Araştırma Makalesi
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Otizm Spektrum Bozukluğu Olan Çocuğa Sahip Ebeveynlerin Evde Eğitim Yaşantısında Bir Örnek Olarak Pandemi

Yıl 2024, Sayı: 59, 726 - 746, 29.03.2024
https://doi.org/10.53444/deubefd.1400524

Öz

Bu çalışma, ebeveynlerin COVID-19 döneminde Otizm Spektrum Bozukluğu (OSB) olan çocuklarıyla evde eğitim sürecinde kullandıkları bireysel stratejileri araştırmaktadır. Nitel araştırma yaklaşımı ve fenomenoloji deseni kullanılarak yürütülen araştırmanın katılımcılarını belirlemek için amaçlı örnekleme yöntemi kullanılmış ve OSB olan çocuğa sahip on ebeveynle görüşülmüştür. Araştırma verileri yarı yapılandırılmış görüşme formları aracılığıyla toplanmıştır. İçerik analizi yöntemi ile verilerin analizi gerçekleştirilmiştir. Bu kapsamda ebeveynler koronavirüs pandemisinde OSB olan çocukları, aile üyeleri, akran ebeveynleri ve uzmanların işbirliği ile birlikte evde yürütülen eğitim yaşantılarını nasıl sürdürdüklerine dair deneyimlerini aktarmışlardır. Araştırma bulgularına göre OSB olan çocuklarının evde eğitim süreçlerinde ebeveynlerin ve diğer aile üyelerinin birbirlerini tamamlayıcı ve bütünleyici rolleri, bu çocukların okuldan eve rutin aktivitelere geçişini kolaylaştırmıştır. OSB olan çocukların ebeveynleri, çocuklarının COVID-19 döneminin getirdiği yeni sosyal yaşama hazırlık becerileri, sağlık ve güvenlik önlemleri hakkında bir gelişim gösterdiklerini ifade etmiştir. Bununla birlikte örgün eğitimden uzak kalmanın OSB olan çocukların yaşam tarzında ve sosyal davranışlarında çeşitliliğe yol açtığı, beraberinde öz bakım ve öğretimsel uyarlamalarda yenilikleri getirdiği, hareket kısıtlılığının psikolojik süreçlere etkisinin olduğu ve kurumların eğitim hizmeti sunmada yetersiz kalmasına neden olduğu görülmektedir. Dolayısıyla OSB olan çocukların eğitimsel desteklerinin devam etmesi yönünde politikalar geliştirilmeli ve iyi örneklerin yaygınlaştırılması gerekmektedir.

Etik Beyan

Yapılan bu çalışmada “Yükseköğretim Kurumları Bilimsel Araştırma ve Yayın Etiği Yönergesi” kapsamında uyulması belirtilen tüm kurallara uyulmuştur. Yönergenin ikinci bölümü olan “Bilimsel Araştırma ve Yayın Etiğine Aykırı Eylemler” başlığı altında belirtilen eylemlerden hiçbiri gerçekleştirilmemiştir. Etik kurul izin bilgileri: Etik değerlendirmeyi yapan kurul adı: Ankara Üniversitesi Rektörlüğü Etik Kurul Başkanlığı Etik değerlendirme kararının tarihi: 12/04/2021 Etik değerlendirme belgesi sayı numarası:56786525-050.04.04/100831

Kaynakça

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  • Amaral, D. G., & de Vries, P. J. (2020). COVID‐19 and autism research: Perspectives from around the globe. Autism research, 13(6), 844-869. https://doi.org/10.1002/aur.2329
  • Arıcı-Doğan, D. & Görgü, E. (2022). Otizm spektrum bozukluğu olan çocukların annelerinin covid-19 pandemi sürecinde özel eğitime ara vermeye yönelik görüşlerinin incelenmesi. Journal of Qualitative Research in Education, 30, 107-131. https://doi.org/10.14689/enad.30.5
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The Pandemic As An Example For The Home Education Experience Of Parents Of Children With Autism Spectrum Disorder

