Sağlıklı Yaşam Biçimi Davranışları Kapsamında Özel Gereksinimi Bulunan Çocukların Ebeveynleri

Rana Yiğit; Sümeyye Kaya

Derleme

Yıl 2020, Cilt: 9 Sayı: 3, 233 - 240, 23.12.2020

Öz

Parents of children with special needs begin to experience a lifelong recurring adaptation process, along with the identification phase. Many problems experienced by parents during this process lead to negative health consequences, decreased quality of life and life satisfaction. Within the rehabilitation services, it is necessary to evaluate the child as a whole with his family and to evaluate it from a holistic point of view, to create the necessary evaluations and practices for parents. It can be suggested to use the models and applications developed for the creation and evaluation of healthy living behaviors for the parents of children with special needs in the disadvantaged groups.

Anahtar Kelimeler

Children With Special Needs, Parents, Healty Lifestyle

Kaynakça

Akçamete, G. (2009). Özel gereksinimli olan öğrenci¬ler. G. Akçamete içinde, Genel Eğitim Kurumlarında Özel Gereksinimi Olan Öğrenciler ve Özel Eğitim (s. 31-74). Ankara: Kök Yayıncılık.
Alaee, N., Shahboulaghi, F. M., Khankeh, H., Kermanshahi, S. M. K. (2015). Psychosocial challenges for parents of children with cerebral palsy: A qualitative study. Journal of Child and Family Studies, 24(7), 2147-2154.
Anderson et al.(2011) American Psychological Association. Stress in America: Our Health at Risk. Washington (D.C.),The American Psychological Association,78.
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Arim, R. G., Miller, A. R., Kohen, D. E., Guèvremont, A., Lach, L. M., Brehaut, J. C. (2019). Changes in the health of mothers of children with neurodevelopmental disabilities : An administrative data study. Research in Developmental Disabilities, 86,76–86.
Avcı, Y. D. (2016). Kişisel sağlık sorumluluğu. TAF Preventive Medicine Bulletin, 15(3), 259–266
Berk, M., Kapczinski, F., Andreazza, A. C., Dean, O. M., Giorlando, F., Maes, M.,Malhi, G. S. (2011). Pathways underlying neuroprogression in bipolar disorder: Focus on inflammation, oxidative stress and neurotrophic factors. Neuroscience and Biobehavioral Reviews, 35(3), 804–817.
Berk, M., Jacka, F. (2012). Preventive strategies in depression: Gathering evidence for risk factors and potential interventions. British Journal of Psychiatry, 201(5), 339–341.
Bexley Council. (2014). Joint strategic needs assessment, chapter 20: Diet and nutrition. London
Braya, L., Cartera, B., Sandersb, C., Blakea, L., Keeganb, K. (2017) Parent-to-parent peer support for parents of children with a disability: A mixed method study, Patient Education and Counseling 100.1537–1543
Brochado, A., Oliveira-Brochado, F., Brito, P. (2010). Effects of personal, social and environmental factors on physical activity behavior among adults. Revista Portuguesa de Saúde Pública, 28(1), 7–17
Beirne Smith, M., Patton, J. R., & Kim, S. H. (2006). Mental Retardation: An introduction to intellectual disabilities (7. Baskı b.). New Jersey, NJ: Prentice Hall.
Biesinger, R., Arikawa, H. (2007). Religious attitude and happiness among parents of childrenbwith developmental disabilities. Journal of Religion, Disability & Health, 11, 23–32
Carter, E. W., Taylor, C. E., Ault, M. J., Collins, B., Kleinert, H., Tyree, M. (2012). Recent research on spiritual supports: What we know and where we might go. TASH Connections, 38, 31–34.
Cihangiroğlu, Z. Deveci, S.E. (2011).Fırat Üniversitesi Elazığ Sağlık Yüksekokulu öğrencilerinin sağlıklı yaşam biçimi davranışları ve etkileyen faktörler. Fırat Tıp Dergisi;16(2):78-83.
Corey, G. (2008). Psikolojik danışma kuram ve uygulamaları(T. Ergene, Çeviren).Mentis Yayıncılık. Ankara
Cohen, S., Janicki‐Deverts, D. (2012). Who's stressed? Distributions of psychological stress in the United States in probability samples from 1983, 2006, and 2009 1. Journal Of Applied Social Psychology, 42(6), 1320-1334.
Cyranowski, J. M., Zill, N., Bode, R., Butt, Z., Kelly, M. A., Pilkonis, P. A., Cella, D. (2013). Assessing social support, companionship, and distress: National Institute of Health (NIH) Toolbox Adult Social Relationship Scales. Health Psychology, 32(3), 293.
Çavkaytar, A., Melekoğlu, M., Yıldız G.(2016).Geçmişten günümüze özel gereksinimli olma ve zihin yetersizliği: Dünya’da ve Türkiye’de kavramların evrimi. Anadolu Üniversitesi Sosyal Bilimler Dergisi Eğitim Özel Sayısı.111–22.
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Diaz, K.M. (2019) Physical inactivity among parents of children with and without Down syndrome: the National Health InterviewSurvey Journal of Intellectual Disability Research.
Dünya Sağlık Örgütü, Basıc Documents Forty-ninth edition. Article 1. (2020). Dünya Sağlık Örgütü.(2009). Global Health Risks: Mortality and Burden of Disease Attributable to Selected Major Risks. World Health Organization, Geneva.
Erica,M. J. (2013). The Role of Exercise in Stress Management. Acsm’s Health & Fıtness Journal,17(3), 14–19.
Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671.
Franco, M. R., Tong, A., Howard, K., Sherrington, C., Ferreira, P. H., Pinto, R. Z., & Ferreira, M. L. (2015). Older people's perspectives on participation in physical activity: a systematic review and thematic synthesis of qualitative literature. British journal of sports medicine, 49(19), 1268-1276.
Gadais T. (2015)Intervention strategies to help young people manage their physical activities: a review of the literature. Staps;3:57–77.
Garfin, D. R., Thompson, R. R., Holman, E. A. (2018). Acute stress and subsequent health outcomes: A systematic review. Journal of Psychosomatic Research, 112(January), 107–113.
Goyal, M., Singh, S., Sibinga, E. M., Gould, N. F., Rowland-Seymour, A., Sharma, R., Ranasinghe, P. D. (2014). Meditation programs for psychological stress and well-being: a systematic review and meta-analysis. JAMA internal medicine, 174(3), 357-368
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Sağlıklı Yaşam Biçimi Davranışları Kapsamında Özel Gereksinimi Bulunan Çocukların Ebeveynleri

