Nursing Care in Pediatric Patients with Cystic Fibrosis: Pender's Health Promotion Model

Öz

Cystic fibrosis is a genetic disease characterized by dysfunction of the exocrine glands, affecting the respiratory, digestive and reproductive systems. Children with cystic fibrosis face numerous health problems and need comprehensive management to improve their quality of life. Application of the Health Promotion Model to develop pediatric nursing care plans for children with cystic fibrosis can provide a holistic and child-centered care approach. Pediatric nurses are the primary members of the team in providing and maintaining care, and the main purpose of care is to facilitate the adaptation of the child and family to the disease and to help ensure maximum quality of life. Implementation of these services within the framework of the Health Promotion Model is an important tool to increase children's autonomy and disease self-management. In this review, it is aimed to model the Health Promotion Model to develop healthy lifestyle behaviors in children with cystic fibrosis. In addition, future research should focus on further validating the model's applicability in children with cystic fibrosis and creating innovative strategies to improve health behaviors and quality of life in this group.

Anahtar Kelimeler

• Child
• Cystic Fibrosis
• Health Promotion Model
• Nursing

Kistik Fibrozisli Çocuk Hastalarda Hemşirelik Bakımı: Pender’in Sağlığı Geliştirme Modeli

Öz

Kistik fibrozis solunum, sindirim ve üreme sistemini etkileyen, ekzokrin bezlerin işlev bozukluğu ile karakterize genetik bir hastalıktır. Kistik fibrozisli çocuklar çok sayıda sağlık sorunuyla karşı karşıyadır ve yaşam kalitelerini iyileştirmek için kapsamlı yönetime ihtiyaç duyarlar. Kistik fibrozisli çocuklara yönelik pediatrik hemşirelik bakım planları geliştirmek için Sağlığı Geliştirme Modelinin uygulanması, bütüncül ve çocuk merkezli bir bakım yaklaşımı sağlayabilir. Pediatri hemşireleri bakımı sağlama ve sürdürmede ekibin primer üyesi konumundadırlar ve bakımda temel amaç ise çocuğun ve ailenin hastalık ile uyumunu kolaylaştırmak, maksimum yaşam kalitesini sağlamaya yardım etmektir. Bu hizmetlerin Sağlığı Geliştirme Modeli çerçevesinde uygulanması çocukların özerkliğini ve hastalık öz yönetimini artıracak önemli bir araçtır. Bu derlemede, Sağlığı Geliştirme Modelinin kistik fibrozisli çocuklarda sağlıklı yaşam biçimi davranışlar geliştirmesinin modellemesi amaçlanmıştır. Ek olarak, gelecekteki araştırmalar, modelin kistik fibrozisli çocuklarda uygulanabilirliğini daha fazla doğrulamaya ve bu grup da iyi sağlık davranışlarını ve yaşam kalitesini artırmak için yenilikçi stratejiler oluşturmaya odaklanmalıdır.

Anahtar Kelimeler

• Çocuk
• Hemşirelik
• Kistik Fibrozis
• Sağlığı Geliştirme Modeli

Kaynakça

1. Akkurt Yalçıntürk A. (2018). Psikiyatri hastalarında fiziksel egzersizin desteklenmesi: Pender’in Sağlığı Geliştirme Modeli. Hemşirelik Bilimi Dergisi, 1(1), 33-37.
2. Alparslan Ö, Demir M. (2015). Kistik Fibrozis ve hemşirelik bakımı. Turkiye Klinikleri J Pediatr Nurs-Special Topics, 1(3), 40-45.
3. Aydenk Köseoğlu SZ, Kaynar K, Şenocak HK. (2022). Kistik Fibrozisli çocuk hastalarda diyetsel yaklaşım. Haliç Üniversitesi Sağlık Bilimleri Dergisi, 5(3), 87-96.
4. Bell SC, Mall MA, Gutierrez H, Macek M, Madge S, Davies JC, et al. (2020). The future of Cystic Fibrosis care: A global perspective. The Lancet. Respiratory Medicine, 8(1), 65-124.
5. Blakeslee SB, Vieler K, Horak I, Stritter W, Seifert G. (2023). Planting seeds for the future: Scoping review of child health promotion apps for parents. JMIR Mhealth Uhealth. 11:e39929.
6. Burgel PR, Burnet E, Regard L, Martin C. (2023). The changing epidemiology of cystic fibrosis: The implications for adult care. Chest, 163(1), 89-99.
7. Byra S, Zubrzycka R, Wójtowicz P. (2021). Positive orientation and posttraumatic growth in mothers of children with Cystic Fibrosis-mediating role of coping strategies. Journal of Pediatric Nursing, 57, e1-e8.
8. Cho DY, Grayson JW, Woodworth BA. (2023). Unified airway-Cystic Fibrosis. Otolaryngologic Clinics of North America, 56(1), 125-136.