Yıl 2024, Sayı: 59, 726 - 746, 29.03.2024
https://doi.org/10.53444/deubefd.1400524

Öz

This study investigates the individual strategies parents use during the homeschooling process with their children with Autism Spectrum Disorder (ASD) during the COVID-19 period. Purposive sampling method was used to determine the participants of the study, which was carried out using a qualitative research approach and phenomenology design, and ten parents of children with ASD were interviewed. Research data was collected through semi-structured interview forms. Data was analyzed using the content analysis method. In this context, parents shared their experiences on how they continued their education life at home with the cooperation of their children with ASD, family members, peer parents and experts during the coronavirus pandemic. According to the research findings, the complementary and complementary roles of parents and other family members in the home education processes of children with ASD facilitated the transition of these children to routine activities from school to home. Parents of children with ASD stated that their children have improved in their preparation for new social life skills, health and safety measures brought by the COVID-19 period. However, it is seen that being away from formal education causes diversity in the lifestyle and social behavior of children with ASD, brings with it innovations in self-care and instructional adaptations, movement restriction has an impact on psychological processes, and causes institutions to be inadequate in providing educational services. Therefore, policies should be developed to continue the educational support of children with ASD and good examples should be disseminated.

Kaynakça

  • Altunışık, R., Coşkun, R., Bayraktaroğlu, S., & Yıldırım, E. (2007). Sosyal bilimlerde araştırma yöntemleri: SPSS uygulamalı (5.Baskı). Sakarya yayıncılık.
  • Amaral, D. G., & de Vries, P. J. (2020). COVID‐19 and autism research: Perspectives from around the globe. Autism research, 13(6), 844-869. https://doi.org/10.1002/aur.2329
  • Arıcı-Doğan, D. & Görgü, E. (2022). Otizm spektrum bozukluğu olan çocukların annelerinin covid-19 pandemi sürecinde özel eğitime ara vermeye yönelik görüşlerinin incelenmesi. Journal of Qualitative Research in Education, 30, 107-131. https://doi.org/10.14689/enad.30.5
  • Armitage, R., & Nellums, L. B. (2020). COVID-19 and the consequences of isolating the elderly. The Lancet Public Health, 5(5), 256. https://doi.org/10.1016/S2468-2667(20)30061-X
  • Arora, T. (2006). Elective home education and special educational needs. Journal of Research in Special Educational Needs, 6(1), 55-66. https://doi.org/10.1111/j.1471-3802.2006.00059.x
  • Asbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, U. (2020). How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families? PsyArXiv Preprints. https://doi.org/10.1007/s10803-020-04577-2
  • Berg, K. E., & Latin, R. W. (2008). Essentials of research methods in health, physical education, exercise science, and recreation (3th ed.). Lippincott Williams & Wilkins.
  • Berthelsen, D., & Walker, S. (2008). Parents' involvement in their children's education. Family matters, (79), 34-41.
  • Black, E. W. (2009). An evaluation of familial involvements’ influence on student achievement in K-12 virtual schooling [Unpublished doctoral thesis]. University of Florida. http://etd.fcla.edu/UF/UFE0024208/black_e.pdf
  • Bogdan, R. C., & Biklen, S. K. (2007). Research for education: An introduction to theories and methods. Boston, MA: Allen and Bacon.
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  • Eshraghi, A. A., Li, C., Alessandri, M., Messinger, D. S., Eshraghi, R. S., Mittal, R., & Armstrong, F. D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. The Lancet Psychiatry, 7(6), 481-483. https://doi.org/10.1016/S2215-0366(20)30197-8