Yıl 2020, Cilt: 9 Sayı: 3, 233 - 240, 23.12.2020

Rana Yiğit Sümeyye Kaya

Öz

Özel gereksinimi bulunan çocukların ebeveynleri tanılama süreci ile birlikte ömür boyu devam eden tekrarlı bir uyum süreci yaşamaya başlarlar. Ebeveynlerin bu süreç boyunca yaşadıkları birçok sorun olumsuz sağlık sonuçlarının ortaya çıkmasına, yaşam kalitesi ve yaşam doyumlarının azalmasına neden olur. Rehabilitasyon hizmetleri içerisinde çocuğun ailesi ile bir bütün olarak ele alınarak, holistik bakış açısıyla değerlendirilmesi, ebeveynler için gerekli değerlendirme ve uygulamaların oluşturulması gerekmektedir. Sağlıklı yaşam davranışlarının oluşturulması, değerlendirilmesi için geliştirilen model ve uygulamaların dezavantajlı gruplar içerinde yer alan özel gereksinimi olan çocukların ebeveynleri için kullanımı önerilebilir.

Anahtar Kelimeler

Özel Gereksinimli Çocuk, Ebeveyn, Sağlıklı Yaşam Biçimi

Kaynakça

Akçamete, G. (2009). Özel gereksinimli olan öğrenci¬ler. G. Akçamete içinde, Genel Eğitim Kurumlarında Özel Gereksinimi Olan Öğrenciler ve Özel Eğitim (s. 31-74). Ankara: Kök Yayıncılık.
Alaee, N., Shahboulaghi, F. M., Khankeh, H., Kermanshahi, S. M. K. (2015). Psychosocial challenges for parents of children with cerebral palsy: A qualitative study. Journal of Child and Family Studies, 24(7), 2147-2154.
Anderson et al.(2011) American Psychological Association. Stress in America: Our Health at Risk. Washington (D.C.),The American Psychological Association,78.
Appelhans, B.M., Milliron, B.J., Woolf, K., Johnson, T.J., Pagoto, S.L., Schneider, K.L., Whited, M.C., Ventrelle, J.C.(2012). Socioeconomic status, energy cost, and nutrient content of supermarket food purchases. American Journal of Preventive Medicine. 42, 398–402.
Arim, R. G., Miller, A. R., Kohen, D. E., Guèvremont, A., Lach, L. M., Brehaut, J. C. (2019). Changes in the health of mothers of children with neurodevelopmental disabilities : An administrative data study. Research in Developmental Disabilities, 86,76–86.
Avcı, Y. D. (2016). Kişisel sağlık sorumluluğu. TAF Preventive Medicine Bulletin, 15(3), 259–266
Berk, M., Kapczinski, F., Andreazza, A. C., Dean, O. M., Giorlando, F., Maes, M.,Malhi, G. S. (2011). Pathways underlying neuroprogression in bipolar disorder: Focus on inflammation, oxidative stress and neurotrophic factors. Neuroscience and Biobehavioral Reviews, 35(3), 804–817.
Berk, M., Jacka, F. (2012). Preventive strategies in depression: Gathering evidence for risk factors and potential interventions. British Journal of Psychiatry, 201(5), 339–341.
Bexley Council. (2014). Joint strategic needs assessment, chapter 20: Diet and nutrition. London
Braya, L., Cartera, B., Sandersb, C., Blakea, L., Keeganb, K. (2017) Parent-to-parent peer support for parents of children with a disability: A mixed method study, Patient Education and Counseling 100.1537–1543
Brochado, A., Oliveira-Brochado, F., Brito, P. (2010). Effects of personal, social and environmental factors on physical activity behavior among adults. Revista Portuguesa de Saúde Pública, 28(1), 7–17
Beirne Smith, M., Patton, J. R., & Kim, S. H. (2006). Mental Retardation: An introduction to intellectual disabilities (7. Baskı b.). New Jersey, NJ: Prentice Hall.
Biesinger, R., Arikawa, H. (2007). Religious attitude and happiness among parents of childrenbwith developmental disabilities. Journal of Religion, Disability & Health, 11, 23–32
