Children with COVID 19 and Special Needs

Yıl 2023, Cilt: 16 Sayı: 2, 213 - 222, 15.04.2023

Dilek Sönmez Sağlık , Duygu Gözen

https://doi.org/10.46483/deuhfed.1069889

Öz

With the COVID-19 pandemic, environmental changes, reduced access to social life and services, and disruption of routines have a negative impact on children with special needs and their families. The health care needs of children with special needs, which have not been adequately met in the past, have gradually increased during the pandemic period. During the pandemic, the existing discrimination and social exclusion of children with special needs continued, and this situation caused serious problems by causing disruptions in their development as well as in their use of treatment and health services. Children with special needs are individuals who need to be evaluated and strategic initiatives planned to reduce the limitations of the COVID-19 pandemic. In this direction, it is necessary to increase the measures for children with special needs and their families.

Anahtar Kelimeler

Child, Child With Special Needs, COVID-19

COVID 19 ve Özel Gereksinimi Olan Çocuklar

Öz

COVID-19 pandemisi ile birlikte çevresel değişiklikler, sosyal yaşam ve hizmetlere erişimin azalması, rutinlerin bozulması özel gereksinimi olan çocuklar ve aileleri üzerinde olumsuz bir etkiye neden olmaktadır. Özel gereksinimi olan çocukların geçmişte de yeterince karşılanamamış sağlık bakım gereksinimleri pandemi döneminde giderek artmıştır. Pandemi sırasında özel gereksinimi olan çocukların hali hazırda var olan ayrımcılık, sosyal dışlanma ile karşı karşıya kalma durumu devam etmiş ve bu durum gelişimlerinin yanı sıra tedavi ve sağlık hizmetlerinden yararlanmalarında da aksaklıklara neden olarak ciddi sorunlara yol açmıştır. Özel gereksinimi olan çocuklar, COVID-19 pandemisine bağlı ortaya çıkan sınırlılıkların azaltılması için değerlendirilmesi ve stratejik girişimlerin planlanması gereken bireylerdir. Bu doğrultuda özel gereksinimi olan çocuklar ve ailelerine yönelik önlemlerin arttırılması gerekmektedir.

