Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study

Öz

Objective: Patient- and family-centered care (PFCC) involves the engagement of both the patients and their families, considering them as an essential member of the healthcare team. The aim of this study was to evaluate PFCC experience of hospitalized children’s parents in our hospital, assess current areas of strength and identify areas for growth for future improvement. Material and Methods: The inclusion criteria for the study were parents of children who were hospitalized for at least three consecutive days. The data of 27 mothers, who were the child’s primary caregiver in the hospital, were collected through face-to-face interviews. Children using immunosuppressive treatment were excluded from the study. Interviews lasted between 20 and 30 minutes. Data were analyzed using thematic framework analysis. Results: Mothers reported both positive and negative experiences during their hospitalization period. One of the main findings of our current study was that Turkish parents usually do not prefer to take an active role during the decision-making process. However, they do expect to be fully informed about the disease, diagnostic procedures, treatment, and expected complications. Conclusion: It is important to emphasize the importance of comprehensive implementation of PFCC for better healthcare outcomes. Recommendation includes offering communication skills training and education to healthcare providers and starting initiatives to improve the hospitals’ environment.

Anahtar Kelimeler

• Family
• Child
• Patient Care
• Decision Making
• Health Personnel
• Qualitative Research

Türkiye’deki Bir Çocuk Kliniğinde Çocuk ve Aile Merkezli Bakımın Değerlendirilmesi: Niteliksel Çalışma

Öz

Amaç: Hasta ve aile merkezli bakım hizmeti hem hastaların hem de bakım veren ebeveynlerin sağlık ekibinin önemli bir parçası olarak kabul edilmesini içerir. Bu çalışmanın amacı, hastanemizde yatan çocukların ebeveynlerinin hasta ve aile merkezli bakım hizmetleriyle ilişkili deneyimlerini değerlendirmek, olumlu kısımları saptamak ve geliştirilme ihtiyacı olan alanları belirlemektir. Gereç ve Yöntemler: En az üç gün hastanede yatışı olan çocukların ebeveynleri çalışmaya dahil edilmiştir. Annelerin çocuklarının öncelikli bakım verenleri olması nedeniyle 27 çocuğun anneleri ile yüz yüze görüşme metodu kullanılarak veriler elde edilmiştir. İmmunsupresif kullanan çocuklar çalışma dışında bırakılmıştır. Görüşmeler oratalama 20-30 dakika sürmüştür. Görüşme çıktıları analiz edilip, tema rehberi belirlenmiştir. Bulgular: Anneler tarafında yatışları süresince olumlu ve olumsuz deneyimler bildirilmiştir. Ana bulgulardan biri; ülkemizdeki ebeveynlerin karar verme sürecinde aktif rol almayı tercih etmemesidir. Bununla birlikte ebeveynler mevcut hastalık, tanı, tedavi prosedürleri ve olası komplikasyonlarla ilgili bilgilendirilmek istedikleri belirtilmiştir. Sonuç: Daha iyi sağlık sonuçları elde edebilmek adına hasta ve aile merkezli bakım hizmetlerinin etkin bir şekilde uygulanması çok önemlidir. Sağlık çalışanlarına iletişim becerileri konusunda eğitim vermek ve hastane ortamını iyileştirmeye yönelik girişimlerde bulunulması önerilmektedir.

Anahtar Kelimeler

• Aile
• Çocuk
• Hasta bakımı
• Karar verme
• Sağlık çalışanları
• Niteliksel araştırma

Kaynakça

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