Aileden Aileye Destek Programına İlişkin Deneyimler

Yıl 2014, Cilt: 7 Sayı: 2, 115 - 118, 01.05.2014

Kerime Bademli Zekiye Çetinkaya Duman

Öz

Şizofreni hastalığı hastanın olduğu kadar ailenin de yaşamını olumsuz etkilemektedir. Aileler çoğu zaman hasta ile beraber evde yalnız
yaşamaktadırlar. Aileler yaşamlarını herhangi bir destek almadan sürdürmekte ve çoğunlukla hastası ile ilgili yaşadığı güçlükler ile nasıl baş
edeceklerini bilememektedirler. Şizofreni hastasının olduğu kadar bakım verenlerinin de bilgi ve destek gereksinimleri vardır ancak bu
destek gereksinimi sağlık çalışanları tarafından çoğunlukla çeşitli nedenlerden dolayı verilememektedir. Bu durum “Aileden Aileye Destek
Programı” uygulamalarının başlamasına neden olmuştur. Bu derlemede Doktora tezi kapsamında geliştirilen şizofreni hastasına bakım
verenlere uygulanan “Aileden Aileye Destek Programı” hazırlık aşaması ve uygulama aşamasında yaşanılan deneyimler paylaşılmaktadır.

Anahtar Kelimeler

Şizofreni, aileden aileye destek, deneyim

An Experience Of Implementing The Family to Family Support Program

Öz

Schizophrenia is known to adversely affect the daily lives of family as well as the patients. Families often live together with
the patients alone in their houses. They are obviously deprived of any kind of support and guidance about how to cope with the
challenges they have with the patient at home. The caregivers of schizophrenia patients also require information and support
about the course of the illness just like the patients. However, health professionals often fail to cover such needs of support for
a variety of reasons, which currently inspired to initiate support programs, including “The Family to Family Support Program”.
This review presents the results of a doctoral dissertation and aims to share the experiences of devising and implementing “the
Family to Family Program”, a specially designed program to provide support to the care givers of schizophrenia patients.

Anahtar Kelimeler

Schizophrenia, family to family support, experience

Kaynakça

• Addington, J., Collins, A., McCleery, A., & Addington, D. (2005). The role of family work in early psychosis. Schizophrenia Research, 79, 77 – 83.
• Baxter, J.D.(2001). The implementation of a family education program by the British Columbia schizophrenia society. The Universiy of Northern British Columbia. ProQuest
• Dissertations and Theses, ProQuest Dissertations and Theses Carter, K.O.G., & Curlee, M. (1999). The educational needs of families of mentally ill adults: the south caroline experience. Psychiatry Services, 50,520-524.
• Chien, W.T., & Norman I. (2003). Educational needs of families caring for Chienese patients with schizophrenia. Journal of Advanced Nursing, 44(5), 490-498.
• Chien, W.T, Thompson, D.R, & Norman, I.(2008). Evaluation of peer-led mutual support group for chinese families of people with schizophrenia. American Journal of Community Psychology, 42, 122-134.
• Chien, W.T.(2008). Effectiveness of psychoeducation and mutual support group program for family caregivers of chinese people with schizophrenia. The Open Nursing Journal,2, 28- 39.
• Doğan, O.(2002). Şizofrenik bozukluklarda psikososyal yaklaşımlar. Anadolu Psikiyatri Dergisi, 3, 240-248.
• Gülseren, L.(2002) Şizofreni ve aile: güçlükler, yükler, duygular, gereksinimler. Türk Psikiyatri Dergisi, 13(2), 143-151.
• Harvey, C., & Hanlon, B.(2013). Family psycho-education for people with schizophrenia and other psychotic disorders and their families. Australian & New Zealand Journal of Psychiatry, 1–57.
• Lucksted, A., Steward, B., & Forbes, C.B.(2008). Benefits and changes for family to family graduates. American Journal of Community Psychology, 42, 154-66.
• Maldonado, G.J., & Urizar, A.C.(2007). Effectiveness of psychoeducational intervention for reducing burden in latin american families of patients with schizophrenia. Quality of Life Research,16,739-747.
• Mead, S.,& Macneil, C.(2006). Peer support:What makes it unique? International Journal of Psychsocial Rehabilitation, 10(2), 29-37.
• Rüsch, N., Angermeyer, M.C., & Corrigan, P.W.(2005). Mental illness stigma: Concepts, consequences, and initiatives to reduce stigma. European Psychiatry, 20(8), 529–539.
• Schenk, P.A, Lippincott, R.C., Bennett, C., & Steigman, P.J.(2008). Improving knowledge about mental illness through family-led education:the journey of hope. Psychiatry Services, 59, 49-56.
• Solomon, P.(2000). Interventions for families of individuals with schizophrenia maximising outcomes for their relatives. Disease Management & Health Outcomes, 8(4),211-221.
• Tan, S.C.H., Yeoh, A.L., Choo, I.B.K., Huang, A.P.H., Ong, S.H., Ismail, H., Ang P.P., & Chan, Y.H.(2012). Burden and coping strategies experienced by caregivers of persons with schizophrenia in the community . Journal of Clinical Nursing, 21, 2410–2418.
• Terschinsky, U.(2000). Living with schizophrenia:the family illness experience. Issues Mental Health Nursing, 21, 387- 396.
• Winefield, H.R., & Harvey, E.J.(1994). Needs of family caregivers in chronic schizophrenia. Schizophrenia Bulletin, 20(3), 557-566.
• Young, R.(2001). Support groups for relatives of people living with a serious mental illness:An overwiew. International Journal of Psychological Rehabilitaion, 5, 56-80.