The Care Burden and Difficulties of Parents Caring for a Child with Cancer

Yıl 2023, Cilt: 16 Sayı: 2, 234 - 246, 15.04.2023

Recep Kara , Merve Gümüş , Zümrüt Başbakkal

https://doi.org/10.46483/deuhfed.1057807

Cited By: 1

Öz

Worldwide, one in 700 children up to the age of 14, or about 160,000 children, will be diagnosed with a new cancer. Complications caused by pediatric cancer treatments and the disease affect the quality of life of the child and his or her family. Parents of children with cancer have many tasks to perform, such as monitoring the child’s symptoms, controlling and ensuring the child’s well-being, providing emotional support to the child, planning and managing care, and landscaping to ensure the child’s safety. For this reason, families struggle with physical, psychological, social, and eco nomic issues when caring for children with cancer. This review addresses the problems caregiving burdens of parents caring for children with cancer.

Anahtar Kelimeler

Childhood cancer, Parents, Care burden

Kanserli Çocuğa Bakım Veren Ebeveynlerin Yaşadıkları Bakım Yükü ve Zorluklar

Öz

Dünyada 14 yaşına kadar her 700 çocuktan birine, yaklaşık 160.000 çocuğa, yeni kanser tanısı konulmaktadır. Pediatrik kanser tedavilerinin ve hastalığın neden olduğu komplikasyonlar çocuk ve ailesinin yaşam kalitesini olumsuz yönde etkilemektedir. Kanserli çocuğa sahip ebeveynlerin, çocuğun semptomlarını izlemek, çocuğun kontrolünü ve rahatını sağlamak, duygusal açıdan çocuğa destek olmak, bakımını planlamak, yönetmek ve çocuğun güvenliğini sağlamak için çevre düzenlemesi yapmak gibi birçok sorumluluğu bulunmaktadır. Bu nedenle kanserli çocuğun bakımında aileler fiziksel, psikolojik, sosyal ve ekonomik sorunlar yaşamaktadır. Bu derlemede kanserli çocuklara bakım veren ebeveynlerin yaşadıkları sorunlar ve bakım yükleri ele alınmıştır.

Anahtar Kelimeler

Çocukluk çağı kanseri, Ebeveynler, Bakım yükü

Kaynakça

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