Development and Psychometric Evaluation of a Sexual Quality of Life Scale Specific to Patients with a Stoma
Yıl 2025,
Seçil Taylan
,
İlknur Özkan
,
Selma Öncel
,
Ömer Alabaz
Öz
Objective: This study was conducted to develop a Sexual Quality of Life Scale Specific for Patients with a Stoma.
Methods: The study used a methodological design and involved 179 people with an intestinal stoma.
Results: Following exploratory factor analysis, the scale found that the scale to consist of four subdimensions (worries about spouse/partner, body image distortion, sexual dysfunction, and negative emotions) and 24 items explaining these dimensions. All factors together were found to explain 84.923% of the total variance. The confirmatory factor analysis model showed a good fit, with factor loadings ranging from 0.584 to 0.975. The subdimensions had high Cronbach's alpha values between 0.910 and 0.981, indicating high internal consistency.
Conclusion: As a result of the overall psychometric evaluation of the Stoma Sexual Quality of Life Scale, it was found to be a valid and reliable tool for assessing sexual quality of life in individuals with an intestinal stoma.
Kaynakça
-
1. Bolin A, Whelehan P, Vernon M, Antoine K. Human sexuality: Biological, psychological, and cultural perspectives. 2nd ed. New York: Routledge; 2021.
-
2. Yilmaz E, Çelebi D, Kaya Y, et al. A descriptive, cross-sectional study to assess quality of life and sexuality in Turkish patients with a colostomy. Ostomy Wound Manage. 2017;63:22–29. https://doi.org/10.25270/owm.2017.08.2229
-
3. Paszyńska W, Zborowska K, Czajkowska M, et al. Quality of sex life in intestinal stoma patients—a literature review. Int J Environ Res Public Health. 2023;20(3):2660. https://doi.org/10.3390/ijerph20032660
-
4. Saracco C, Rastelli G, Roveron G, et al. Sexual function in patients with stoma and its consideration among their caregivers: A cross-sectional study. Sex Disabil. 2019;37:415–427. https://doi.org/10.1007/s11195-019-09574-7
-
5. Bahayi K, Attaallah W, Yardımcı S, et al. Depression, anxiety, sexual dysfunction and quality of life in patients with ileostomy or colostomy. Turk J Colorectal Dis. 2018;28:69-75. https://go.gale.com/ps/i.do?id=GALE%7CA546068448
-
6. Zhu X, Tang X, Chen Y, et al. Sexual experiences of Chinese patients living with an ostomy. J Wound Ostomy Continence Nurs. 2017;44:469–474. https://doi.org/10.1097/WON.0000000000000357
-
7. Sun V, Grant M, Wendel CS, et al. Sexual function and health-related quality of life in long-term rectal cancer survivors. J Sex Med. 2016;13:1071–1079. https://doi.org/10.1016/j.jsxm.2016.05.005
-
8. Ayaz‐Alkaya S. Overview of psychosocial problems in individuals with stoma: a review of literature. Int Wound J. 2019;16:243–249. https://doi.org/10.1111/iwj.13018
-
9. Petersén C, Carlsson E. Life with a stoma—coping with daily life: Experiences from focus group interviews. J Clin Nurs. 2021;30:2309–2319. https://doi.org/10.1111/jocn.15769
-
10. Lin S, Yin G, Chen L. The sexuality experience of stoma patients: a meta-ethnography of qualitative research. BMC Health Serv Res. 2023;23:489. https://doi.org/10.1186/s12913-023-09532-2
-
11. Kaya Ö, Aygin D. Stomanın cinsel yaşam üzerindeki etkileri. Androl Bul. 2020;22:194–198. https://doi.org/10.24898/tandro.2020.68984
-
12. Erkorkmaz ÜEİ, Demir O, Özdamar K, Sanisoğlu SY. Doğrulayıcı faktör analizi ve uyum indeksleri. Turk Klin J Med Sci. 2013;33:2010–2223. https://doi.org/10.5336/medsci.2011-26747