Carter, E. W., Taylor, C. E., Ault, M. J., Collins, B., Kleinert, H., Tyree, M. (2012). Recent research on spiritual supports: What we know and where we might go. TASH Connections, 38, 31–34.
Cihangiroğlu, Z. Deveci, S.E. (2011).Fırat Üniversitesi Elazığ Sağlık Yüksekokulu öğrencilerinin sağlıklı yaşam biçimi davranışları ve etkileyen faktörler. Fırat Tıp Dergisi;16(2):78-83.
Corey, G. (2008). Psikolojik danışma kuram ve uygulamaları(T. Ergene, Çeviren).Mentis Yayıncılık. Ankara
Cohen, S., Janicki‐Deverts, D. (2012). Who's stressed? Distributions of psychological stress in the United States in probability samples from 1983, 2006, and 2009 1. Journal Of Applied Social Psychology, 42(6), 1320-1334.
Cyranowski, J. M., Zill, N., Bode, R., Butt, Z., Kelly, M. A., Pilkonis, P. A., Cella, D. (2013). Assessing social support, companionship, and distress: National Institute of Health (NIH) Toolbox Adult Social Relationship Scales. Health Psychology, 32(3), 293.
Çavkaytar, A., Melekoğlu, M., Yıldız G.(2016).Geçmişten günümüze özel gereksinimli olma ve zihin yetersizliği: Dünya’da ve Türkiye’de kavramların evrimi. Anadolu Üniversitesi Sosyal Bilimler Dergisi Eğitim Özel Sayısı.111–22.
Dennison CR. McEntee ML. Samuel L. Johns BJ. Rotman S. Kielty A. Et al. (2011).Adequate health literacy is associated with higher heart failure knowledge and self care confidence in hospitalized patients.Journal of Cardiovascular Nursing.26(5),359– 367.
Diaz, K.M. (2019) Physical inactivity among parents of children with and without Down syndrome: the National Health InterviewSurvey Journal of Intellectual Disability Research.
Dünya Sağlık Örgütü, Basıc Documents Forty-ninth edition. Article 1. (2020). Dünya Sağlık Örgütü.(2009). Global Health Risks: Mortality and Burden of Disease Attributable to Selected Major Risks. World Health Organization, Geneva.
Erica,M. J. (2013). The Role of Exercise in Stress Management. Acsm’s Health & Fıtness Journal,17(3), 14–19.
Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671.
Franco, M. R., Tong, A., Howard, K., Sherrington, C., Ferreira, P. H., Pinto, R. Z., & Ferreira, M. L. (2015). Older people's perspectives on participation in physical activity: a systematic review and thematic synthesis of qualitative literature. British journal of sports medicine, 49(19), 1268-1276.
Gadais T. (2015)Intervention strategies to help young people manage their physical activities: a review of the literature. Staps;3:57–77.
Garfin, D. R., Thompson, R. R., Holman, E. A. (2018). Acute stress and subsequent health outcomes: A systematic review. Journal of Psychosomatic Research, 112(January), 107–113.
Goyal, M., Singh, S., Sibinga, E. M., Gould, N. F., Rowland-Seymour, A., Sharma, R., Ranasinghe, P. D. (2014). Meditation programs for psychological stress and well-being: a systematic review and meta-analysis. JAMA internal medicine, 174(3), 357-368
Guyard, A., Susan, I. M., Jerome, F. et al. (2017) Comparing parent and child reports of health-related quality of life and their relationship with leisure participation in children and adolescents with Cerebral Palsy. Research in Developmental Disabilities, 61, 138–150.
Horton, B. (2014). What is personal health responsibility?. ABNF Journal, 25(1), 5.
