BibTex RIS Kaynak Göster

Examination of a Family Centered Care Practice at the Children's Units of a University Hospital

Yıl 2009, Cilt: 16 Sayı: 1, 11 - 24, 01.03.2009

Öz

This study was conducted for descriptive purpose to determine the care at pediatric units of a university hospital in terms of family centered care practice. Demographic data forms, interview questionnaires consist of open and close ended questions were used in the study. The study performed on 81 mothers. Chi-square tests have been used for statistical evaluation of the collected data. Descriptive values have been given in numbers and percentages. It has been identified that mothers primarily undertook the physical care of their children in hospital and therefore they were not able to meet their own needs. It has been determined that most of the mothers undertook the administration of medicine and often gave the medicines that were taken orally. It has been also observed that mothers were not given sufficient information on the care of their children and that they did not participate in the decisions concerning with their children. Furthermore it has been determined that mothers could not ask questions to and share their concerns with the nurses either because they were busy or unwilling to answer the questions of the mothers. In parallel with the outcomes from the study, establishing family centred care policies by hospital administration and sharing the philosophy of family centred care with families during hospitalization were suggested.

Kaynakça

  • yarısının çocuklarının bakımı nedeniyle kendi gereksinimlerini karşılayamadıkları
  • belirlenmiştir. Bu nedenle hastane yönetimi tarafından servislerdeki hemşire
  • sayısının arttırılmasına yönelik gerekli düzenlemelerin yapılması kurumun yapacağı
  • düzenlemeler arasında yer almalıdır.
  • Ayrıca hastane yönetimi tarafından aile merkezli bakıma ilişkin politikaların
  • oluşturulması ve hastaneye yatışta aile merkezli bakım felsefesinin ailelerle
  • paylaşılması önemlidir. Hemşireler, hastanede ebeveynlerin çocuklarıyla beraber
  • kalabilmeleri yönünde sağlık ve hastane politikalarının oluşturulmasında aktif
  • rol almalıdırlar. Hemşireler, çocuklar ve ailelerle hastanede en yakın ilişkide olan
  • sağlık profesyonelleridir. Bu nedenle hemşireler hastanelerdeki bakımın aile merkezli
  • olması yönündeki değişimi ve farklılığı yaratabilmede anahtar pozisyondadırlar.
  • Ayrıca bu konuda ileride yapılacak çalışmalarda kliniklere göre aile merkezli bakım
  • uygulamaları açısından farklılık olup olmadığının incelenmesi önerilmektedir.
  • Çavuşoğlu H. Çocuk sağlığı hemşireliği. Cilt 1, 9th ed. Ankara: Sistem Ofset Ltd. Şirketi; 2008.
  • Kristensson-Hallström I. Parental participation in pediatric surgical care. AORN Journal 2000;71(5):1021-29.
  • Sarajärvi A, Haapamäki M, Paavilainen E. Emotional and informational support for families during their child’s illness. International Nursing Review 2006;53(3):205-10.
  • Melnyk M, Feinstein F. Mediating functions of maternal anxiety and participation in care on young children’s posthospital adjustment. Research in Nursing & Health 2001;24:18-26.
  • Roden J. The involvement of parents and nurses in the care of acutely-ill children in a non-specialist paediatric setting. Journal of Child Health Care 2005;9(3):222-40.
  • Contro N, Sounkers B. Family perspectives on the quality of pediatric palliative care. Archives Pediatric and Adolescent Medicine 2002;14:14-18.