  • Fontanesi, L., Marchetti, D., Mazza, C., Di Giandomenico, S., Roma, P., & Verrocchio, M. C. (2020). The effect of the COVID-19 lockdown on parents: A call to adopt urgent measures. Psychological trauma: theory, research, practice, and policy, 12(1), 79-81. https://doi.org/10.1037/tra0000672
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  • Gökler, E. (2021). Otizm Spektrum Bozukluğu Tanılı Çocuğa Sahip Ebeveynlerin Covid-19 Salgın Sürecinde Yaşadıkları Güçlüklerin Belirlenmesi. [Yayımlanmamış yüksek lisans tezi]. Üsküdar Üniversitesi.
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  • Harding, T. J. (2003). A submission for the Home Schooling Review. Brisbane: Australian Christian Academy.
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  • Ingvarsson, E. T. (2016). Tutorial: Teaching verbal behavior to children with ASD. International Electronic Journal of Elementary Education, 9(2), 433-450. https://iejee.com/index.php/IEJEE/article/view/168
  • Işıkoğlu, N. (2005). Eğitimde nitel araştırma. Eğitim Araştırmaları, 20, 158-165.
  • Johnson, R. B., & Christensen, L. (2019). Educational research: Quantitative, qualitative, and mixed approaches. Sage publications.
  • Jolly, J. L., Matthews, M. S., & Nester, J. (2013). Homeschooling the gifted: A parent’s perspective. Gifted Child Quarterly, 57(2), 121-134. https://doi.org/10.1177/0016986212469999
  • Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modeling approach. Journal of autism and developmental disorders, 43(9), 2090-2098. https://doi.org/10.1007/s10803-012-1756-9
  • Karasar, N. (2017). Bilimsel araştırma yöntemi: Kavramlar, ilkeler, teknikler (32.Baskı). Ankara: Nobel Yayınevi.
  • Kidd, T., & Kaczmarek, E. (2010). The experiences of mothers home educating their children with autism spectrum disorder. Issues in Educational Research, 20(3), 257-275.
  • Klein, C. (2006). Virtual charter schools and home schooling. Youngstown, NY: Cambria Press.
  • Lappé, M., Lau, L., Dudovitz, R. N., Nelson, B. B., Karp, E. A., & Kuo, A. A. (2018). The diagnostic odyssey of autism spectrum disorder. Pediatrics, 141(Supplement_4), S272-S279. https://doi.org/10.1542/peds.2016-4300C
  • Lee, E. A. L., Black, M. H., Falkmer, M., Tan, T., Sheehy, L., Bölte, S., & Girdler, S. (2020). " We Can See a Bright Future": Parents' Perceptions of the Outcomes of Participating in a Strengths-Based Program for Adolescents with Autism Spectrum Disorder. Journal of autism and developmental disorders, 50(9), 3179-3194. https://doi.org/10.1007/s10803-020-04411-9
  • LePage, P., & Courey, S. (2013). Teaching children with high-level autism: Evidence from families. Routledge. Luthra, N., & Perry, A. (2011). Knowledge as coping in parents of children with autism. Journal on Developmental Disabilities, 17(2), 79-81.
  • MacPhee, D., Lunkenheimer, E., & Riggs, N. (2015). Resilience as regulation of developmental and family processes. Family Relations, 64(1), 153-175. https://doi.org/10.1111/fare.12100
  • Marshall, C., & Rossman, G. B. (2016). Designing qualitative research (4th ed.). USA: Sage publications.
  • Masters, G. N., Taylor‐Guy, P., Fraillon, J., & Chase, A. (2020). Ministerial Briefing Paper on Evidence of the Likely Impact on Educational Outcomes of Vulnerable Children Learning at Home during COVID‐19. Australian Government Department of Education, Skills and Employment. https://research.acer.edu.au/cgi/viewcontent.cgi?article=1025&context=learning_processes
  • Mazza, C., Ricci, E., Biondi, S., Colasanti, M., Ferracuti, S., Napoli, C., & Roma, P. (2020). A nationwide survey of psychological distress among Italian people during the COVID-19 pandemic: immediate psychological responses and associated factors. International journal of environmental research and public health, 17(9), 3165. https://doi.org/10.3390/ijerph17093165