Humphreys. (2014). Physıcal activity and health outcomes: evıdence from canada. Health Economıcs,23, 33–54.
Isa, S., Ishak, I., Rahman, A., Saat, N. Z. M., Din, N., Lubis, S. et al.(2016) Health and quality of life among the caregivers of children with disabilities: A review of literature ,Asian Journal of Psychiatry ,23, 71–77.
Kim, C., Draska, M., Hess, M.L., Wilson, E.J, Richardson, R. A.( 2012) Web-based pedometer programme in women with a recent history of gestational diabetes. Diabet Med;29(2):278–83.
Kizir, M., Çifçi Tekinarslan, İ., (2018) Ağır ve Çoklu Yetersizliği (AÇYE) Olan Çocuk Annelerinin Yaşadıkları Sorunların ve Sorunlarla Baş Etme Yöntemlerinin Belirlenmesi. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi, 19(2),233-256.
Konkoly Thege, B., Pilling, J., Szekely, A., Kopp, M.S.(2013).Relationship between religiosity and health: evidence from a post-communist country. International Journal of Behavioral Medicine,20(4),477–86.
Koller D., Le Pouesard, M., Anneke Rummens, J., (2018) Defining Social Inclusion for Children with Disabilities: A Critical Literature Review. Chıldren & Socıety 32, 1–13.
Knafl, K. A., Deatrick, J. A., Knafl, G. J., Gallo, A. M., Grey, M., Dixon, J. (2013). Patterns of family management of childhood chronic conditions and their relationship to child and family functioning. Journal of Pediatric Nursing, 28(6), 523-535.
Krstić, T., Mihić, L., Mihić, I. (2015). Stress and resolution in mothers of children with cerebral palsy. Research in Developmental Disabilities, 47, 135–143.
Kurtuncu, M., Akhan, L. U., Yildiz, H., Demirbag, B. C. (2015). Experiences shared through the ınterviews from fifteen mothers of children with cerebral palsy. Sexuality and Disability, 33(3), 349–363.
Lee, M. H., Matthews, A. K., Park, C. (2019). Determinants of Health-related Quality of Life Among Mothers of Children With Cerebral Palsy. Journal of Pediatric Nursing, 44, 1–8.
Lee, M. H., Park, C., Matthews, A. K., Hsieh, K. (2017). Differences in physical health, and health behaviors between family caregivers of children with and without disabilities. Disability and Health Journal, 10(4), 565–570.
Liu, Y., Ozodiegwu, I. D., Yu, Y., Hess, R., Bie, R. (2017). An association of health behaviors with depression and metabolic risks: Data from 2007 to 2014 U.S. National Health and Nutrition Examination Survey. Journal of Affective Disorders, 217(April), 190–196.
Lyons, A. M., Leon, S. C., Phelps, R., & Dunleavy, A. M. (2010). The impact of child symptom severity on stress among parents of children with ASD: The moderating role of coping styles. Journal of Child and Family Studies, 19, 516–524.
Maurer, F., Smith, C.(ed.) (2014).Communıty/public health nursing practice health for families and populations .Canada. Elsevier .
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Toplam 80 adet kaynakça vardır.

Ayrıntılar

Birincil Dil	Türkçe
Konular	Sağlık Kurumları Yönetimi
Bölüm	Derlemeler
Yazarlar	Rana Yiğit 0000-0002-6832-3565 Sümeyye Kaya 0000-0002-5782-6992
Yayımlanma Tarihi	23 Aralık 2020
Gönderilme Tarihi	16 Temmuz 2020
Yayımlandığı Sayı	Yıl 2020 Cilt: 9 Sayı: 3

Kaynak Göster

APA	Yiğit, R., & Kaya, S. (2020). Sağlıklı Yaşam Biçimi Davranışları Kapsamında Özel Gereksinimi Bulunan Çocukların Ebeveynleri. Balıkesir Sağlık Bilimleri Dergisi, 9(3), 233-240.

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