-
13. Secer I. Psikolojik test geliştirme ve uyarlama süreci: SPSS ve LISREL uygulamaları. Ankara: Anı yayıncılık.; 2015.
-
14. Symms MR, Rawl SM, Grant M, et al. Sexual health and quality of life among male veterans with intestinal ostomies. Clin Nurse Spec. 2008;22:30–40. https://doi.org/10.1097/01.NUR.0000304181.36568.a7
-
15. Vural F, Harputlu D, Karayurt O, et al. The impact of an ostomy on the sexual lives of persons with stomas: a phenomenological study. J Wound Ostomy Continence Nurs. 2016;43:381–384. https://doi.org/10.1097/WON.0000000000000236
-
16. DeVellis RF, Thorpe CT. Scale development: Theory and applications. 5th ed. Los Angeles: SAGE Publications; 2021.
-
17. Morgado FFdR, Campana ANNB, Tavares MdCGCF. Development and validation of the self-acceptance scale for persons with early blindness: the SAS-EB. PLoS One 2014;9:e106848. https://doi.org/10.1371/journal.pone.0106848
-
18. Davis LL. Instrument review: Getting the most from a panel of experts. Appl Nurs Res. 1992;5:194–197. https://doi.org/10.1016/S0897-1897(05)80008-4
-
19. Bastos JL, Celeste RK, Faerstein E, et al. Racial discrimination and health: a systematic review of scales with a focus on their psychometric properties. Soc Sci Med. 2010;70:1091–1099. https://doi.org/10.1016/j.socscimed.2009.12.020
-
20. Morgado FF, Meireles JF, Neves CM, et al. Scale development: ten main limitations and recommendations to improve future research practices. Psicol Reflex Crit. 2017;30(3):1-20. https://doi.org/10.1186/s41155-016-0057-1
-
21. Çolakoğlu ÖM, Büyükekşi C. Evaluation of factors effecting exploratory factor analysis process. Karaelmas J Educ Sci. 2014;2:58–64. https://dergipark.org.tr/en/download/article-file/2160889
-
22. Karakoç AGDFY, Dönmez L. Fundamental principles in scale development studies. Tıp Eğitimi Dünyası 2014;13:39–49. https://dergipark.org.tr/en/download/article-file/199275
-
23. Burch J. Intimacy for patients with a stoma. Br J Nurs. 2016;25:S26. https://doi.org/10.12968/bjon.2016.25.17.S26
-
24. Silva ALd, Faustino AM, Sousa JB, et al. Marital interactions in partners of ostomized patients. J Coloproctol (Rio J). 2014;34:210–215. https://doi.org/10.1016/j.jcol.2014.08.005
-
25. Sutsunbuloglu E, Vural F. Evaluation of sexual satisfaction and function in patients following stoma surgery: a descriptive study. Sex Disabil. 2018;36:349–361. https://doi.org/10.1007/s11195-018-9544-x
-
26. Du X, Wang D, Du H, et al. The correlation between intimate relationship, self-disclosure, and adaptability among colorectal cancer enterostomy patients. Medicine (Baltimore). 2021;100(31):e25904. https://doi.org/10.1097/MD.0000000000025904
-
27. Hueso-Montoro C, Bonill-de-Las-Nieves C, Celdrán-Mañas M, et al. Experiences and coping with the altered body image in digestive stoma patients. Rev Lat Am Enfermagem. 2016;24:e2840. https://doi.org/10.1590/1518-8345.1276.2840
-
28. Gozuyesil E, Taylan S, Manav AI, et al. The evaluation of self-esteem and sexual satisfaction of patients with bowel stoma in Turkey: Self-esteem sexual satisfaction in patients with bowel stoma. Sex Disabil. 2017;35:157–169. https://doi.org/10.1007/s11195-016-9473-5
-
29. Albaugh JA, Tenfelde S, Hayden DM. Sexual dysfunction and intimacy for ostomates. Clin Colon Rectal Surg. 2017;30:201–206. https://doi.org/10.1055/s-0037-1598161
-
30. Sü Sürücü L, Maslakçı A. Validity and reliability in quantitative research. Bus Manag Stud Int J. 2020;8:2694–2726. https://doi.org/10.15295/bmij.v8i3.1540
Stomaya Özgü Cinsel Yaşam Kalitesi Ölçeğinin Geliştirilmesi ve Psikometrik Değerlendirilmesi
Yıl 2025,
Seçil Taylan
,
İlknur Özkan
,
Selma Öncel
,
Ömer Alabaz
Öz
Amaç: Bu çalışma, stomaya özgü bir Cinsel Yaşam Kalitesi Ölçeği geliştirmek amacıyla yapılmıştır.
Yöntemler: Çalışma, metodolojik bir tasarım kullanılarak gerçekleştirilmiş ve bağırsak stomalı 179 kişiyi kapsamıştır.
