PHYSICAL CARE NEEDS OF THE PEDIATRIC ONCOLOGY PATIENTS AT HOME

Öz

Continuity of care, discharge planning, and home care are the main topics for quality of health care in the developed countries. Receiving the diagnosis of cancer and being discharged from the hospital are known to be stressful situations for families. The families of children with cancer are anticipated to be a decision-maker and primary caregiver in this process due to complex cancer treatment threatens their childrens lives, their lives are hospital-centered, and they are in the communication with many health care workers. In addition to this, families are responsible for close monitoring of their child’s health condition. They have educational needs in the physical care areas such as organizing patients diet, symptom and medication management, pain management, mouth care and catheter care. In our country discharge planning is not well organized in hospitals, and is not coordinated by physician or nurse and their needs are meet by families. Therefore it is important to train families on home care needs of their children from hospital admissions to discharge. Pediatric oncology team take responsibility for education and counselling approach to children with cancer and their families. The aim of this review is to highlight physical care needs of children with cancer and their families at home, to ensure in use for discharge planning program by clinical nurses

Anahtar Kelimeler

• Physical care needs,cancer,children,nursing

PEDİATRİK ONKOLOJİ HASTALARININ EVDE FİZİKSEL BAKIM GEREKSİNİMLERİ

Öz

Gelişmiş ülkelerde kaliteli sağlık bakımı için “bakımın sürekliliği, taburculuk planlama ve evde sağlık bakımının” ana konular olduğu üzerinde durulmaktadır. Kanser tanısı alarak hastaneden taburcu olmanın aileler için çok stresli bir durum olduğu bilinmektedir. Bu süreçte çocuklarının yaşamını tehdit eden karmaşık kanser tedavileri, yaşamlarının hastane merkezli olması ve birçok sağlık çalışanıyla iletişim kurmaları nedeniyle ailelerin karar verici ve primer bakım veren olarak bakıma katılmaları beklenmektedir. Buna ek olarak ailelerin evde çocuklarının sağlığını ve tedavi şeklini yakından izleme sorumlulukları bulunmaktadır. Ailelerin hastanın diyetini/beslenmesini düzenleme, semptom ve ilaç yönetimi, ağrı yönetimi, ağız bakımı ve kateter bakımı gibi fiziksel bakım alanlarında bilgi gereksinimleri bulunmaktadır. Ülkemiz sağlık sisteminde pediatrik onkoloji hastalarını kapsayan organize ve sistemli hizmet veren evde bakım kurumları yer almamakta, gereksinimler aileleri tarafından karşılanmaktadır. Bu nedenle hastaneye ilk yatıştan başlamak üzere taburculuğa kadar çocuk ve ailenin evde bakım gereksinimlerine yönelik konularda eğitilmesi son derece önem kazanmaktadır. Bu derleme kanserli çocuk ve ailesinin evde bakım gereksinimlerine dikkat çekmek, klinik alanda çalışan hemşireler tarafından bakım verenlere/ailelere yönelik düzenlenecek taburculuk planlama programlarında kullanılmak üzere bir kaynak olması amacıyla yazılmıştır

Anahtar Kelimeler

• Fiziksel bakım gereksinimi,kanser,çocuk,hemşirelik

Kaynakça

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