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Tip 1 Diabetes Mellitus’lu Çocuklarda Yaşam Kalitesi ve Önemi

Yıl 2013, Cilt: 6 Sayı: 2, 99 - 101, 01.05.2013

Öz

Diabetes Mellitus, insülin sekresyonunun ve/veya insulin etkisinin mutlak ve göreceli azlığı sonucu karbonhidrat, yağ ve proteinmetabolizma bozukluklarına yol açan hiperglisemi ile karakterize kronik bir metabolizma hastalığıdır. Tip 1 Diyabet tanısı insan yaşamınıkalıcı olarak değiştirmektedir. Hastanın günlük insülin enjeksiyonu, kan şekeri takibi, gelişebilecek akut ve kronik komplikasyonlar çocuk veergenlerin sağlıkla ilgili yaşam kalitesini etkilemektedir. Tip 1 DM yaşam kalitesi hastalığın gidişinin önemli bir göstergesi olup, çocuğuniyilik halini göstermektedir. Metabolik kontrol ve komplikasyonların önlenmesi kadar, çocuğun iyilik hali ve yaşam kalitesi de tedavideeşdeğer öneme sahiptir. Hemşireliğin temel rolü olan bakımın hedefi, yaşam kalitesini desteklemektir. Hemşirelerin bakım verdiklerikişilerin yaşam kalitelerini nasıl algıladıklarını bilmesi ve bu doğrultuda bakım sunabilmesi için bu kavramı çok iyi anlamaları gerekmektedir

