Comparison of adolescent and parental perception of health-related quality of life of adolescents with idiopathic scoliosis

Yıl 2024, Cilt: 11 Sayı: 1, 9 - 17, 18.04.2024

Merve Karatel , Yavuz Yakut , Gözde Yagcı

https://doi.org/10.15437/jetr.1286253

Öz

Purpose: Evaluation of the health-related quality of life (HRQoL) of individuals with idiopathic scoliosis (IS) is important because of the physical and psychosocial problems caused by IS. In general, children interact closely with their parents and are thus influenced by their parents’ opinions. It is thus useful to examine adolescent and parental perceptions of the adolescent’s HRQoL for the rehabilitation of individuals with IS.
Methods: This study compared the adolescents’ and their parents’ perceptions of the adolescent’s HRQoL including 65 individuals with IS (10–18 years). It was used the pediatric quality of life inventory (PedsQL) to assess the adolescents’ HRQoL and to examine the domains of physical health, emotional functioning, social functioning, school functioning, and psychosocial health.
Results: The results showed that the scores of the adolescents were higher than their parents’ in social functioning. Scores of social functioning and HRQoL were higher in girls than in their parents.
Conclusion: This discrepancy between the adolescents and their parents may have a negative effect on their rehabilitation, healthy social integration, and adaptation of individuals with IS. Shedding light on the reasons for this discrepancy would be beneficial for raising the awareness of parents with children with IS about this issue.

Anahtar Kelimeler

Scoliosis, Health-related quality of life, Parent-child relations, Social participation, Social desirability

İdiyopatik skolyozlu adölesanların sağlıkla ilgili yaşam kalitesine ilişkin adölesan ve ebeveyn algılarının karşılaştırılması

Öz

Amaç: İdiyopatik skolyozlu (İS) bireylerin sağlıkla ilişkili yaşam kalitesinin (SİYK) değerlendirilmesi, İS'nin neden olduğu fiziksel ve psikososyal sorunlar nedeniyle önemlidir. Genel olarak, çocuklar ebeveynleriyle yakın etkileşim içindedir ve ebeveynlerinin görüşlerinden etkilenirler. Bu nedenle, İS'li bireylerin rehabilitasyonu için adölesanın SİYK'sine ilişkin adölesan ve ebeveyn algılarını incelemek yararlı olacaktır.
Yöntem: Bu çalışma 65 İS'li bireyi (10-18 yaş) dahil ederek, adölesanların ve ebeveynlerinin adölesanın SİYK'sine ilişkin algılarını karşılaştırdı. Adölesanların SİYK'sini değerlendirmek ve fiziksel sağlık, emosyonel işlevsellik, sosyal işlevsellik, okul işlevselliği ve psikososyal sağlık alanlarını incelemek için Çocuklar için Yaşam Kalitesi Envanteri (ÇİYKÖ) kullanıldı.
Bulgular: Sonuçlar, adölesanların sosyal işlevsellik puanlarının ebeveynlerin verdiği puandan daha yüksek olduğunu göstermiştir. Sosyal işlevsellik ve SİYK puanları kızlarda ebeveynlerinden daha yüksekti.
Sonuç: Adölesanlar ve ebeveynleri arasındaki bu uyuşmazlık, İS'li bireylerin rehabilitasyonlarını, sağlıklı sosyal entegrasyonlarını ve uyumlarını olumsuz yönde etkileyebilir. Bu farklılığın nedenlerinin aydınlatılması, İS'li çocuğa sahip ebeveynlerin bu konuda bilinçlendirilmesi açısından faydalı olacaktır.

Anahtar Kelimeler

Skolyoz, Skolyoz, Sağlıkla ilgili yaşam kalitesi, Ebeveyn-çocuk ilişkileri, Sosyal katılım, Sosyal istenirlik

Kaynakça

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