  • Brennan A. Caring for children during procedures: A review of the literature. Pediatric Nursing 1994;20(5):451-58.
  • Carson D, Council J, Gravley J. Temperament and family characteristics as predictors of children’s reactions to hospitalization. Developmental and Behavioral Pediatrics 1991;12(3):141-47.
  • Alexander D, White M, Powell G. Anxiety levels of rooming-in and non-rooming-in parents of young hospitalized children. Maternal Child Nursing Journal 1988;17:79-99.
  • Ahmann E, Johnson B. New guidance promote family centered change in health care institution. Pediatric Nursing 2001;27(2):173-75.
  • Cooper L, Gooding J, Gallagher J, Sternesky L, Ledsky R, Berns S. Impact of a family-centered care initiative on NICU care, staff and families. Journal of Perinatology 2007; 27:32-37.
  • Brown K, Sharon E, Dietrich A, Knazik M, Schamban N. Patient and family-centred care for pediatric patients in the emergency department. CJEM 2008;10(1):38-43.
  • Kamerling S, Lawler L, Lynch A. Family-centered care in the pediatric post anesthesia care unit: changing practice to promote parental visitation. Journal of PeriAnesthesia Nursing 2008;23(1):5-16.
  • Kain Z, Caldwell-Andrews A, Mayes L, Weinberg M, Wang S, MacLaren J, et al. Family-centered preparation for surgery ımproves perioperative outcomes in children. Anesthesiology 2007;106:65-74.
  • Aitken M, Mele N, Barrett K. Recovery of injured children: parent perspectives on family needs. Archives of Physical Medicine and Rehabilitation 2004;85(4):567-73.
  • Freeman K, O’Dell C. Childhood brain tumors: parental concerns and stressors by phase of illness. Journal of Pediatric Oncology Nursing 2004;21(87).
  • Hallström I, Runesson I, Elander G. Observed parental needs during their child’s hospitalization. Journal of Pediatric Nursing 2002;7(2):212-18.
  • Kristen E, Joän M, James G. Parental involvement and family-centered care in the diagnostic and treatment phases of childhood. Journal of Pediatric Oncology Nursing 2003;20:301.
  • Linda C. Parental responses to involvement in rounds on a pediatric inpatient unit at a teaching hospital: A qualitative study. Acad Med 2008;83:292-97.
  • Penny J, Clark P. Your patient—my child seven priorities for improving pediatric care from the parent’s perspective. Journal of Nursing Care Quality 2004;20(1):43-53.
  • Schaffer P. Revision of a parent satisfaction survey based on the parent perspective. Journal of Pediatric Nursing 2000;15(6):373-79.
  • Tourigny J, Chapados C, Pineault R. Determinants of parental behaviour when children undergo day- care surgery. Journal of Advanced Nursing 2005;52:490-97.
  • Ward K. Perceived needs of parents of critically ill infants in a neonatal intensive care unit. Pediatric Nursing 2001; 27(3):281-85.
  • Peterson M, Cohen J, Parsons V. Family centered care: Do we practice what we preach ? Journal of Obstetric Gynecologic and Neonatal Nursing 2004;33:421-27.
  • Shields L, Nixon J. Hospital care of children in four countries. Journal of Advanced Nursing 2004;45(5):475-85.
  • Klassen A, Dix S, Cano J, Papsdorf M, Sungand L, Klaassen R. Evaluating family-centred service in paediatric oncology with the measure of processes of care (MPOC-20). Child: Care, Health and Development 2008;35(1):16–22.
  • Mantha S, Davies B, Moyer A, Crowe K. Providing responsive nursing care to new mothers with high and low confidence. Am J Matern Child Nurs 2008;33(5):307-14.
  • Byers J, Lowman L, Francis J, Kaigle L, Lutz N, Waddell T, et al. A quasi-experimental trial on individualized, developmentally supportive family-centered care. J Obstet Gynecol Neonatal Nurs 2006;35(1):105-15.