Bulgular: Yapılan açıklayıcı faktör analizi sonucunda, ölçeğin dört alt boyuttan (eş/partnerle ilgili endişeler, beden imajında bozulma, cinsel işlev bozukluğu ve olumsuz duygular) ve bu boyutları açıklayan 24 maddeden oluştuğu tespit edilmiştir. Tüm faktörlerin birlikte toplam varyansın %84,923’ünü açıkladığı belirlenmiştir. Doğrulayıcı faktör analizi modelinin iyi bir uyum gösterdiği ve faktör yüklerinin 0,584 ile 0,975 arasında değiştiği saptanmıştır. Alt boyutların Cronbach alfa değerlerinin 0,910 ile 0,981 arasında olduğu ve bu değerlerin yüksek iç tutarlılık gösterdiği bulunmuştur.
Sonuç: Stoma Cinsel Yaşam Kalitesi Ölçeği’nin genel psikometrik değerlendirmesi sonucunda, bağırsak stomalı bireylerin cinsel yaşam kalitesini belirlemek için geçerli ve güvenilir bir araç olduğu belirlenmiştir.
Etik Beyan
Before the study was initiated, the written permission of the Medical Faculty Noninvasive Clinical Studies Ethics Committee of the University (KAEK-794/10.11.2021) and the Ostomy Surgery Society, and verbal consent of the individuals with an intestinal stoma who participated in the study were obtained.
Destekleyen Kurum
The authors report that this study was conducted without any financial support.
Teşekkür
We sincerely thank all stoma patients who participated in this study and contributed valuable insights.
Kaynakça
-
1. Bolin A, Whelehan P, Vernon M, Antoine K. Human sexuality: Biological, psychological, and cultural perspectives. 2nd ed. New York: Routledge; 2021.
-
2. Yilmaz E, Çelebi D, Kaya Y, et al. A descriptive, cross-sectional study to assess quality of life and sexuality in Turkish patients with a colostomy. Ostomy Wound Manage. 2017;63:22–29. https://doi.org/10.25270/owm.2017.08.2229
-
3. Paszyńska W, Zborowska K, Czajkowska M, et al. Quality of sex life in intestinal stoma patients—a literature review. Int J Environ Res Public Health. 2023;20(3):2660. https://doi.org/10.3390/ijerph20032660
-
4. Saracco C, Rastelli G, Roveron G, et al. Sexual function in patients with stoma and its consideration among their caregivers: A cross-sectional study. Sex Disabil. 2019;37:415–427. https://doi.org/10.1007/s11195-019-09574-7
-
5. Bahayi K, Attaallah W, Yardımcı S, et al. Depression, anxiety, sexual dysfunction and quality of life in patients with ileostomy or colostomy. Turk J Colorectal Dis. 2018;28:69-75. https://go.gale.com/ps/i.do?id=GALE%7CA546068448
-
6. Zhu X, Tang X, Chen Y, et al. Sexual experiences of Chinese patients living with an ostomy. J Wound Ostomy Continence Nurs. 2017;44:469–474. https://doi.org/10.1097/WON.0000000000000357
-
7. Sun V, Grant M, Wendel CS, et al. Sexual function and health-related quality of life in long-term rectal cancer survivors. J Sex Med. 2016;13:1071–1079. https://doi.org/10.1016/j.jsxm.2016.05.005
-
8. Ayaz‐Alkaya S. Overview of psychosocial problems in individuals with stoma: a review of literature. Int Wound J. 2019;16:243–249. https://doi.org/10.1111/iwj.13018
-
9. Petersén C, Carlsson E. Life with a stoma—coping with daily life: Experiences from focus group interviews. J Clin Nurs. 2021;30:2309–2319. https://doi.org/10.1111/jocn.15769
-
10. Lin S, Yin G, Chen L. The sexuality experience of stoma patients: a meta-ethnography of qualitative research. BMC Health Serv Res. 2023;23:489. https://doi.org/10.1186/s12913-023-09532-2
-
11. Kaya Ö, Aygin D. Stomanın cinsel yaşam üzerindeki etkileri. Androl Bul. 2020;22:194–198. https://doi.org/10.24898/tandro.2020.68984
-
12. Erkorkmaz ÜEİ, Demir O, Özdamar K, Sanisoğlu SY. Doğrulayıcı faktör analizi ve uyum indeksleri. Turk Klin J Med Sci. 2013;33:2010–2223. https://doi.org/10.5336/medsci.2011-26747