Kaynakça

  • Abolfotouh MA, Kamal MM, El-Bourgy MD, Mohamed SG. Quality of life and glycemic control in adolescents with type 1 diabetes and the impact of an education intervention. International Journal og General Medicine, 2011; 4: 141-152.
  • American Diabates Association (ADA). Standards of medical care in diabetes. Diabetes Care, 2012; 35(1): 11-63.
  • Alemzadeh R, Wyatt D.T. Diabetes Mellitus. In: Behrman R.E, Kliegman R.M, Jenson H.B (eds). Nelson Textbook of Pediatrics. 17 edition. Pennsylvania: Elsevier Saunders; 2004:1947-72.
  • Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, Pazzaglia C, Marietti G, Rendeli C. Multidimensional study on quality of life in children with type 1 diabetes. European Review For Medical and Pharmacological Sciences, 2007; 11: 249-255.
  • Bradlyn AS., Ritchey AK., Harris CV., Moore IM., O’ Brien RT., Parsons SK. Et all. “Quality of life research in pediatric oncology”. Research methods and barriers”, Cancer,1996; 78: 1333-1339.
  • Celasin NŞ. Diyabetli ergenlerde internet üzerinden yapılan danışmanlığın hipoglisemi korkusu ve metabolik kontrol üzerine etkisi, Yayınlanmamış Doktora Tezi, İzmir, 2011.
  • Coffey JT, Brandle M, Zhou H, Marriott D, Burke R, Tabaei BP, Engelgau MM, Kaplan RM ve Herman WH. Valuing Health-Related Quality of Life in Diabetes. Diabetes Care, 2002; 25(12):2238-2243.
  • Craig, ME., Hattersley, A. ve Donaghue, K. ISPAD Clinical Practice Consensus Guidelines. Definition, epidemiology and classification of diabetes in children and adolescents. Pediatric Diabetes, 2009; 10(12): 3-12.
  • Cropper J, Kanchi L, Ford-Adams M, Hulse T, Buchanan C ve Barker E., Quality of life and HbA1c outcomes in children and young people commencing insulin pump therapy. Endocrine Abstracts, 2012; 30.
  • Çakın-Memik N, Ağaoğlu B, Coşkun A, ve ark., Tip 1 diabetes mellitusu olan çocuk ve ergenlerin yaşam kalitesi algılarının değerlendirilmesi. Çocuk ve Gençlik Ruh Sağlığı Dergisi, 2007; 14(3):133-138.
  • Çocuk Endokrin Diyabet Deneği. Okulda Diyabet Eğitim Programı, http://www.cocukendokrindiyabet.org/okuldadiyabet/files/odp_pr ogram.pdf. Erişim tarihi: 01.05.2013.
  • Çövener Ç. Tip 1 diyabet yönetiminde sağlığı geliştirme modeli ve tam öğrenme kuramına dayalı eğitimin etkisi. Yayınlanmamış Doktora Tezi, Marmara Üniversitesi, 2012.
  • Durualp E, Kara FN, Yılmaz V ve Alaybeyoğlu K. Kronik hastalığı olan ve olmayan çocukların ve ebeveynlerinin görüşlerine göre yaşam kalitelerinin karşılaştırılması. Ankara Üniversitesi Tıp Fakültesi Mecmuası, 2010; 63(2): 55-63.
  • Eiser C, Jenney MM. Measuring symptomatic benefit and quality of life in pediatric oncology. British Journal of Cancer, 1996; 73: 1313-1316.
  • Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 2001; 5: 1-156.
  • Eiser C, Morse R. Can parents rate their child’s health related quality of life? Results of a systematic review. Qual Life Res 2001: 10: 347–357.
  • Fairchlough DL. (2010). Design and Analysis of Quality of Life Studies in Clinical Trials. Taylor and Francis Group.
  • Graue M, Wentzel-Larsen T, Hanestad BR ve ark. Measuring self-reported quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments. Acta Paediatrica, 2003; 92: 1190-1196.
  • Guthrie DW, Bartsocas C, Jarosz-Chabot P, Konstantinova M. Psychosocial Issues for Children and Adolescents With Diabetes: Overview and Recommendations. Diabetes Spectrum, 2003; 16: 7-12.
  • Harding L. Children’s quality of life assessments: a review of generic and health related quality of life measures completed by children and adolescents. Clinical Psychology and Psychotherapy, 2001; 8: 79–96.
  • Hart HE, Redekop WK, Bilo HJG ve ark. Health related quality of life in patients with type I diabetes mellitus: generic & disease-specific measurement. Indian Journal of Medical Research, 2007; 125:203-216.
  • He L, Guo S, Li P ve Chen L. The subjective quality of life and parental nurturing in children with type 1 diabetes mellitus treated with conventional subcutaneous insulin or with insulin pump therapy. Journal of Clinical Pediatrics, 2008; 26: 807– 810.