  • Ygge B, Arnetz J. A study of parental involvement in pediatric hospital care: implications for clinical practice. Journal of Pediatric Nursing 2004;19(3):217-23.
  • Macnab A, Thiessen P, Mc Leod E, Hinton D. Parent assessment of family-centered care practices in a children’s hospital. Children’s Health Care 2000;29(2):113-28.
  • Hughes M. Parents’ and nurses’ attitudes to family-centred care: an Irish perspective. Journal of Clinical Nursing 2007;16:2341-48.
  • Griffin T. Facing challenges to family centered care II.:Anger in the clinical setting. Pediatric Nursing 2003;29(3):212-16.
  • Yiu J, Twinn S. Determining the needs of chinese parents during the hospitalization of their child diagnosed with cancer: An exploratory study. Cancer Nursing 2001;24(6):483-89.
  • Power N, Franck L. Parent participation in the care of hospitalized children: a systematic review. Journal of Advanced Nursing 2008;62(6):622-41.
  • Kain Z, Wang S. Parental desire for perioperative information and informed consent: A two-phase study. Anesthesia Analg 1997;84:299-306.
  • Canam C, Hilary J. Parent-nurse interactions: care of hospitalized children. Journal of Advanced Nursing 2003;44(1):34-41.
  • Meeropol E. Parental needs assessment: A design for clinical nurse specialist practice. Pediatric Nursing 1991;17(5):456-58.
  • Fagerskiöld A. Expectations of the child health nurse in Sweden:two perspectives. International Council of Nurses 2003;50:119-28.
  • Blower K, Morgan E. Great expectations? Parental participation in care. Journal of Child Health Care 2000;4(2):60-65.
  • Demirhan EA, Oğuz Y, Elçioğlu Ö, Doğan H. Klinik Etik. İstanbul: Nobel Tıp Kitabevleri; 2001.
  • Alderson P. European charter of children’s rights. Bulletin of Medical Ethics 1993;October:13-15.
  • Avis M, Reardon R. Understanding the views of parents of children with special needs about the nursing care their child receives when in hospital: a qualitative study. Journal of Child Health Care 2008;12(1):7-17.
  • Ygge B, Lindholm C, Arnetz J. Hospital staff perceptions of parental involvement in paediatric hospital care. Journal of Advanced Nursing 2006;53( 5):534-42.
  • Evagelou E. Parental participation in their hospitalized child’s physical and psychological care: nurses’ perceptions. ICUs and Nursing Web Journal 2003;13:13-18.
  • Balling K, McCubbin M. Hospitalized children with chronic illness:Parental caregiving needs and valuing parental expertise. Journal of Pediatric Nursing 2001;16(2):110-18.
  • Lam L, Anne M, Chang J. Parents’ experiences of participation in the care of hospitalised children: A qualitative study. International Journal of Nursing Studies 2006;43:535-45.
  • Evans M. An investigation into the feasibility of parental participation in the nursing care of their children. Journal of Advanced Nursing 1994;20:477-82.
  • Bauchner H. Parental presence during procedures in an emergency room: Results from 50 observations. Pediatrics 1991;87(4):544-48.
  • Boıe E, Moore G, Brummett C, Nelson D. Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents. Annals Of Emergency Medicine 1999;34:70-74.
  • Bauchner H, Winci R, Waring C. Pediatric procedures: Do parents want to stay ? Pediatrics 1989;84:907-09.
  • Barutçu E, Serinkan C. Günümüzün önemli sorunlarından biri olarak tükenmişlik sendromu ve Denizli’de yapılan bir araştırma. Ege Akademik Bakış / Ege Academic Review 2008;8(2):541-61.

