Down sendromlu adölesanlarla aktiviteye katılım ve yaşam kalitesi

Yıl 2021, Cilt: 8 Sayı: 3, 245 - 253, 31.12.2021

Şengül Şen Tekin Fatih Tekin

https://doi.org/10.15437/jetr.840003

Cited By: 1

Öz

Amaç: Bu çalışmanın amacı, Down Sendromlu adölesanların aktivitelere katılımlarının yaşam kalitesiyle birlikte
değerlendirilmesi ve normal gelişimli adölesanlarla karşılaştırılmasıdır.

Yöntem: Çalışmaya 30 adölesan dahil edildi. Bunlardan Down Sendromlu olan 15 olgu çalışma grubuna, normal gelişimli olan
15 olgu ise kontrol grubuna alındı. Aktivitelere katılımı değerlendirmek için Çocuk ve Ergen Katılım Ölçeği, yaşam kalitesini
değerlendirmek için Çocuklar için Yaşam Kalitesi Ölçeği (13-18 yaş) ve kaba motor fonksiyonları değerlendirmek için Kaba
Motor Fonksiyon Ölçeği-88 kullanıldı.

Bulgular: Kontrol grubundaki adölesanların kaba motor fonksiyonları, çalışma grubundaki adölesanlara kıyasla daha gelişmiş
durumdaydı (p<0,05). Kontrol grubundaki adölesanların yaşam kalitesi fiziksel ve psikososyal yönden çalışma grubundaki
olgulardan daha yüksekti (p<0,05). Çalışma grubundaki adölesanların toplumsal ve sosyal yaşama katılımları kontrol
grubundaki adölesanlardan daha yüksekti (p<0,05). Kontrol grubundaki adölesanların ise ev içi katılımı daha yüksekti
(p<0,05).

Sonuç: Down sendromlu adölesanların aktivitelere katılımı ve yaşam kalitesi, genel olarak normal gelişimli adölesanlara kıyasla
daha düşüktür.

Anahtar Kelimeler

Down Sendromu, Motor Aktivite, Toplumsal Katılım, Yaşam Kalitesi

Participation in activity and quality of life in adolescents with Down Syndrome

Öz

Purpose: The aim of this study was to evaluate the participation of adolescents with Down syndrome in activities together with
their quality of life and to compare them with adolescents with normal development.

Methods: Thirty adolescents were included in the study. Of these, 15 cases with Down syndrome were included in the study
group, and 15 cases with normal development were included in the control group. The Child and Adolescent Participation Scale
was used to assess participation in activities, the Pediatric Quality of Life Inventory (13-18 years) to evaluate the quality of life,
and the Gross Motor Function Scale-88 to evaluate gross motor functions.

Results: The gross motor functions of adolescents in the control group were more developed compared to adolescents in the
study group (p<0.05). The quality of life of the adolescents in the control group was higher in physical and psychosocial aspects
than the adolescents in the study group (p<0.05). Participation in the community and social life of the subjects in the study
group was higher than the adolescents in the control group (p<0.05). On the other hand, participation at home of adolescents
in the control group was higher (p <0.05).

Conclusion: Participation in the activities and quality of life of adolescents with Down Syndrome is generally lower than
adolescents with normal development.

Anahtar Kelimeler

Down Syndrome, Motor Activity, Community Participation, Quality of Life

Kaynakça

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