  • Higgison IJ ve Car AJ. Using quality of life measures in the clinical setting. British Medical Journal, 2001; 322 (26): 1297- 1300.
  • Hinds PS ve Varricchio, CG. (1996). Quality of life: The nursing perspective In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials (2nd ed.) (529-533). Ohiladelphia, PA: Lippincott-Raven.
  • Hoey H, Aanstoot H, Chiarelli F, Daneman D, Danne T, Dorchy H ve ark., Good metabolic control ıs associated with better quality of life in 2,101 adolescents with type 1 diabetes. Diabetes Care, 2001; 24 (11): 1923-1928.
  • Holmes CS, Respess D, Greer T, Frentz J. Behavior problems in children with diabetes: disentangling possible scoring confounds on the Child Behavior Checklist. Journal of Pediatric Psychology, 1998; 23: 179-185.
  • International Diabetes Federation. Diabetes in the Young: a Global Perspective, Prevalence of type 1 diabetes in children. http://www.idf.org/diabetesatlas/diabetes-young-globalperspective. Erişim tarihi: 01.04.2013.
  • Jafari P, Forouzandeh E, Bagheri Z, Karamizadeh Z ve Shalileh K. Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module. Health and Quality of Life Outcomes, 2011; 9: 104.
  • Johnson SB, Perwien AR: Insulin-dependent diabetes mellitus. In Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings. Koot HM, Wallander JL, Eds. East Sussex, UK, Brunner-Routledge, 2001: 373–401.
  • Júlíusson PB, Graue M, Wentzel-Larsen T, Søvik O.The impact of continuous subcutaneous insulin infusion on health-related quality of life in children and adolescents with type 1 diabetes. , 2006; 95(11):1481-7.
  • Kalyva F, Malakonaki E, Eiser C, Mamoulakis D. Healthrelated quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions. Pediatric Diabetes, 2011; 12(1): 34-40.
  • Laffel LMB, Connell A, Vangsness L ve ark. General quality of life in youth with type 1 diabetes. Diabetes Care, 2003; 26: 3067-3073.
  • McMahon SK, Airey FL, Marangou DA, McElwee KJ, Carne CL, Clarey AJ ve ark., Insulin pump therapy in children and adolescents: improvements in key parameters of diabetes management including quality of life. Diabetic Medicine, 2004;22:92-96.
  • Mutlu MÇ. Tip 1 diyabetli adolesanlara verilen karbonhidrat sayımı akran eğitiminin metabolik kontrolleri üzerine etkisi, Yayınlanmamış Yüksek Lisan tezi, Marmara Üniversitesi, 2009.
  • Nansel TR, Weisberg-Benchell J, Wysocki T, Laffel L, Anderson B. Quality of life in children with Type 1 diabetes: a comparison of general and diabetes-specific measures and support for a unitary diabetes quality-of-life construct, 2008; 25(11): 1316-23.
  • Özçelik EM. Tip 1 Diabetes Mellitusu olan adolesanlara verilen eğitimin metabolik kontrolleri ve öz bakımları üzerine etkisi, Yayınlanmamış Yüksek Lisans Tezi, 2001, İzmir.
  • Rubin RR, Peyrot M. Quality of life and diabetes. Diabetes/Metabolism Research and Reviews, 1999; 15: 205– 218.
  • Sawyer MG, Reynolds KE, Couper JJ ve ark. Health-related quality of life of children and adolescents with chronic illness-a two year prospective study. Quality of Life Research Journal, 2004; 13(7): 1309-1319.
  • Spilker B (1996). Quality of Life and Pharmacoeconomics in Clinical Trials [2nd ed]. Philadelphia: Lippincott-Raven. The WHOQOL Group (1996). What quality of life. World Health Forum, 17: 354-356.
  • Testa MA, Simonson DC. Assessment of quality life outcomes. The New England Journal of Medicine, 1996; 334 (13): 835-840.
  • Thompson SJ, Auslander WF ve White NH. Comparison of Single-Mother and Two-Parent Families on Metabolic Control of Children With Diabetes. Diabetes Care, 2001; 24(2):234-238.
  • Vanelli M, Chiarelli F, Chiari G, Tumini S. Relationship between metabolic control and quality of life in adolescents with type 1 diabetes. Report from two Italian centres for the management of diabetes in childhood. , 2003; 74(1) :13-7. Wagner VM, Müller-Godeffroy E, Von Sengbusch S, Häger S, Thyen U. Age metabolic control and type of insulin regime influences health- related quality of life in children and adolescents with type 1 diabetes mellitus. European Journal of Pediatrics, 2005; 16: 491-496.

