Çölyak Hastası Çocukların Hastalıklarına Yönelik Tutumları ve Etkileyen Faktörler

Yıl 2022, , 1466 - 1473, 22.12.2022

Fetih Bişgin , Selen Özakar Akça , Ahu Pınar Turan

https://doi.org/10.37989/gumussagbil.976122

Cited By: 1

Öz

Bu çalışma ile 9-17 yaş aralığında çölyak hastası çocukların hastalıklarına yönelik tutumlarının belirlenmesi amaçlanmıştır. Bu araştırma, tanımlayıcı ve kesitsel olup, İç Anadolu Bölgesinde bir ilde bulunan bir Eğitim ve Araştırma Hastanesi Pediatrik Gastroenteroloji Polikliniğinde yapılmıştır. Araştırma, 01 Mart 2019-01 Mart 2020 tarihleri arasında gastroenteroloji polikliniğine başvuran, en az altı aydır çölyak hastası olan, kendisi ve ebeveyni çalışmaya katılmayı kabul eden 54 çocuk ile gerçekleştirilmiştir. Araştırma verileri “Tanıtıcı Bilgi Formu” ve “Çocuğun Kendi Hastalığına Yönelik Tutumu Ölçeği” (ÇKHYTÖ) kullanılarak toplanmıştır. Araştırma verileri uygun istatistiksel analizlerle değerlendirilmiştir. Araştırmaya katılan çölyak hastası çocukların yaş ortalaması 13,09±2,68’dir. Çocukların ailelerinin %55,6’sının glutensiz gıdalara ulaşmada/hazırlamada zorlandığı belirlenmiş olup, ÇKHYTÖ puan ortalaması 2,88±0,71’dir. Araştırmadaki çocukların tanı alma zamanları, aile desteğini yeterli görme, glutensiz diyete uyma ve glutensiz diyeti uygulamakta zorlanma durumları ile ÇKHYTÖ puan ortalamaları arasındaki fark anlamlıdır (p<0,05). Araştırmada, çölyak hastası olan çocuklar kendi hastalıklarına yönelik olumsuz tutum içindedirler. Çölyak hastası çocukların hastalıklarına ilişkin olumlu tutum edinmeleri ve psikososyal destek alarak farkındalık kazanmaları için pediatri hemşirelerinin eğitilmeleri uygun olacaktır.

Anahtar Kelimeler

Çocuk, Çölyak hastalığı, Hemşire, Tutum

Destekleyen Kurum

Yok

Proje Numarası

Yok

Attitude of Children With Celliac Disease and The Factors Affecting It

Öz

With this study, it is aimed to determine the attitudes of children aged 9-17 towards their condition, celiac disease.This descriptive and cross-sectional study was conducted in a Pediatric Gastroenterology Policlinic of a Training and Research Hospital in a province in the Central Anatolia Region. The study was carried out with 54 children who applied to the gastroenterology clinic between 01 March 2019-01 March 2020, who have had celiac disease for at least six months and whose parents agreed to participate in the study. The research data were collected by using the "Introductory Information Form" and the "Child Attitude Towards Ilness Scale" (CATIS). Research data evaluated with appropriate statistical analyzes.The average age of children with celiac disease who participated in the study was 13.09±2.68. It was determined that 55,6% of the families of the children had difficulties in reaching/preparing gluten-free foods, and the mean score of the CATIS is 2.88±0,71. The difference between the mean scores of the CATIS was found significant that varies based on, the time of diagnosis, adequate family support, compliance with gluten-free diet and difficulty in implementing gluten-free diet (p<0.05).Children diagnosed with Celiac disease have a negative attitude towards their own diseases. It would be appropriate to train pediatric nurses so that children with celiac disease acquire a positive attitude towards their disease and gain awareness by receiving psychosocial support.

