Alzheimer Hastalığıyla İlişkili Yaşam Kalitesi Ölçeği (AHİYK)’nin Türkçe Versiyonunun Geçerlilik Güvenilirlik Çalışması

Öz

Amaç: Çalışmada Alzheimer Hastalığı ile İlişkili Yaşam Kalitesi (AHİYK) Ölçeği – (Alzheimer’s Disease Related Quality of Life (ADRQL) Scale)’nin psikometrik özellikleri ve AHİYK ölçeği puanı ile bakım verenlerin duygu durumları arasındaki ilişki incelenmiştir.
Gereç ve Yöntem: Çalışmanın örneklemini, evde (N=30) ve bakım evinde (N=30) bakım gören toplam 60 muhtemel AH hastasının bakım vereni oluşturmaktadır. Klinik değerlendirme ölçeğine göre evre 1 ve 2 AH hastaları çalışma kapsamına alınmıştır. Hastaların bilişsel durumları Standardize Mini-Mental Test (SMMT) ile değerlendirilmiştir. Fonksiyonel durumu AH işbirliği çalışması - günlük yaşam aktiviteleri (ADCS-ADL) ölçeği ile değerlendirilmiştir. Bakım verenlerin duygu durumlarını değerlendirmek için Pozitif ve Negatif Duygu Ölçeği (PANAS) uygulanmıştır. Bu parametreler, bakım veren tarafından doldurulan AHİYK ölçeği ve 5 alt boyutu ( A.Sosyal etkileşim, B. Benlik bilinci C: Duygulanım ve duygudurum, D. Etkinliklerden keyif alma, E. çevre ile etkileşim) ile karşılaştırılmıştır. Güvenirlilik açısından 3 hafta sonra AHİYK ölçeği bakım verenlere tekrar uygulanmıştır.
Bulgular: AHİYK total puanı ve B alt boyutu ile ADCS-ADL ölçeği arasında anlamlı düzeyde bir korelasyon saptanmıştır (sırasıyla r=0.27, r=0.38 p≤0.05). SMMT ile AHİYK ölçeğinin toplam puanı, A, B, C alt boyutları arasında anlamlı düzeyde korelasyon saptanmıştır (sırasıyla AHİYK total puan r=0.72, A boyutu r=0.83, B boyutu r=0.47, C boyutu r= 0.43, p≤0.05). AHİYK ölçeğininnin iç tutarlılık güvenirliği için Cronbach alfa katsayısı (α) ( ( α = 0.75) hesaplanmıştır. Ölçeğin tekrarlanan test güvenirlilik sonuçlarına göre AHİYK birinci ölçüm ile ikinci ölçümün gerek toplam puanları gerek alt boyutlarının puanları, anlamlı düzeyde korelasyona sahiptir.
Sonuç: Bulgular AHİYK’nın Türkçe versiyonunun geçerli ve güvenilir bir ölçme aracı olduğunu göstermektedir.

Anahtar Kelimeler

• Alzheimer Tipi Demans
• Yaşam Kalitesi
• Geçerlik ve Güvenirlik

Validity and Reliability Study of the Turkish version of the Alzheimer’s Disease-Related Quality of Life (ADRQL) Scale

Öz

Aim: In this study we determined the psychometric properties of the Alzheimer's Disease-Related Quality of Life (ADRQL) Scale and adapted it into Turkish. We also investigated the relationship between the ADRQL scale and the emotional states of the caregivers. Materials and Methods: The sample of the study involves caregivers of 60 possible AD patients who are given care at home (N = 30) and nursing home (N = 30). Stage 1 and 2 AD patients were included in the study according to The Clinical Dementia Rating Scale (CDR). The cognitive status of the patients was evaluated by the Standardized Mini-Mental State Examination (SMME). The functional status was evaluated by AD Cooperative Study – Activities of Daily Living (ADCS-ADL) Scale. Positive and Negative Emotion Scale (PANAS) was applied to evaluate the emotional states of the caregivers. These parameters were compared with the ADRQL scale filled by the caregiver and its 5 subscales (A. Social Interaction, B. Awareness of Self C: Feelings and Mood, D. Enjoyment of Activities, E. Response to Surroundings). To evaluate test-retest reliability, the ADRQL scale was applied to caregivers fort the second time, after 3 weeks. Results: There was a significant correlation between ADRQL total score and B subscale (r = 0.27, p≤0.05) and ADCS-ADL scale (r = 0.38 p≤0.05). There was a significant correlation between SMME and ADRQL scale total score, A, B, C subscale (ADRQL total score r = 0.72, A subscale r = 0.83, B subscale r = 0.47, C subscale r = 0.43, p≤0.05). Cronbach's alpha (α) (α=0.75) was used to calculate the internal consistency reliability of the ADQRL. According to the test-retest reliability results of the scale, ADRQL shows a significant correlation between both the total scores and subscales scores of the first measurement and second measurement. Conclusion: Results show that the Turkish version of ADRQL is a valid and reliable measurement instrument.

Anahtar Kelimeler

• Alzheimer Desiase
• Quality of Life
• Validity and Reliabilitation

Kaynakça

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