Araştırma Makalesi

The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial

Cilt: 32 Sayı: 4 31 Ağustos 2022
PDF İndir
TR EN

The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial

Öz

Aim: To investigate the effects of nursing interventions based on Mishel’s Uncertainty in Illness Theory (MUIT) on uncertainty, hopelessness, coping and adaptation for care givers of children diagnosed with cancer. Materials and Methods: The study was randomized controlled experimental design study, which had repeated measures (pretest-posttest-follow up) and parallel group (intervention-control), it included measures of uncertainty (PPUS), hopelessness (BHS), coping and adaptation (CAPS). The study was conducted in January-July 2019 with the caregivers of 46 children diagnosed with cancer who followed in paediatric oncology-haematology clinics. Intervention Group (IG) was given 6 modules education and consultancy according to protocol that was developed based on theory. The CONSORT guideline was performed in the study. Results: PPUS post-test mean score of IG was lower than CG (p<0.05), and perceptions of uncertainty decreased significantly over time depending on the caregivers being in the IG and CG (p<0.05). It was determined that BHS post-test and follow-up mean scores of IG was lower (less hopelessness perception) than the CG (p<0.05). CAPS’ post-test and the follow-up mean scores were similar in IG and CG. Also, Group*time effect on hopelessness, coping and adaptation perception was statistically similar, too. Conclusion: Nursing interventions based on MUIT can positively support caregivers' uncertainty, hopelessness and coping adaptations.

Anahtar Kelimeler

Cancer, Caregiver, Child, Mishel’s Uncertainty in Illness Theory, Nursing intervention

Destekleyen Kurum

Faculty Member Training Program (OYP) at Selçuk University

Proje Numarası

Project number: 2015-ÖYP-018

Teşekkür

This study would not have been possible without the support from the Pediatric Oncology and Hematology Clinics and outpatient clinics of hospitals, and caregivers of children diagnosed with cancer in the chosen hospitals. We particularly thank the participants.

Kaynakça

  1. 1. Cypress B. Understanding uncertainty among critically ill patients in the Intensive Care Unit using Mishel’s Theory of Uncertainty of Illness. Dimens Crit Care Nurs 2016; 35(1): 42-49. https://doi.org/10.1097/DCC.0000000000000152.
  2. 2. Perez MN, Traino KA, Bakula DM, et al. Barriers to care in pediatric cancer: The role of illness uncertainty in relation to parent psychological distress. Psycho-Oncol 2020; 29(2): 304-10. https://doi.10.1002/pon.5248.
  3. 3. Bailey DE, Zhang Y. Merle Mishel: Uncertainty in Illness Theory. In: Alligood MR, ed. Nursing Theories and Their Works. 10th ed. Elsevier, 2021; 445-60.
  4. 4. Szulczewski L, Mullins LL, Bidwell SL, Eddington AR, Pai AL. Meta-Analysis: Caregiver and youth uncertainty in pediatric chronic illness. J Pediatr Psychol 2017; 42(4): 395-421. https://doi.10.1093/jpepsy/jsw097.
  5. 5. Eche IJ, Aronowitz T, Shi L, McCabe MA. Parental uncertainty: Parents’ perceptions of health-related quality of life in newly diagnosed children with cancer. Clin J Oncol Nurs 2019; 23(6): 609-18. https://doi.10.1188/19.CJON.609-618.
  6. 6. Guan T, Qan’ir Y, Song L. Systematic review of illness uncertainty management interventions for cancer patients and their family caregivers. Support Care Cancer 2021; 29(8): 4623-40. https://doi.org/10.1007/s00520-020-05931-x.
  7. 7. Eche IJ, Aronowitz T. Factors that influence parental uncertainty and health-related quality of life in children with cancer: A framework. Nurs Sci Q 2018; 31(4): 362-8. https://doi.10.1177/0894318418792896.
  8. 8. Karlsson M, Friberg F, Wallengren C, Öhlén J. Meanings of existential uncertainty and certainty for people diagnosed with cancer and receiving palliative treatment: A life-world phenomenological study. BMC Palliat Care 2014; 13(1): 28-36. http://www.biomedcentral.com/1472-684X/13/28.
  9. 9. He S, You L-M, Zheng J, Bi Y-l. Uncertainty and personal growth through positive coping strategies among Chinese parents of children with acute leukemia. Cancer Nurs 2016; 39(3):205-12. https://doi.10.1097/NCC.0000000000000279.
  10. 10. Bailey DE, Hendrix CC, Steinhauser KE, et al. Randomized trial of an uncertainty self-management telephone intervention for patients awaiting liver transplant. PEC 2017; 100(3): 509-17. http://dx.doi.org/10.1016/j.pec.2016.10.017.

Kaynak Göster

APA
Özkan, S., & Taş Arslan, F. (2022). The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial. Genel Tıp Dergisi, 32(4), 439-446. https://doi.org/10.54005/geneltip.1128563
AMA
1.Özkan S, Taş Arslan F. The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial. Genel Tıp Derg. 2022;32(4):439-446. doi:10.54005/geneltip.1128563
Chicago
Özkan, Sevil, ve Fatma Taş Arslan. 2022. “The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial”. Genel Tıp Dergisi 32 (4): 439-46. https://doi.org/10.54005/geneltip.1128563.
EndNote
Özkan S, Taş Arslan F (01 Ağustos 2022) The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial. Genel Tıp Dergisi 32 4 439–446.
IEEE
[1]S. Özkan ve F. Taş Arslan, “The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial”, Genel Tıp Derg, c. 32, sy 4, ss. 439–446, Ağu. 2022, doi: 10.54005/geneltip.1128563.
ISNAD
Özkan, Sevil - Taş Arslan, Fatma. “The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial”. Genel Tıp Dergisi 32/4 (01 Ağustos 2022): 439-446. https://doi.org/10.54005/geneltip.1128563.
JAMA
1.Özkan S, Taş Arslan F. The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial. Genel Tıp Derg. 2022;32:439–446.
MLA
Özkan, Sevil, ve Fatma Taş Arslan. “The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial”. Genel Tıp Dergisi, c. 32, sy 4, Ağustos 2022, ss. 439-46, doi:10.54005/geneltip.1128563.
Vancouver
1.Sevil Özkan, Fatma Taş Arslan. The Impact of Interventions Based on Mishel’s Uncertainty in Illness Theory on Caregivers of Children Diagnosed with Cancer: Randomized Controlled Trial. Genel Tıp Derg. 01 Ağustos 2022;32(4):439-46. doi:10.54005/geneltip.1128563