Bir Üniversite Hastanesindeki Uygulamaların Aile Merkezli Bakım Yönünden İncelenmesi

Yıl 2009, Cilt: 16 Sayı: 1, 11 - 24, 01.03.2009

Öz

Bu araştırma bir üniversite hastanesinin çocuk servislerinde verilen bakımı, aile merkezli bakım yönünden incelemek amacıyla tanımlayıcı olarak yapılmıştır. Çalışmada demografik veri formu, açık ve kapalı uçlu sorulardan oluşan görüşme formu kullanılmıştır. Araştırma 81 anne ile yapılmıştır. Verilerin istatistiksel değerlendirilmesi ki-kare testi ile yapılmıştır. Tanımlayıcı değerler olarak sayı ve yüzdelikler verilmiştir. Annelerin hastanede çocuklarının daha çok fiziksel bakımını üstlendikleri ve bu nedenle kendi gereksinimlerini karşılayamadıkları saptanmıştır. Çocuğun bakımında annelerin çoğunun ilaç uygulamalarını üstlendikleri ve çoğunlukla oral yolla alınan ilaçları verdikleri belirlenmiştir. Annelerin çocuklarının bakımı konusunda yeterince bilgilendirilmediği ve çocukları ile ilgili kararlara katılmadıkları görülmüştür. Ayrıca hemşirelerin yoğun olmaları ve sorulara yanıt vermemeleri gibi nedenlerle annelerin hemşirelere soru soramadıkları ve endişelerini paylaşamadıkları belirlenmiştir. Bu bulgular doğrultusunda hastane yönetimi tarafından aile merkezli bakıma ilişkin politikaların oluşturulması ve hastaneye yatışta aile merkezli bakım felsefesinin ailelerle paylaşılması önerilmiştir.