  • McConnell, D., & Savage, A. (2015). Stress and resilience among families caring for children with intellectual disability: expanding the research agenda. Current developmental disorders reports, 2(2), 100-109. https://doi.org/10.1007/s40474-015-0040-z
  • Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: An expanded sourcebook. Thousands Oaks, CA: Sage.
  • Mutluer, T., Doenyas, C., & Aslan Genc, H. (2020). Behavioral implications of the Covid-19 process for autism spectrum disorder, and individuals' comprehension of and reactions to the pandemic conditions. Frontiers in psychiatry, 11, 561882. https://doi.org/10.3389/fpsyt.2020.561882
  • Narzisi, A. (2020). Handle the Autism Spectrum Condition During Coronavirus (COVID-19) Stay At Home period: Ten Tips for Helping Parents and Caregivers of Young Children. Brain Sciences, 10(4), 207-210. https://doi.org/10.3390/brainsci10040207
  • Neece, C., McIntyre, L. L., & Fenning, R. (2020). Examining the impact of COVID‐19 in ethnically diverse families with young children with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 64(10), 739-749. https://doi.org/10.1111/jir.12769
  • Parenteau, C. I., Bent, S., Hossain, B., Chen, Y., Widjaja, F., Breard, M., & Hendren, R. L. (2020). COVID-19 related challenges and advice from parents of children with autism spectrum disorder. SciMedicine Journal, 2, 73-82. https://doi.org/10.28991/SciMedJ-2020-02-SI-6
  • Parmet, W. E., & Sinha, M. S. (2020). Covid-19—the law and limits of quarantine. New England Journal of Medicine, 382(15), e28. https://doi.org/10.1056/NEJMp2004211
  • Parsons, S., & Lewis, A. (2010). The home‐education of children with special needs or disabilities in the UK: views of parents from an online survey. International Journal of Inclusive Education, 14(1), 67-86. https://doi.org/10.1080/13603110802504135
  • Patton, M. Q. (2014). Qualitative research & evaluation methods: Integrating theory and practice. Sage publications.
  • Peräkylä, A., & Ruusuvuori, J. (2008). Analyzing talk and text. Collecting and interpreting qualitative materials, 3, 351-374.
  • Ray, B. (2015). Research facts on homeschooling. https://files.eric.ed.gov/fulltext/ED556234.pdf
  • Reilly, L., Chapman, A., & O’Donoghue, T. (2002). Home schooling of children with disabilities. Queensland Journal of Educational Research, 18(1), 38-61.
  • Roorda, D. L., Koomen, H. M., Spilt, J. L., Thijs, J. T., & Oort, F. J. (2013). Interpersonal behaviors and complementarity in interactions between teachers and kindergartners with a variety of externalizing and internalizing behaviors. Journal of school psychology, 51(1), 143-158. https://doi.org/10.1016/j.jsp.2012.12.001
  • Salmons, J. (2014). Qualitative online interviews: Strategies, design, and skills (2nd ed.). Sage Publications.
  • Sani-Bozkurt, S., Bozkuş-Genç, G., Vuran, S., Yıldız, G., Çelik, S., Diken, İ. H., Uysal, Ç., Gürgür, H., Kalaycı, G., Diken, Ö., Ateşgöz, N. N., İçyüz, R., Doğan, M., Şafak, P. ve Demiryürek, P. (2022). COVID-19 salgınında Türkiye’deki özel gereksinimi olan öğrenciler ve ailelerine yönelik uzaktan özel eğitim uygulamalarına ilişkin uzman bakış açısı. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi, 23(1), 133-164. https://doi.org/10.21565/ozelegitimdergisi.786118
  • Simmons, C. A. (2014). Homeschool decision making and evidence-based practice for children with autism spectrum disorder [Unpublished master’s thesis]. University of Georgia, Athens, GA.
  • Smile, S. C. (2020). Supporting children with autism spectrum disorder in the face of the COVID-19 pandemic. Canadian Medical Association Journal, 192(21), E587. https://doi.org/10.1503/cmaj.75399
