Expectations of liver transplantation candidates’ and their relatives and difficulties they experience

Year 2019, Volume: 44 Issue: 2, 669 - 684, 30.06.2019

Tuğba Altuntaş Yıldız , Sevil Güler Demir

https://doi.org/10.17826/cumj.440855

Cited By: 2

Abstract

Purpose:The study was carried out to investigate the expectations of liver
transplantation candidates and their relatives concerning transplantation and
the difficulties they experience.

Materials and Methods:This descriptive
and single-center study was performed in the Transplantation Polyclinic of a
public hospital in Ankara. The sample consisted of 170 liver transplantation
candidates and 170 patient relatives. Data were collected through face-to-face
interviews with participants. Percentage, average, chi-square, and Fisher’s
exact chi-square tests were used to evaluate the data.

Results:This study reveals that the most important expectation of liver
transplantation candidates during the waiting period is “a transplant operation
with successful results” (70.0%), whereas liver transplantation patients’
relatives are primarily concerned with the expectation that their sick relative
will “regain her or his health”(80.0%).Almost all (97.1%) of the patients had
physical problems,and the majority of them(87.1%) struggled with activities of
daily living and experienced psychological (85.3%) and socio-economic problems (81.8%).Patients’
relatives also had problems associated with activities of daily living (80.6%)
and experienced psychological (81.8%) and socio-economic (73.5%) difficulties.

Conclusion:The results of this study confirm that liver
transplantation candidates and their relatives experience many difficulties
that impact their activities of daily living, as well as psychological and
socio-economic problems.In order to provide relief from these difficulties, liver
transplantation candidates and their relatives should be given training and
counseling.

Keywords

Liver Transplantation, Transplant Recipients, Caregivers

Karaciğer transplantasyonu adaylarının ve yakınlarının beklentileri ve yaşadıkları güçlükler

Abstract

Amaç: Bu araştırma, karaciğer transplantasyonu için bekleyen hastaların ve yakınlarının
beklentilerini ve yaşadıkları güçlükleri belirlemek amacıyla yapılmıştır.

Gereç ve Yöntem: Tanımlayıcı ve tek merkezli bu çalışma, Ankara'daki bir kamu
hastanesinin Transplantasyon Polikliniğinde yapılmıştır. Örnekleme 170
karaciğer transplantasyonu adayı ve 170 hasta yakınını dahil edilmiştir. Veriler
katılımcılar ile yüzyüze görüşülerek toplanmıştır. Verilerin değerlendirilmesi
için yüzde, ortalama, ki-kare ve Fisher'in kesin ki-kare testleri
kullanılmıştır.

Bulgular: Araştırmada, karaciğer transplantasyonu bekleyen hastaların bekleme
süreci sırasında en büyük beklentisinin “başarılı bir nakil ameliyatı olma”
(%70.0), hasta yakınlarının en önemli beklentisinin ise “hastalarının eski
sağlığına kavuşması” (%80.0) olduğu belirlenmiştir. Hastaların tamamına yakını
(%97.1) fiziksel sorunlar, büyük çoğunluğu da günlük yaşam aktiviteleri (%87.1)
ile ilgili, psikolojik (%85.3) ve sosyo-ekonomik (%81.8) güçlükler
yaşamaktadır. Hasta yakınları da günlük yaşam aktiviteleri ile ilgili (%80.6),
psikolojik (%81.8) ve sosyo-ekonomik (% 73.5) güçlükler yaşamaktadır.

Sonuç: Bu araştırmanın sonuçları karaciğer transplantasyonu bekleyen hastaların
ve yakınlarının günlük yaşam aktivitelerini etkileyen birçok güçlüğün yanı
sıra, psikolojik ve sosyo-ekonomik güçlüklerle karşılaştıklarını
desteklemektedir. Yaşanan bu güçlüklerin azaltılabilmesi için karaciğer
transplantasyonu bekleyen hasta ve hasta yakınlarına eğitim ve danışmanlık
verilmesi önerilmektedir.

Keywords

Karaciğer Transplantasyonu, Transplantasyon Bekleyen Hastalar, Bakım Verenler

References

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