Anahtar Kelimeler

Çocuk, Özel Gereksinimi Olan Çocuk, COVID-19

Kaynakça

• Aishworiya R, Kang QY. (2020). Including children with developmental disabilities in the equation during this covıd-19 pandemic. Journal of Autism and Developmental Disorders, 51, 2155–2158.
• Akoğlu G, Karaaslan T. (2020). COVID-19 ve izolasyon sürecinin çocuklar üzerindeki olası psikososyal etkileri. İzmir Kâtip Çelebi Üniversitesi Sağlık Bilimleri Fakültesi Dergisi, 5(2), 99-103.
• Alhuzimi T. (2021). Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia. Research in Developmental Disabilities, 108, 103822.
• Ameis HS, Lai M, Mulsant HB, Szatmari P. (2020). Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond. Molecular Autism, 11 (61), 2-9 https:// doi.org/10.1186/s13229-020-00365-y
• Amy H, Debbi H, Ashli M, Tal L, Christopher, R. (2020). Children with disabilities in the United States and the COVID-19 pandemic. Journal of Pediatric Rehabilitation Medicine, 13(3), 415- 424.
• Asbury K, Fox L, Deniz E, Kodu A, Toseeb U.(2021). How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families? Journal of Autism and Developmental Disorders, 51, 1772– 1780.
• Battistin T, Mercuriali E, Zanardo V, Gregori D, Lorenzoni G, Nasato Lve ark.(2021). Distance support and online intervention to blind and visually impaired children during the pandemic COVID-19. Research in Developmental Disabilities, 108,103816.
• Baweja R, Brown LS, Edwards ME, Murray JM. (2021). COVID-19 pandemic and ımpact on patients with autism spectrum disorder. Journal of Autism and Developmental Disordes, 51,2920- 2928.
• Bentenuto A, Mazzoni N, Giannotti M, Venuti P, Falco S. (2021). Psychological impact of Covid-19 pandemic in Italian families of children with neurodevelopmental disorders. Research in Developmental Disabilities, 109:103840.
• Brandenburga EJ, Holmanb KL, Apkonc DS, Houtrowd JA, Rinaldie R, Sholasf GM. (2020). School reopening during COVID-19 pandemic: Considering students with disabilities. Journal of Pediatric Rehabilitation Medicine, 13(3), 425–431 425 DOI 10.3233/PRM-200789.
• Bova MS, Basso M, Bianchi FM, Savare L, Ferrara G, Muro Eve ark. (2021). Impact of COVID-19 lockdown in children with neurological disorders in Italy. Disability and Health Journal, 14(2),101053.
• Cacioppo D, Bouvier S, Bailly R, Houx L, Lempereur M, Mensah-Gourmel J ve ark. (2020). Emerging health challenges for children with physical disabilities and their parents during the COVID-19 pandemic: The ECHO French survey Annals of Physical and Rehabilitation Medicine, 64(3),101429.
• Cahapay BM.(2021). Ushering children with disabilities in the ‘new normal’ post-COVID-19 period: collective actions in the Philippines. Disability&Society, 36(1),145-150.
• Camdden C, Silva M. (2021). Pediatric teleheath: opportunities created by the covıd-19 and suggestions to sustain ıts use to support families of children with disabilities Physıcal&Occupatıonal Therapy In Pedıatrıcs, 41(1), 1–17.
• Cankurtaran D, Tezel N, Yiğit-Yıldız S, Çelik G, Akyüz- Ünlü E. (2021). Evaluation of the effects of the COVID-19 pandemic on children with cerebral palsy, caregivers’ quality of life, and caregivers’ fear of COVID-19 with telemedicine. Irish Journal of Medical Science, 190,1473- 1480.
• Chen SQ, Chen SD, L XK, Ren J. (2020). Mental health of parents of special needs children in china during the covıd-19 pandemic. Int. J. Environ. Res. Public Health, (17): 9519; doi:10.3390/ ijerph17249519.
• Choi RK, Jeffers SK, Logsdon CM.(2020). Nursing and the novel coronavirus: Risks and responsibilities in a global outbreak. J Adv Nurs, 76, 1486–1487.
• Çetin C, Karaaslan A, Akın Y. (2020). Çocuk hastalarda COVID-19 epidemiyolojisi, klinik özellikler ve tanı. South. Clin. Ist. Euras, 31, 48- 51.
• Eapen V, Hiscock H, Williams K. (2020). Adaptive innovations to provide services to children with developmental disabilities during the COVID‐19 pandemic. Journal of Paediatrics and Child Health, 57, 9–11.
• Fegert JM, Vitiello B, Plener PL, ClemensV. (2020). Challenges and burden of the coronavirus 2019 (COVID‐19) pandemic for child and adolescent mental health: A narrative review to highlight clinical and research needs in the acute phase and the long return to normality. Child Adolesc Psychiatry Ment. Health, 14,1–11.
• Fontanesi L, Marchetti D, Mazza C, DiGiandomenico S, Roma P. & Verrocchio MC. (2020). The effect of the COVID‐19 lockdown on parents: a call to adopt urgent measures. Psychological Trauma: Theory, Research, Practice, and Policy, 12, 79– 81.
• Kara E. (2020). KOVİD-19 pandemisindeki dezavantajlı gruplar ve sosyal hizmet işgücünün işlevi. Türkiye Sosyal Hizmet Araştırmaları Dergisi, 4(1), 2602-339.
• Kim M, Yi J, Sang M, Hwang S, Sung J. (2021). A qualitative study on parents’ concerns about adult children with intellectual disabilities amid the COVID-19 pandemic in South Korea. JARID, 34(4),1145-1155.
• Landes DS, Turk AM, Wong A. (2021). COVID-19 outcomes among people with intellectual and developmental disability in California: The importance of type of residence and skilled nursing care needs. Disability and Health Journal, 14(2), 1010512.
• Majoko T, Dudu A. (2020). Parents’ strategies for home educating their children with Autism Spectrum Disorder during the COVID-19 period in Zimbabwe. International Journal of Developmental Disabilities, 1-5 DOI 10.1080/20473869.2020.1803025.
• Masi A, Diaz MA, Tully L, Azim IS, Woolfenden S, Efron D ve ark.(2021). Impact of the COVID‐19 pandemic on thewell‐being of children with neurodevelopmental disabilities and their parents. Journal of Paediatrics and Child Health, 57, 631–636.
• Mot LA, Fortin-Bedard N, Lettre J, Bussieres EV, Best K.(2020). Impact of COVID-19 on people with physical disabilities: A rapid review. Disability and Health Journal, 14(1): 101014.
• Naami A, Mfoafo-M’Carthy M. (2020). COVID-19: vulnerabılıtıes of persons wıth dısabılıtıes ınghana. African Journal of Social Work, 10(3), 9-16.
• Navas P, Amor MA, Crespo M, Wolowiec Z, Verdugo AM. (2020). Supports for people with intellectual and developmental disabilities during the COVID-19 pandemic from their own perspective. Research in Developmental Disabilities, 108, 103813 https://doi. org/10.1016/j.ridd.2020.103813.
• Neece C, Mclntyre LL, Fenning R. (2020). Examining the impact of COVID-19 in ethnically diverse families with young children with intellectual and developmental disabilities. journal of Intellectual Disability Researc, 64, 739- 749.
• Patel K. (2020). Mental health implications of COVID-19 on children with disabilities. Asian J Psychiatr, 54, 102273 doi: 10.1016/j. ajp.2020.102273.
• Provenzi L, Grumi S, Borgatti R. (2020). Alone with the kids: tele-medicine for children with special health care needs during covıd-19 emergency. Front Psychol, 11: 2193 doi: 10.3389/fpsyg.2020.02193.
• Purba AK.(2020). How should the role of the nurse change in response to Covid-19? Nursing Times, 116(6), 25-28.
• Tanrıverdi G, Gürsoy Y, Özsezer-Kaymak G. (2020). Halk sağlığı hemşireliği yaklaşımıyla covıd-19 pandemisi. Halk Sağlığı Hemşireliği Dergisi, 2(2),126-142.
• Tassé MJ, Wagner JB, Kim, M. (2020).Using technology and remote support services to promote in dependent living of adults with intellectual disability and related developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 33(3), 640– 647.
• Theis N, Campbell N, Leeuw J, Owen M, Schenke K. (2021). The effects of COVID-19 restrictions on physical activity and mental health of children and young adults with physical and/ or intellectual disabilities. Disability and Health Journal, 14(3),101064.
• Yasuhara J, Kuno T, Takagi H, Sumitomo N.(2020). Clinical characteristics of COVID‐19 in children: A systematic review. Pediatric Pulmonology, 55(10), 2565–2575.
• Yip K. (2020). Ageing parents of children with intellectual disabilities during the COVID-19 epidemic in Hong Kong. Public Health in Practice, 1- 100053.
• World Health Organization (WHO) 2011 World Report On Dısabılıty Erişim linki:https://www. who.int/disabilities/world_report/2011/report. pdf. Erişim Tarihi: 08.05.2021.
• World Health Organization (WHO) 2020 10 Facts on disability Erişim linki: https://www. who.int/news-room/facts-in-pictures/detail/ disabilities. Erişim Tarihi: 08.05.2021.