Kaynakça

  • yarısının çocuklarının bakımı nedeniyle kendi gereksinimlerini karşılayamadıkları
  • belirlenmiştir. Bu nedenle hastane yönetimi tarafından servislerdeki hemşire
  • sayısının arttırılmasına yönelik gerekli düzenlemelerin yapılması kurumun yapacağı
  • düzenlemeler arasında yer almalıdır.
  • Ayrıca hastane yönetimi tarafından aile merkezli bakıma ilişkin politikaların
  • oluşturulması ve hastaneye yatışta aile merkezli bakım felsefesinin ailelerle
  • paylaşılması önemlidir. Hemşireler, hastanede ebeveynlerin çocuklarıyla beraber
  • kalabilmeleri yönünde sağlık ve hastane politikalarının oluşturulmasında aktif
  • rol almalıdırlar. Hemşireler, çocuklar ve ailelerle hastanede en yakın ilişkide olan
  • sağlık profesyonelleridir. Bu nedenle hemşireler hastanelerdeki bakımın aile merkezli
  • olması yönündeki değişimi ve farklılığı yaratabilmede anahtar pozisyondadırlar.
  • Ayrıca bu konuda ileride yapılacak çalışmalarda kliniklere göre aile merkezli bakım
  • uygulamaları açısından farklılık olup olmadığının incelenmesi önerilmektedir.
  • Çavuşoğlu H. Çocuk sağlığı hemşireliği. Cilt 1, 9th ed. Ankara: Sistem Ofset Ltd. Şirketi; 2008.
  • Kristensson-Hallström I. Parental participation in pediatric surgical care. AORN Journal 2000;71(5):1021-29.
  • Sarajärvi A, Haapamäki M, Paavilainen E. Emotional and informational support for families during their child’s illness. International Nursing Review 2006;53(3):205-10.
  • Melnyk M, Feinstein F. Mediating functions of maternal anxiety and participation in care on young children’s posthospital adjustment. Research in Nursing & Health 2001;24:18-26.
  • Roden J. The involvement of parents and nurses in the care of acutely-ill children in a non-specialist paediatric setting. Journal of Child Health Care 2005;9(3):222-40.
  • Contro N, Sounkers B. Family perspectives on the quality of pediatric palliative care. Archives Pediatric and Adolescent Medicine 2002;14:14-18.
  • Brennan A. Caring for children during procedures: A review of the literature. Pediatric Nursing 1994;20(5):451-58.
  • Carson D, Council J, Gravley J. Temperament and family characteristics as predictors of children’s reactions to hospitalization. Developmental and Behavioral Pediatrics 1991;12(3):141-47.
  • Alexander D, White M, Powell G. Anxiety levels of rooming-in and non-rooming-in parents of young hospitalized children. Maternal Child Nursing Journal 1988;17:79-99.
  • Ahmann E, Johnson B. New guidance promote family centered change in health care institution. Pediatric Nursing 2001;27(2):173-75.
  • Cooper L, Gooding J, Gallagher J, Sternesky L, Ledsky R, Berns S. Impact of a family-centered care initiative on NICU care, staff and families. Journal of Perinatology 2007; 27:32-37.
  • Brown K, Sharon E, Dietrich A, Knazik M, Schamban N. Patient and family-centred care for pediatric patients in the emergency department. CJEM 2008;10(1):38-43.
  • Kamerling S, Lawler L, Lynch A. Family-centered care in the pediatric post anesthesia care unit: changing practice to promote parental visitation. Journal of PeriAnesthesia Nursing 2008;23(1):5-16.
  • Kain Z, Caldwell-Andrews A, Mayes L, Weinberg M, Wang S, MacLaren J, et al. Family-centered preparation for surgery ımproves perioperative outcomes in children. Anesthesiology 2007;106:65-74.
  • Aitken M, Mele N, Barrett K. Recovery of injured children: parent perspectives on family needs. Archives of Physical Medicine and Rehabilitation 2004;85(4):567-73.
  • Freeman K, O’Dell C. Childhood brain tumors: parental concerns and stressors by phase of illness. Journal of Pediatric Oncology Nursing 2004;21(87).
  • Hallström I, Runesson I, Elander G. Observed parental needs during their child’s hospitalization. Journal of Pediatric Nursing 2002;7(2):212-18.
  • Kristen E, Joän M, James G. Parental involvement and family-centered care in the diagnostic and treatment phases of childhood. Journal of Pediatric Oncology Nursing 2003;20:301.
  • Linda C. Parental responses to involvement in rounds on a pediatric inpatient unit at a teaching hospital: A qualitative study. Acad Med 2008;83:292-97.
  • Penny J, Clark P. Your patient—my child seven priorities for improving pediatric care from the parent’s perspective. Journal of Nursing Care Quality 2004;20(1):43-53.
  • Schaffer P. Revision of a parent satisfaction survey based on the parent perspective. Journal of Pediatric Nursing 2000;15(6):373-79.
  • Tourigny J, Chapados C, Pineault R. Determinants of parental behaviour when children undergo day- care surgery. Journal of Advanced Nursing 2005;52:490-97.
  • Ward K. Perceived needs of parents of critically ill infants in a neonatal intensive care unit. Pediatric Nursing 2001; 27(3):281-85.