9. Cystic Fibrosis Foundation. Cystic Fibrosis Foundation Patient Registry: 2017 annual data report. (2018). Bethesda, (Erişim tarihi: 9.06.2023). https://www.cff.org/Research/Researcher-Resources/Patient-Registry/2017-Patient-Registry-Annual-Data-Report.pdf
10. Cystic Fibrosis Trust. UK Cystic Fibrosis registry annual data report. (2018). Median Predicted Survival Age. (Erişim tarihi: 9.06.2023). https://www.cysticfibrosis.org.uk/the-work-we-do/ukcf-registry/reporting-and-resources
11. Dağhan Ş, Çobadak Çalt A, Konal E. (2022). Pender'in Sağlığı Geliştirme modeline dayalı hemşirelik araştırmaları: Sistematik derleme. İzmir Katip Çelebi Üniversitesi Sağlık Bilimleri Fakültesi Dergisi, 7(1), 87-97.
12. Darbellay C, Magnin S, Haidar Ahmad A, Wolff A, Serratrice J, Coen M. (2022). La “communication therapeutique” en medecine interne (Healing communication: Therapeutic communication in internal medicine. Revue Medicale Suisse, 18(801), 2026-2029.
13. Demirdağ SN. (2022). Pender’in Sağlığı Geliştirme Modeline göre tip 1 diyabet tanılı çocuk ve ailenin değerlendirilmesi: Kavram haritası. Güncel Hemşirelik Araştırmaları Dergisi, 2(2), 95-103.
14. Dinç G. (2018). Kistik Fibrozisli çocukların annelerinde psikiyatrik belirti, ebeveynlik tutumları ve baş etme becerileri. Turkish Journal of Pediatric Disease, 12(4), 224-231.
15. Disabato JA, Mannino JE, Betz CL. (2019). Pediatric nurses' role in health care transition planning: National survey findings and practice implications. Journal of Pediatric Nursing, 49, 60-66.
16. Dönmez H, Taş Arslan F. (2019). Kistik Fibrozisli çocuğun bakımda hemşiresinin rolü. Pediatric Practice and Research, 7(Ek), 57-61.
17. Elseifi OS, Abdelrahman DM, Mortada EM. (2020). Effect of a nutritional education intervention on breakfast consumption among preparatory school students in Egypt. International Journal of Public Health, 65(6), 893-903.
18. Fundoiano-Hershcovitz Y, Breuer Asher I, Ritholz MD, Feniger E, Manejwala O, Goldstein P. (2023). Specifying the efficacy of digital therapeutic tools for depression and anxiety: Retrospective, 2-cohort, real-world analysis. Journal of Medical Internet Research, 25, e47350.
19. Gathercole K. (2019). Managing Cystic Fibrosis alongside children’s schooling: Family, nurse and teacher perspectives. Journal of Child Health Care, 23(3), 425-436.
20. German Cystic Fibrosis Registry. Annual Report. (2017). (Erişim tarihi: 19.06.2023). https://www.muko.info/fileadmin/user_upload/angebote/qualitaetsmanagement/register/berichtsband_2017.pdf
21. Girón Moreno RM, García-Clemente M, Diab-Cáceres L, Martínez-Vergara A, Martínez-García MÁ, Gómez-Punter RM. (2021). Treatment of pulmonary disease of Cystic Fibrosis: A comprehensive review. Antibiotics, 10(5), 486.
22. Habibzadeh H, Shariati A, Mohammadi F, Babayi S. (2021). The effect of educational intervention based on Pender's Health Promotion Model on quality of life and health promotion in patients with heart failure: An experimental study. BMC Cardiovascular Disorders, 21, 1-13.
23. Jalali A, Ziapour A, Ezzati E, Kazemi S, Kazeminia M. (2023). The impact of training based on the Pender Health Promotion Model on self-efficacy: A systematic review and meta-analysis. American Journal of Health Promotion, 8901171231224101.
24. Karasu F. (2021). Kronik obstrüktif akciğer hastalarında Pender’in Sağlığı Geliştirme Modeli. Sağlık Bilimleri Dergisi, 30 (2), 209-214.
25. Karataş T, Polat Ü. (2021). Effect of nurse-led program on the exercise behavior of coronary artery patients: Pender's Health Promotion Model. Patient Education and Counseling, 104(5), 1183-1192.