  • Starr, E. M., Foy, J. B., Cramer, K. M., & Singh, H. (2006). How are schools doing? Parental perceptions of children with autism spectrum disorders, Down syndrome and learning disabilities: A comparative analysis. Education and training in Developmental Disabilities, 41(4), 315-332.
  • Summers, J. A., Hoffman, L., Marquis, J., Turnbull, A., Poston, D., & Nelson, L. L. (2005). Measuring the quality of family—professional partnerships in special education services. Exceptional children, 72(1), 65-81. https://doi.org/10.1177/001440290507200104
  • The National Disability Rights Network. (2020). Covid-19 and education of students with disabilities resources. https://www.ndrn.org/resource/covid-19-and-education-of-students-with-disabilities-resources/
  • Thelwall, M., & Levitt, J. M. (2020). Retweeting COVID-19 disability issues: Risks, support and outrage. El profesional de la información (EPI), 29(2). https://doi.org/10.3145/EPI
  • Toseeb, U., Asbury, K., Code, A., Fox, L., & Deniz, E. (2020). Supporting families with children with special educational needs and disabilities during COVID-19. PsyArXiv Preprints. https://doi.org/10.31234/osf.io/tm69k
  • UNESCO (2020, September 22). COVID-19: How the UNESCO Global Education Coalition is tackling the biggest learning disruption in history. https://en.unesco.org/news/COVID-19-how-unesco-global-education-coalition-tackling-biggest-learning-disruption-history
  • United Nations Human Rights (2020). COVID-19 and the rights of persons with disabilities: Guidance. https://www.ohchr.org/Documents/Issues/Disability/COVID-19_and_The_Rights_of_Persons_with_Disabilities.pdf
  • Weiss, J. A., Wingsiong, A., & Lunsky, Y. (2014). Defining crisis in families of individuals with autism spectrum disorders. Autism, 18(8), 985-995. https://doi.org/10.1177/1362361313508024
  • WHO (2019). Coronavirus disease (COVID-19) pandemic. https://www.who.int/emergencies/diseases/novel-coronavirus-2019
  • Wong, C., & Kasari, C. (2012). Play and joint attention of children with autism in the preschool special education classroom. Journal of autism and developmental disorders, 42(10), 2152-2161. https://doi.org/10.1007/s10803-012-1467-2
  • Yahya, A. S., & Khawaja, S. (2020). Supporting patients with autism during COVID-19. The primary care companion for CNS disorders, 22(4), 26680. https://doi.org/10.4088/PCC.20com02668
  • Yarımkaya, E., & Esentürk, O. K. (2020). Promoting physical activity for children with autism spectrum disorders during Coronavirus outbreak: benefits, strategies, and examples. International Journal of Developmental Disabilities, 1-6. https://doi.org/10.1080/20473869.2020.1756115
  • Yeager, K., & Roberts, A. (Eds.). (2015). Crisis intervention handbook: Assessment, treatment, and research (4th ed.). Oxford University Press.
  • Yıldırım, A., & Şimşek, H. (2016). Sosyal bilimlerde nitel araştırma yöntemleri (10. baskı.). Ankara: Seçkin Yayıncılık
  • Yılmaz, B., Azak, M., & Şahin, N. (2021). Mental health of parents of children with autism spectrum disorder during COVID-19 pandemic: A systematic review. World journal of psychiatry, 11(7), 388-402. https://doi.org/10.5498/wip.v11.i7.388
Toplam 83 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Konular Otizm ve Spekrum Bozukluğu Eğitimi
Bölüm Makaleler
Yazarlar

Bahadır İnan 0000-0002-2952-5455

Yayımlanma Tarihi 29 Mart 2024
Gönderilme Tarihi 5 Aralık 2023
Kabul Tarihi 28 Şubat 2024
Yayımlandığı Sayı Yıl 2024 Sayı: 59

Kaynak Göster

APA İnan, B. (2024). Otizm Spektrum Bozukluğu Olan Çocuğa Sahip Ebeveynlerin Evde Eğitim Yaşantısında Bir Örnek Olarak Pandemi. Dokuz Eylül Üniversitesi Buca Eğitim Fakültesi Dergisi(59), 726-746. https://doi.org/10.53444/deubefd.1400524