Anahtar Kelimeler

Child, Celiac disease, Nurse, Attitude

Proje Numarası

Yok

Kaynakça

• 1. Gallegos, C. and Merkel, R. (2019). “Current Evidence in the Diagnosis and Treatment of Children With Celiac Disease”. Gastroenterology Nursing, 42 (1), 41-48.
• 2. Karademir, E. ve Yalçın, E. (2017). “Toksik Gluten Peptitlerin Detoksifikasyonunda Yeni Yöntemler ve Glüten Toksisitesinin Belirlenmesi”. Gıda, 42 (2), 177-185
• 3. Bingham, S.M. and Bates, M.D. (2020). “Pediatric Celiac Disease: A Review for Non-Gastroenterologists”. Current Problems in Pediatric and Adolescent Health Care, 100786.
• 4. Caio, G, Volta, U, Sapone, A, Leffler, D.A, De Giorgio, R, Catassi, C. and Fasano, A. (2019). “Celiac Disease: A Comprehensive Current Review”. BMC Medicine, 17 (1), 1-20.
• 5. Gujral, N, Freeman, H.J. and Thomson, A.B. (2012). “Celiac Disease: Prevalence, Diagnosis, Pathogenesis and Treatment. World Journal of Gastroenterology”, 18 (42), 6036-6059.
• 6. Emiroğlu, H.H, Emiroğlu, M, Akbulut, H, Eryılmaz, A, Bayram, R.O, Yüksel, A. ve Ağır, M.A. (2017). “Çölyak Hastalığı Tanısı ile İzlenen Çocuklarda Klinik Özellikler: Tek Merkez Sonuçları”. Çağdaş Tıp Dergisi, 7 (4), 333-339.
• 7. Kivelä, L. and Kurppa, K. (2018). “Screening for Celiac Disease In Children”. Acta Paediatrica, 107 (11), 1879-1887.
• 8. Lionetti, E, Antonucci, N, Marinelli, M, Bartolomei, B, Franceschini, E, Gatti, S. and Catassi, C. (2020). “Nutritional Status, Dietary Intake, and Adherence to The Mediterranean Diet of Children With Celiac Disease on A Gluten-Free Diet: A Case-Control Prospective Study”. Nutrients, 12 (1), 143.
• 9. Ramsey, R.R, Ryan, J.L, Fedele, D.A, Mullins, L.L, Chaney, J.M. and Wagner, J.L. (2016). “Child Attitude Toward Illness Scale (CATIS): A Systematic Review of The Literature”. Epilepsy & Behavior, 59, 64-72.
• 10. Sarkhy, A, El Mouzan, M.I, Saeed, E, Alanazi, A, Alghamdi, S, Anil, S. and Assiri, A. (2016). “Socioeconomic Impacts Of Gluten-Free Diet Among Saudi Children with Celiac Disease”. Pediatric Gastroenterology, Hepatology & Nutrition, 19 (3), 162-167.
• 11. Heath, J, Norman, P, Christian, M. and Watson, A. (2017). “Measurement of Quality of Life and Attitudes Towards İllness in Children and Young People with Chronic Kidney Disease”. Quality of Life Research, 26 (9), 2409-2419.
• 12. Ramsey, R.R, Bonner, M.S, Ryan, J.L, Mullins, L.L. and Chaney, J.M. (2013). “A Prospective Examination of Attitudes Toward İllness and Depressive Symptoms in Youth with Juvenile Rheumatic Diseases”. Journal of Developmental and Physical Disabilities, 25 (2), 171-180.
• 13. Blackwell, C.K, Elliott, A.J, Ganiban, J, Herbstman, J, Hunt, K, Forrest, C.B. and Camargo, C.A. (2019). “General Health and Life Satisfaction in Children with Chronic Illness”. Pediatrics, 143 (6), 1-10.
• 14. Bekir, H. (2020). “Early Child Development”. In: Handbook of Research on Prenatal, Postnatal, and Early Childhood Development (181-196). IGI Global.
• 15. Kruglanski, A.W, Jasko, K, Chernikova, M, Milyavsky, M, Babush, M, Baldner, C. and Pierro, A. (2015). “The Rocky Road From Attitudes to Behaviors: Charting The Goal Systemic Course of Actions”. Psychological Review, 122 (4), 598-620.
• 16. McElfresh, P.B. and Merck, T.T. (2018). “Family-Centered Care of The Child with Special Needs”. In: M.J. Hockenberry ve D. Wilson (Eds.). Wong's Nursing Care of Infants and Children (761-824). Netherlands: Elsevier Health Sciences.
• 17. Chishty, S, Singh, M. and Singh, N. (2016). “Knowledge and Practices Among Parents of Children Suffering from Celiac Disease”. International Journal of Food, Agriculture and Veterinary Sciences, 6 (2), 31-38.
• 18. Austin, J.K. and Huberty, T.J. (1993). “Development of the Child Attitude Toward Illness Scale”. Journal of Pediatric Psychology, 18 (4), 467-480.