26. Koeller M, Meyer C. (2016). Maintaining nursing care quality-clinical care guidelines for Cystic Fibrosis: Outpatient and ınpatient. Case Reports in Clinical Medicine, 5(10), 358.
27. Liou TG. (2019). The clinical biology of Cystic Fibrosis transmembrane regulator protein: Its role and function in extrapulmonary disease. Chest, 155(3), 605-616.
28. Luz RMD, Marinho DCB, Lima APE, Coriolano-Marinus MWL. (2022). Educational interventions in child development and health literacy assumptions: An integrative review. Revista Brasileira de Enfermagem, 76(1), e20220116.
29. Masoudi R, Lotfizade M, Gheysarieha MR, Rabiei L. (2020). Evaluating the effect of Pender's Health Promotion model on self-efficacy and treatment adherence behaviors among patients undergoing hemodialysis. Journal of Education and Health Promotion, 9, 197.
30. Miyamoto S, Dharmar M, Fazio S, Tang-Feldman Y, Young HM. (2018). Health technology and nurse health coaching to improve health in diabetes: Protocol for a randomized controlled trial. JMIR Research Protocols, 7(2), e45.
31. Moran F, Bradley JM, Piper AJ. (2017). Non-invasive ventilation for Cystic Fibrosis. The Cochrane Database Of Systematic Reviews, 2(2), CD002769.
32. Mörelius E, Robinson S, Arabiat D, Whitehead L. (2021). Digital ınterventions to improve health literacy among parents of children aged 0 to 12 years with a health condition: Systematic review. Journal of Medical Internet Research, 23(12), e31665.
33. Mudgal SK, Sharma SK, Chaturvedi J, Chundawat DS. (2021). Effects of health promotion model-based visual learning module on self-efficacy and health promotion behavior of stroke survivors: A nonrandomized controlled trial. Journal of Neurosciences in Rural Practice, 12(2), 389-397.
34. Ng YC, Caires A. (2016). The health promotion model in HIV care. Aquichan, 16(4), 418-429.
35. Pinquart M. (2018). Parenting stress in caregivers of children with chronic physical condition-a meta‐analysis. Stress and Health, 34(2), 197-207.
36. Procianoy EDFA, de Abreu E Silva FA, Maróstica PJC, Quinton PM. (2020). Chloride conductance, nasal potential difference and Cystic Fibrosis pathophysiology. Lung, 198(1), 151-156.
37. Reisinho MD, Gomes BP. (2016). Nursing interventions in monitoring the adolescent with Cystic Fibrosis: A literature review. Revista Latino-Americana de Enfermagem, 24, e2845.
38. Ross A, Bevans M, Brooks AT, Gibbons S, Wallen GR. (2017). Nurses and health-promoting behaviors: Knowledge may not translate into self-care. AORN Journal, 105(3), 267-275.
39. Shteinberg M, Haq IJ, Polineni D, Davies JC. (2021). Cystic Fibrosis. Lancet, 397(10290), 2195–2211. Smyth W, Abernethy G, Jessup M, Douglas T, Shields L; AREST‐CF. (2017). Family-centred care in Cystic Fibrosis: A pilot study in North Queensland, Australia. Nursing Open, 4(3), 168-173.
40. Tagliati C, Pantano S, Lanni G, Battista D, Marcucci M, Fogante M, et al. (2022). Sinus disease grading on computed tomography before and after modulating therapy in adult patients with Cystic Fibrosis. Journal of the Belgian Society of Radiology, 106(1), 57.
41. Tointon K, Hunt J. (2016). How holistic nursing can enhance the quality of life of children with Cystic Fibrosis. Nursing Children and Young People, 28(8), 22-25.
42. Young HM, Miyamoto S, Dharmar M, Tang-Feldman Y. (2020). Nurse coaching and mobile health compared with usual care to ımprove diabetes self-efficacy for persons with Type 2 Diabetes: Randomized controlled trial. JMIR Mhealth and Uhealth, 8(3), e16665.
43. Zheng L. (2023). The molecular basis of Cystic Fibrosis. International Journal of High School Research, 5(6), 40-46.