  • Peterson M, Cohen J, Parsons V. Family centered care: Do we practice what we preach ? Journal of Obstetric Gynecologic and Neonatal Nursing 2004;33:421-27.
  • Shields L, Nixon J. Hospital care of children in four countries. Journal of Advanced Nursing 2004;45(5):475-85.
  • Klassen A, Dix S, Cano J, Papsdorf M, Sungand L, Klaassen R. Evaluating family-centred service in paediatric oncology with the measure of processes of care (MPOC-20). Child: Care, Health and Development 2008;35(1):16–22.
  • Mantha S, Davies B, Moyer A, Crowe K. Providing responsive nursing care to new mothers with high and low confidence. Am J Matern Child Nurs 2008;33(5):307-14.
  • Byers J, Lowman L, Francis J, Kaigle L, Lutz N, Waddell T, et al. A quasi-experimental trial on individualized, developmentally supportive family-centered care. J Obstet Gynecol Neonatal Nurs 2006;35(1):105-15.
  • Ygge B, Arnetz J. A study of parental involvement in pediatric hospital care: implications for clinical practice. Journal of Pediatric Nursing 2004;19(3):217-23.
  • Macnab A, Thiessen P, Mc Leod E, Hinton D. Parent assessment of family-centered care practices in a children’s hospital. Children’s Health Care 2000;29(2):113-28.
  • Hughes M. Parents’ and nurses’ attitudes to family-centred care: an Irish perspective. Journal of Clinical Nursing 2007;16:2341-48.
  • Griffin T. Facing challenges to family centered care II.:Anger in the clinical setting. Pediatric Nursing 2003;29(3):212-16.
  • Yiu J, Twinn S. Determining the needs of chinese parents during the hospitalization of their child diagnosed with cancer: An exploratory study. Cancer Nursing 2001;24(6):483-89.
  • Power N, Franck L. Parent participation in the care of hospitalized children: a systematic review. Journal of Advanced Nursing 2008;62(6):622-41.
  • Kain Z, Wang S. Parental desire for perioperative information and informed consent: A two-phase study. Anesthesia Analg 1997;84:299-306.
  • Canam C, Hilary J. Parent-nurse interactions: care of hospitalized children. Journal of Advanced Nursing 2003;44(1):34-41.
  • Meeropol E. Parental needs assessment: A design for clinical nurse specialist practice. Pediatric Nursing 1991;17(5):456-58.
  • Fagerskiöld A. Expectations of the child health nurse in Sweden:two perspectives. International Council of Nurses 2003;50:119-28.
  • Blower K, Morgan E. Great expectations? Parental participation in care. Journal of Child Health Care 2000;4(2):60-65.
  • Demirhan EA, Oğuz Y, Elçioğlu Ö, Doğan H. Klinik Etik. İstanbul: Nobel Tıp Kitabevleri; 2001.
  • Alderson P. European charter of children’s rights. Bulletin of Medical Ethics 1993;October:13-15.
  • Avis M, Reardon R. Understanding the views of parents of children with special needs about the nursing care their child receives when in hospital: a qualitative study. Journal of Child Health Care 2008;12(1):7-17.
  • Ygge B, Lindholm C, Arnetz J. Hospital staff perceptions of parental involvement in paediatric hospital care. Journal of Advanced Nursing 2006;53( 5):534-42.
  • Evagelou E. Parental participation in their hospitalized child’s physical and psychological care: nurses’ perceptions. ICUs and Nursing Web Journal 2003;13:13-18.
  • Balling K, McCubbin M. Hospitalized children with chronic illness:Parental caregiving needs and valuing parental expertise. Journal of Pediatric Nursing 2001;16(2):110-18.
  • Lam L, Anne M, Chang J. Parents’ experiences of participation in the care of hospitalised children: A qualitative study. International Journal of Nursing Studies 2006;43:535-45.
  • Evans M. An investigation into the feasibility of parental participation in the nursing care of their children. Journal of Advanced Nursing 1994;20:477-82.
  • Bauchner H. Parental presence during procedures in an emergency room: Results from 50 observations. Pediatrics 1991;87(4):544-48.
  • Boıe E, Moore G, Brummett C, Nelson D. Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents. Annals Of Emergency Medicine 1999;34:70-74.
  • Bauchner H, Winci R, Waring C. Pediatric procedures: Do parents want to stay ? Pediatrics 1989;84:907-09.
  • Barutçu E, Serinkan C. Günümüzün önemli sorunlarından biri olarak tükenmişlik sendromu ve Denizli’de yapılan bir araştırma. Ege Akademik Bakış / Ege Academic Review 2008;8(2):541-61.
Toplam 64 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Bölüm Makaleler
Yazarlar

Arş. Gör. Handan Boztepe Bu kişi benim

Prof. Dr. Hicran Çavuşoğlu Bu kişi benim

Yayımlanma Tarihi 1 Mart 2009
Gönderilme Tarihi 29 Temmuz 2014
Yayımlandığı Sayı Yıl 2009 Cilt: 16 Sayı: 1

Kaynak Göster

Vancouver Boztepe AGH, Çavuşoğlu PDH. Bir Üniversite Hastanesindeki Uygulamaların Aile Merkezli Bakım Yönünden İncelenmesi. HUHEMFAD. 2009;16(1):11-24.