The Importance of Quality of Life in Children with Type 1 Diabetes Mellitus

Yıl 2013, Cilt: 6 Sayı: 2, 99 - 101, 01.05.2013

Öz

Diabetes Mellitus is a chronic metabolic disorder characterized by hyperglycemia due to an absolute or relative deficiency of
insulin secretion and/ or insulin effect, that may lead to various disorders of carbohydrate, fat and protein metabolism. Being
diagnosed with Type 1 Diabetes change the lives of people permanently. Daily insulin injections, blood glucose (self)
monitoring, possible acute and chronic complications affect the health-related quality of life of children and adolescents.
Quality of life is a significant indicator of the course in Type 1 Diabetes, and indicates the well-being of the child. In treatment
of Diabetes, quality of life and well-being of the diabetic child are at equal significance as metabolic control and prevention of
possible complications. The principle role of nursing, which is delivering health care, is to support the quality of life of the
patients. Nurses need to understand this concept very well to be able to identify patients' perceptions of their quality of life and
deliver health care accordingly

Kaynakça

  • Abolfotouh MA, Kamal MM, El-Bourgy MD, Mohamed SG. Quality of life and glycemic control in adolescents with type 1 diabetes and the impact of an education intervention. International Journal og General Medicine, 2011; 4: 141-152.
  • American Diabates Association (ADA). Standards of medical care in diabetes. Diabetes Care, 2012; 35(1): 11-63.
  • Alemzadeh R, Wyatt D.T. Diabetes Mellitus. In: Behrman R.E, Kliegman R.M, Jenson H.B (eds). Nelson Textbook of Pediatrics. 17 edition. Pennsylvania: Elsevier Saunders; 2004:1947-72.
  • Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, Pazzaglia C, Marietti G, Rendeli C. Multidimensional study on quality of life in children with type 1 diabetes. European Review For Medical and Pharmacological Sciences, 2007; 11: 249-255.
  • Bradlyn AS., Ritchey AK., Harris CV., Moore IM., O’ Brien RT., Parsons SK. Et all. “Quality of life research in pediatric oncology”. Research methods and barriers”, Cancer,1996; 78: 1333-1339.
  • Celasin NŞ. Diyabetli ergenlerde internet üzerinden yapılan danışmanlığın hipoglisemi korkusu ve metabolik kontrol üzerine etkisi, Yayınlanmamış Doktora Tezi, İzmir, 2011.
  • Coffey JT, Brandle M, Zhou H, Marriott D, Burke R, Tabaei BP, Engelgau MM, Kaplan RM ve Herman WH. Valuing Health-Related Quality of Life in Diabetes. Diabetes Care, 2002; 25(12):2238-2243.
  • Craig, ME., Hattersley, A. ve Donaghue, K. ISPAD Clinical Practice Consensus Guidelines. Definition, epidemiology and classification of diabetes in children and adolescents. Pediatric Diabetes, 2009; 10(12): 3-12.
  • Cropper J, Kanchi L, Ford-Adams M, Hulse T, Buchanan C ve Barker E., Quality of life and HbA1c outcomes in children and young people commencing insulin pump therapy. Endocrine Abstracts, 2012; 30.
  • Çakın-Memik N, Ağaoğlu B, Coşkun A, ve ark., Tip 1 diabetes mellitusu olan çocuk ve ergenlerin yaşam kalitesi algılarının değerlendirilmesi. Çocuk ve Gençlik Ruh Sağlığı Dergisi, 2007; 14(3):133-138.
  • Çocuk Endokrin Diyabet Deneği. Okulda Diyabet Eğitim Programı, http://www.cocukendokrindiyabet.org/okuldadiyabet/files/odp_pr ogram.pdf. Erişim tarihi: 01.05.2013.
  • Çövener Ç. Tip 1 diyabet yönetiminde sağlığı geliştirme modeli ve tam öğrenme kuramına dayalı eğitimin etkisi. Yayınlanmamış Doktora Tezi, Marmara Üniversitesi, 2012.
  • Durualp E, Kara FN, Yılmaz V ve Alaybeyoğlu K. Kronik hastalığı olan ve olmayan çocukların ve ebeveynlerinin görüşlerine göre yaşam kalitelerinin karşılaştırılması. Ankara Üniversitesi Tıp Fakültesi Mecmuası, 2010; 63(2): 55-63.
  • Eiser C, Jenney MM. Measuring symptomatic benefit and quality of life in pediatric oncology. British Journal of Cancer, 1996; 73: 1313-1316.
  • Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 2001; 5: 1-156.
  • Eiser C, Morse R. Can parents rate their child’s health related quality of life? Results of a systematic review. Qual Life Res 2001: 10: 347–357.
  • Fairchlough DL. (2010). Design and Analysis of Quality of Life Studies in Clinical Trials. Taylor and Francis Group.
  • Graue M, Wentzel-Larsen T, Hanestad BR ve ark. Measuring self-reported quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments. Acta Paediatrica, 2003; 92: 1190-1196.
  • Guthrie DW, Bartsocas C, Jarosz-Chabot P, Konstantinova M. Psychosocial Issues for Children and Adolescents With Diabetes: Overview and Recommendations. Diabetes Spectrum, 2003; 16: 7-12.
  • Harding L. Children’s quality of life assessments: a review of generic and health related quality of life measures completed by children and adolescents. Clinical Psychology and Psychotherapy, 2001; 8: 79–96.
  • Hart HE, Redekop WK, Bilo HJG ve ark. Health related quality of life in patients with type I diabetes mellitus: generic & disease-specific measurement. Indian Journal of Medical Research, 2007; 125:203-216.