• 19. Austin, J.K, Dunn, D.W, Perkins, S.M. and Shen, J. (2006). “Youth With Epilepsy: Development of A Model of Children's Attitudes Toward Their Condition”. Children's Health Care, 35 (2), 123-140.
• 20. Ersun, A. ve Bolışık, B. (2012). “Çocuğun Kendi Hastalığına Yönelik Tutumu Ölçeği Türkçe Formu Geçerlik ve Güvenirliği”. Ege Üniversitesi Hemşirelik Fakültesi Dergisi, 28 (1), 37-45.
• 21. Asmelash, D, Abdu, N, Tefera, S, Baynes, H.W. and Derbew, C. (2019). “Knowledge, Attitude, and Practice Towards Glycemic Control and Its Associated Factors Among Diabetes Mellitus Patients”. Journal of Diabetes Research, 2019, 1-9.
• 22. Ryan, J.L, Ramsey, R.R, Fedele, D.A, Wagner, J.L, Smith, G. and Chaney, J.M. (2012). “Exploration of Age and Sex Differences in Depressive Symptoms and Illness Attitudes for Youth With Epilepsy and Juvenile Rheumatic Disease”. Journal of Child Neurology, 27 (8), 1004-1010.
• 23. Aljebreen, A.M, Almadi, M.A, Alhammad, A. and Al Faleh, F.Z. (2013). “Seroprevalence of Celiac Disease Among Healthy Adolescents in Saudi Arabia”. World Journal of Gastroenterology, 19 (15), 2374.
• 24. Popp, A. and Mäki, M. (2019). “Changing Pattern of Childhood Celiac Disease Epidemiology: Contributing Factors”. Frontiers in Pediatrics, 7 (357), 1-16.
• 25. Demirçeken, F.G, Kansu, A, Kuloğlu, Z, Girgin, N, Güriz, H. and Ensari, A. (2008). “Human Tissue Transglutaminase Antibody Screening By Immunochromatographic Line Immunoassay for Early Diagnosis of Celiac Disease in Turkish Children”. The Turkish Journal of Gastroenterology, 19, 14-21.
• 26. Heath, J, Norman, P, Christian, M. and Watson, A. (2017). “Measurement of Quality of Life and Attitudes Towards Illness in Children and Young People with Chronic Kidney Disease”. Quality of Life Research, 26 (9), 2409-2419.
• 27. Fitzgerald, M.P, Hennigan, K, O’Gorman, C.S. and McCarron, L. (2019). “Obesity, Diet and Lifestyle in 9-Year-Old Children with Parentally Reported Chronic Diseases: Findings From The Growing Up in Ireland Longitudinal Child Cohort Study”. Irish Journal of Medical Science, 188 (1), 29-34.
• 28. Kahraman, A. ve Bolışık, B. (2014). “Epilepsili Çocukların Hastalıklarına Yönelik Tutumlarının İncelenmesi”. Akademik Spor Sağlık ve Tıp Bilimleri Dergisi, 10 (4), 53-66.
• 29. Makovicky, P, Makovicky, P, Caja, F, Rimarova, K, Samasca, G. and Vannucci, L. (2020). “Celiac Disease and Gluten-Free Diet: Past, Present, and Future”. Gastroenterology and Hepatology from Bed to Bench, 13 (1), 1.
• 30. Bathrellou, E, Kontogianni, M.D. and Panagiotakos, D.B. (2018). “Celiac Disease and Non-Celiac Gluten or Wheat Sensitivity and Health in Later Life: A Review”. Maturitas, 112, 29-33.
• 31. Niland, B. and Cash, B.D. (2018). “Health Benefits and Adverse Effects of A Gluten-Free Diet in Non–Celiac Disease Patients”. Gastroenterology & Hepatology, 14 (2), 82-91.
• 32. Czaja-Bulsa, G. and Bulsa, M. (2018). “Adherence to Gluten-Free Diet in Children With Celiac Disease”. Nutrients, 10 (1424), 1-9.
• 33. Hall, N.J, Rubin, G. and Charnock, A. (2009). “Systematic Review: Adherence to A Gluten-Free Diet in Adult Patients with Coeliac Disease”. Alimentary Pharmacology and Therapeutics, 30 (4), 315-330.
• 34. MacCulloch, K. and Rashid, M. (2014). “Factors Affecting Adherence to A Gluten-Free Diet in Children with Celiac Disease”. Paediatr Child Health, 19 (6), 305-309.
• 35. Atar, N. (2018). “T.C. Tarım ve Orman Bakanlığı Gıda ve Kontrol Genel Müdürlüğü: Meclis Araştırma Komisyonu Çölyak Raporu”. Erişim adresi: https://www.tarimorman.gov.tr/GKGM/Duyuru/334/Meclis-Arastirma-Komisyonu-Colyak-Raporu (Erişim tarihi: 13.07.2021).
• 36. Meclis Araştırması Komisyonu Raporu, (2018). “Çölyak Hastalığının Teşhis Aşamasının, Sebeplerinin, Sonuçlarının ve Bu Hastalığa Maruz Kalanlara Sağlanabilecek Yardımların Araştırılarak Alınması Gereken Önlemlerin Belirlenmesine İlişkin Önerge”. Erişim adresi: https://www.tbmm.gov.tr/sirasayi/donem26/yil01/ss554.pdf. (Erişim tarihi: 13.07.2021).