-
13. Secer I. Psikolojik test geliştirme ve uyarlama süreci: SPSS ve LISREL uygulamaları. Ankara: Anı yayıncılık.; 2015.
-
14. Symms MR, Rawl SM, Grant M, et al. Sexual health and quality of life among male veterans with intestinal ostomies. Clin Nurse Spec. 2008;22:30–40. https://doi.org/10.1097/01.NUR.0000304181.36568.a7
-
15. Vural F, Harputlu D, Karayurt O, et al. The impact of an ostomy on the sexual lives of persons with stomas: a phenomenological study. J Wound Ostomy Continence Nurs. 2016;43:381–384. https://doi.org/10.1097/WON.0000000000000236
-
16. DeVellis RF, Thorpe CT. Scale development: Theory and applications. 5th ed. Los Angeles: SAGE Publications; 2021.
-
17. Morgado FFdR, Campana ANNB, Tavares MdCGCF. Development and validation of the self-acceptance scale for persons with early blindness: the SAS-EB. PLoS One 2014;9:e106848. https://doi.org/10.1371/journal.pone.0106848
-
18. Davis LL. Instrument review: Getting the most from a panel of experts. Appl Nurs Res. 1992;5:194–197. https://doi.org/10.1016/S0897-1897(05)80008-4
-
19. Bastos JL, Celeste RK, Faerstein E, et al. Racial discrimination and health: a systematic review of scales with a focus on their psychometric properties. Soc Sci Med. 2010;70:1091–1099. https://doi.org/10.1016/j.socscimed.2009.12.020
-
20. Morgado FF, Meireles JF, Neves CM, et al. Scale development: ten main limitations and recommendations to improve future research practices. Psicol Reflex Crit. 2017;30(3):1-20. https://doi.org/10.1186/s41155-016-0057-1
-
21. Çolakoğlu ÖM, Büyükekşi C. Evaluation of factors effecting exploratory factor analysis process. Karaelmas J Educ Sci. 2014;2:58–64. https://dergipark.org.tr/en/download/article-file/2160889
-
22. Karakoç AGDFY, Dönmez L. Fundamental principles in scale development studies. Tıp Eğitimi Dünyası 2014;13:39–49. https://dergipark.org.tr/en/download/article-file/199275
-
23. Burch J. Intimacy for patients with a stoma. Br J Nurs. 2016;25:S26. https://doi.org/10.12968/bjon.2016.25.17.S26
-
24. Silva ALd, Faustino AM, Sousa JB, et al. Marital interactions in partners of ostomized patients. J Coloproctol (Rio J). 2014;34:210–215. https://doi.org/10.1016/j.jcol.2014.08.005
-
25. Sutsunbuloglu E, Vural F. Evaluation of sexual satisfaction and function in patients following stoma surgery: a descriptive study. Sex Disabil. 2018;36:349–361. https://doi.org/10.1007/s11195-018-9544-x
-
26. Du X, Wang D, Du H, et al. The correlation between intimate relationship, self-disclosure, and adaptability among colorectal cancer enterostomy patients. Medicine (Baltimore). 2021;100(31):e25904. https://doi.org/10.1097/MD.0000000000025904
-
27. Hueso-Montoro C, Bonill-de-Las-Nieves C, Celdrán-Mañas M, et al. Experiences and coping with the altered body image in digestive stoma patients. Rev Lat Am Enfermagem. 2016;24:e2840. https://doi.org/10.1590/1518-8345.1276.2840
-
28. Gozuyesil E, Taylan S, Manav AI, et al. The evaluation of self-esteem and sexual satisfaction of patients with bowel stoma in Turkey: Self-esteem sexual satisfaction in patients with bowel stoma. Sex Disabil. 2017;35:157–169. https://doi.org/10.1007/s11195-016-9473-5
-
29. Albaugh JA, Tenfelde S, Hayden DM. Sexual dysfunction and intimacy for ostomates. Clin Colon Rectal Surg. 2017;30:201–206. https://doi.org/10.1055/s-0037-1598161
-
30. Sü Sürücü L, Maslakçı A. Validity and reliability in quantitative research. Bus Manag Stud Int J. 2020;8:2694–2726. https://doi.org/10.15295/bmij.v8i3.1540