Zihinsel Yetersiz Çocukların Aile Yükü, Özbakım Becerileri, Annelerinin Yaşam Doyumu ve Etkileyen Faktörler

Öz

Özet Amaç: Bu araştırma, zihinsel yetersiz çocukların aile yükü, öz bakım becerileri, annelerinin yaşam doyumu ve etkileyen faktörleri belirlemek amacıyla gerçekleştirildi. Yöntem: Tanımlayıcı, kesitsel tipteki bu çalışma 280 anne ile gerçekleştirildi. Veriler, “Veri toplama formu”, “Aile Yükü Değerlendirme Ölçeği”, “Yaşam Doyumu Ölçeği”, “Öz bakım Becerileri Kontrol Listesi” kullanılarak toplandı. Bulgular: Korelasyon sonuçları, çocukların öz bakım becerileri arttıkça annelerinin aile yükü algısının azaldığını (p<0.001) ve yaşam doyumlarının arttığını (p=0.004) göstermiştir. Annelerin aile yükü algıları ile yaşam doyumları arasında da negatif bir ilişki vardı (p<0.001). Sonuç: Bu çalışmada zihinsel yetersizliği olan çocuğa sahip annelerin aile yükünün yüksek olduğu belirlenmiştir. Aile yükünün azaltılmasında çocuklarına zihinsel engelli tanısı konan ailelerin engellilik, çocuğun bakımı ve tedavisi konularında eğitim almaları önemlidir. Anahtar kelimeler: Aile yükü, Zihinsel yetersizlik, Yaşam doyumu, Hemşirelik, Öz bakım.

Anahtar Kelimeler

• Aile yükü
• Zihinsel yetersizlik
• Yaşam doyumu
• Hemşirelik
• Özbakım

Family Burden and Self-Care Skills of Children with Intellectual Disability, Life Satisfaction of Their Mothers and The Effective Factors

Öz

Abstract Aim: This study was conducted in order to determine family burden and self-care skills of the children with intellectual disability, life satisfaction of their mothers, and the effective factors. Methods: This descriptive, cross‐sectional study was conducted with the participation of 280 mothers. The data were collected by using “Data collection form”, “Family Burden Assessment Scale”, “Satisfaction of Life Scale”, and “Self-care Skills Check List”. Results: The correlation results showed that as the children’ self-care skills increased, their mothers perception of family burden decreased (p<0.001) and their life satisfaction (p=0.004) increased. There was also a negative correlaton between mothers’ perception of family burden and their life satisfaction (p<0.001). Conclusion: In this study, it was determined that mothers of children with intellectual disability had high family burden. In decreasing family burden, it is important for families, whose children were diagnosed with intellectual disabled, to receive education in the fields of disability, care and treatment of the child. Key words: Family burden, Intellectual disability, Life satisfaction, Nursing, Self-care.

Anahtar Kelimeler

• Family burden
• Intellectual disability
• Life satisfaction
• Nursing
• Self-care.

Kaynakça

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