  • He L, Guo S, Li P ve Chen L. The subjective quality of life and parental nurturing in children with type 1 diabetes mellitus treated with conventional subcutaneous insulin or with insulin pump therapy. Journal of Clinical Pediatrics, 2008; 26: 807– 810.
  • Higgison IJ ve Car AJ. Using quality of life measures in the clinical setting. British Medical Journal, 2001; 322 (26): 1297- 1300.
  • Hinds PS ve Varricchio, CG. (1996). Quality of life: The nursing perspective In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials (2nd ed.) (529-533). Ohiladelphia, PA: Lippincott-Raven.
  • Hoey H, Aanstoot H, Chiarelli F, Daneman D, Danne T, Dorchy H ve ark., Good metabolic control ıs associated with better quality of life in 2,101 adolescents with type 1 diabetes. Diabetes Care, 2001; 24 (11): 1923-1928.
  • Holmes CS, Respess D, Greer T, Frentz J. Behavior problems in children with diabetes: disentangling possible scoring confounds on the Child Behavior Checklist. Journal of Pediatric Psychology, 1998; 23: 179-185.
  • International Diabetes Federation. Diabetes in the Young: a Global Perspective, Prevalence of type 1 diabetes in children. http://www.idf.org/diabetesatlas/diabetes-young-globalperspective. Erişim tarihi: 01.04.2013.
  • Jafari P, Forouzandeh E, Bagheri Z, Karamizadeh Z ve Shalileh K. Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module. Health and Quality of Life Outcomes, 2011; 9: 104.
  • Johnson SB, Perwien AR: Insulin-dependent diabetes mellitus. In Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings. Koot HM, Wallander JL, Eds. East Sussex, UK, Brunner-Routledge, 2001: 373–401.
  • Júlíusson PB, Graue M, Wentzel-Larsen T, Søvik O.The impact of continuous subcutaneous insulin infusion on health-related quality of life in children and adolescents with type 1 diabetes. , 2006; 95(11):1481-7.
  • Kalyva F, Malakonaki E, Eiser C, Mamoulakis D. Healthrelated quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions. Pediatric Diabetes, 2011; 12(1): 34-40.
  • Laffel LMB, Connell A, Vangsness L ve ark. General quality of life in youth with type 1 diabetes. Diabetes Care, 2003; 26: 3067-3073.
  • McMahon SK, Airey FL, Marangou DA, McElwee KJ, Carne CL, Clarey AJ ve ark., Insulin pump therapy in children and adolescents: improvements in key parameters of diabetes management including quality of life. Diabetic Medicine, 2004;22:92-96.
  • Mutlu MÇ. Tip 1 diyabetli adolesanlara verilen karbonhidrat sayımı akran eğitiminin metabolik kontrolleri üzerine etkisi, Yayınlanmamış Yüksek Lisan tezi, Marmara Üniversitesi, 2009.
  • Nansel TR, Weisberg-Benchell J, Wysocki T, Laffel L, Anderson B. Quality of life in children with Type 1 diabetes: a comparison of general and diabetes-specific measures and support for a unitary diabetes quality-of-life construct, 2008; 25(11): 1316-23.
  • Özçelik EM. Tip 1 Diabetes Mellitusu olan adolesanlara verilen eğitimin metabolik kontrolleri ve öz bakımları üzerine etkisi, Yayınlanmamış Yüksek Lisans Tezi, 2001, İzmir.
  • Rubin RR, Peyrot M. Quality of life and diabetes. Diabetes/Metabolism Research and Reviews, 1999; 15: 205– 218.
  • Sawyer MG, Reynolds KE, Couper JJ ve ark. Health-related quality of life of children and adolescents with chronic illness-a two year prospective study. Quality of Life Research Journal, 2004; 13(7): 1309-1319.
  • Spilker B (1996). Quality of Life and Pharmacoeconomics in Clinical Trials [2nd ed]. Philadelphia: Lippincott-Raven. The WHOQOL Group (1996). What quality of life. World Health Forum, 17: 354-356.
  • Testa MA, Simonson DC. Assessment of quality life outcomes. The New England Journal of Medicine, 1996; 334 (13): 835-840.
  • Thompson SJ, Auslander WF ve White NH. Comparison of Single-Mother and Two-Parent Families on Metabolic Control of Children With Diabetes. Diabetes Care, 2001; 24(2):234-238.
  • Vanelli M, Chiarelli F, Chiari G, Tumini S. Relationship between metabolic control and quality of life in adolescents with type 1 diabetes. Report from two Italian centres for the management of diabetes in childhood. , 2003; 74(1) :13-7. Wagner VM, Müller-Godeffroy E, Von Sengbusch S, Häger S, Thyen U. Age metabolic control and type of insulin regime influences health- related quality of life in children and adolescents with type 1 diabetes mellitus. European Journal of Pediatrics, 2005; 16: 491-496.
Toplam 42 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Bölüm Research Article
Yazarlar

Candan Öztürk

Dijle Ayar

Yayımlanma Tarihi 1 Mayıs 2013
Yayımlandığı Sayı Yıl 2013 Cilt: 6 Sayı: 2

Kaynak Göster

APA Öztürk, C., & Ayar, D. (2013). Tip 1 Diabetes Mellitus’lu Çocuklarda Yaşam Kalitesi ve Önemi. Dokuz Eylül Üniversitesi Hemşirelik Fakültesi Elektronik Dergisi, 6(2), 99-101.

Dokuz Eylül Üniversitesi Hemşirelik Fakültesi Elektronik Dergisi ULAKBİM Türk Tıp Dizini, Türk Medline, Türkiye Atıf Dizini, Şubat 2021 tarihinden beri EBSCO Host ve 26 Ekim 2021 tarihinden itibaren DOAJ ve 18 Ocak 2022 tarihinden beri Index Copernicus tarafından indekslenmektedir.

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