeler

Engellilik, Engelli çocuklar, Yaşam Kalitesi, Engelli Aileler

Life Quality of Families With Disabled Children

Öz

Disability; individuals with disabilities, their family, immediate environment and the social structure of is a phenomenon of interest. This study was conducted as a descriptive research in order to determine the quality of life in a total of 160 families with disabled children receiving education at all Rehabilitation Centers of Fethiye, Mugla region. Survey forms developed by the researcher were used as the data collection tool. 85.6% of research participants are mothers, 51.9% of disabled children are within the 7-12 age group, 53.2% are male, 3% of the children have hearing disorders, 3.4% have mental and emotional disorders, 36.6% have intellectual disorders, 25.7% have orthopedic disorders, 25.7% have speech disorders, 5.6% have learning disorders. Statistically significant relation was found between the family levels of education and experiencing concerns about the future of their children, considering disabled children to be hindrance and feeling embarrassed of disabled children p < 0.05 . Statistically significant relation was found between the type of disability and experiencing concerns about the future of their children, considering disabled children to be hindrance and the ability to spend sufficient time for themselves and other members of their families p < 0.05 . Pre-marital legal tests need to be implemented in order to carry out programs intended for decreasing the rate of kin marriages in our country

Anahtar Kelimeler

Disabled Children, Quality Of Life, Disability and their families

Kaynakça

• 1. Artar Y, Karabacakoglu C. Production of Orthesis and Wheelchairs, Standards and Market Potential. Ankara. 2003.
• 2. Sandalci F. Families with Disabled Children and Social Service Profession, Beyond the Horizon Science Magazine 2002; 2 (1): 80-90.
• 3. Gokcan K. Psycho-Social Situation of Families with Disabled Children and Development of Life Skills of Children with Disabilities. http://www.engelliler.biz/akademik/ocsapsdvocybg.htm (access date: 20.03.2006).
• 4. Akcakin M, Erden G. "Mental Symptoms of Parents of Children Diagnosed with Autism". Child Mental Health Magazine 2001; 8(1): 2-10.
• 5. Ozsenol F, Isikhan V, Unal B, Aydin IH, Akin R, Gokcay E. Evaluation of Family Functionality of Families with Disabled Children. Gulhane Medical Magazine 2003; 45 (2): 156-64
• 6. Turkish Statistics Institution 7 th Disabled Statistics Report, 2002, http://www.tuik.gov.tr/PreTablo.do?alt_id=1017 (access date: 02.02.2006).
• 7. General Population Count of T.R. Prime Ministry State Statistics Institution, 2000.
• 8. Esdaile S.A, Greenwood KM. “A Comparison of Mothers’ and Fathers’ Experience of parenting Stress and attributions for Parent Child Interaction Outcomes”. Therapy Int 2003; 10 (2): 115-26.
• 9. Uguz S, Toros F, Yazgan IB, Colakkadioglu O. “Determining the Levels of Anxiety, Depression, Stress in Mothers of Children with Intellectual and/or Physical Disabilities”. Clin Psychiat 2004; 7: 42-47.
• 10. Glidden LM, Schoolcraft SA. “Depression: Its Trajectory and correlates in mothers rearing children with Intellectual Disability”. J Intellect Disabil Res 2003; 47(4-5): 250-63.
• 11. Hastings RP.“Child Behaviour Problems and Partner Mental Health as Correlates of Stress in Mothers and Fathers of Children with Autism”. J Intellect Disabil Res 2003;47(4-5): 231-237.
• 12. Beser E, Atasoylu G, Akgoz EF, Cullu E. Prevalence, Etiology and Social Dimension of Disability in the Aydin Regional Center. Public Health Bulletin 2006; 5(4): 267-75.
• 13. Yılmaz Z. Problems Encountered by Working Disabled Individuals and Factors Affecting Them. Prime Ministry Department of Disabled Individuals, Ankara 2005.
• 14. Lafci D, Oztunc G, Alparslan ZN. Determining the Difficulties Experienced by Parents of Children with Intellectual Disabilities (Children with Mental Retardation). Gumushane University Health Sciences Magazine 2014; 3(2): 723-35.
• 15. Bahar A, Bahar G, Savas HA, Parlar S. Determining the Levels of Depression and Anxiety in Mothers of Disabled Children and the Methods of Dealing with Stress. Firat Health Services Magazine 2009; 4(11): 97- 122.
• 16. Uskun E, Ozturk M, Kisioglu NM. Epidemiology of Disability, Invalidity and Impairment in the Isparta Region. Health and Society Magazine 2005; 19(3): 90- 100.
• 17. Turkey Research on Disabled Individuals. http://www.tsd.org.tr/istatistik/ Engelli_Istatistikleri (access date: 28.03.2006)
• 18. Ozsoy S, Ozkahraman S, Calli F. Examining the Difficulties Experienced by Families with Intellectually Impaired Children. Three-Month Magazine 2006; 3(9): 71.
• 19. Chaud NM, Barbosa MA. Gomes FMM. Experiences of mothers of disabled children: a phenomenological study. Acta Paulista de Enfermagem 2008; 21(1): 46- 52.
• 20. The Interactive Autism Network (IAN) Research Report: Family Stress – Part 1, http://www.autismspeaks.org/news/news-item/ianresearch-report-family-stress-—-part-1 (access date: 03.01.2006)
• 21. Mulroy S, Robertson L, Aibert K, Leonard H, Bower C. The impact of having a sibling with an intellectual disability: parental perspectives in two Disorders. J Intellect Disabil Res 2008; 52(3), 216-29.
• 22. Macks RJ, Reeve RE. The Adjustment of NonDisabled Siblings of Children with Autism. J Autism Develop Disord 2007; 37(6), 1060-67.
• 23. Emek B, Dag I. Dealing with Stress and Comparison of the Control Focus in Mothers of Children with and without Educatable Intellectual Disabilities. Youth Mental Health Magazine 2005; 12(2): 56-68..