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Factors determining the quality of service in pediatric palliative care

Yıl 2022, Cilt: 3 Sayı: 4, 372 - 375, 26.12.2022
https://doi.org/10.47582/jompac.1192801

Öz

Pediatric palliative care is a recently developing sub-specialty in our country and many countries around the world. The number of children with life-threatening conditions is increasing gradually in our country. Determining the quality of palliative care provided to these patients will increase the quality of this care. The aim of this review is to define the quality standards of pediatric palliative care.

Kaynakça

  • Population Reference Bureau. 2014 World population data. 2014. Available from http://www.prb.org/pdf14/2014- world-population-data-sheet_eng.pdf.
  • Connor SR, Downing J and Marston J. Estimating the global need for palliative care for children: a cross-sectional analysis. J Pain Symptom Manag 2017; 53: 171-7.
  • Organization WH. Integrating palliative care and symptom relief into paediatrics: a WHO guide for health-care planners, implementers and managers 2018.
  • World Health Organization (WHO) definition of palliative care for Children. http://www.who.int/cancer/palliative/definition/en/accessed . Oct 23, 2018.
  • Knaul FM, Farmer PE, Krakauer EL, et al. Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report. The Lancet 2018; 391: 1391-454.
  • Knapp C, Woodworth L, Wright M, et al. Pediatric palliative care provision around the world: a systematic review. Pediatric Blood Cancer 2011; 57: 361-8.
  • Arias-Casais N, Garralda E, Pons JJ, et al. Mapping paediatric palliative care development in the WHO-European region: Children living in low-middle income countries are less likely to access it. J Pain Symptom Manag 2020.
  • Connor S. Global Atlas of Palliative Care, 2nd Ed 2020. 2. ed. 2020.
  • Craig F, Huijer HA-S, Benini F, et al. IMPaCCT: standards for paediatric palliative care in Europa. Eur J Palliat Care 2007; 14: 109-14.
  • Harputluoğlu N, Özdemir SA and Çelik T. Çocuk Palyatif Bakım Hakkında Çocuk Hekimlerinin Bilgi Düzeyi. Çocuk Acil ve Yoğun Bakım Derg 2020;7: 112-6
  • Jones BL, Contro N and Koch KD. The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring. Pediatrics 2014; 133: S8-S15.
  • Mathews L. Pain in children: neglected, unaddressed and mismanaged. Ind J Palliat Care 2011; 17: S70.
  • Ekim A and Ocakcı AF. Knowledge and attitudes regarding pain management of pediatric nurses in Turkey. Pain Manag Nurs 2013; 14: e262-e7.
  • Mandic CG, Johaningsmeir S, Corden TE, Earle A, Acevedo-Garcia D and Gordon JB. Impact of caring for children with medical complexity on parents’ employment and time. Community, Work & Family 2017; 20: 444-58.
  • Woodgate RL, Edwards M, Ripat JD, Borton B and Rempel G. Intense parenting: a qualitative study detailing the experiences of parenting children with complex care needs. BMC pediatrics 2015; 15: 1-15.
  • Pediatric palliative care and hospice care commitments, guidelines, and recommendations. Pediatrics 2013; 132: 966-72.
  • Himelstein BP, Hilden JM, Boldt AM and Weissman D. Pediatric palliative care. New Engl J Med 2004; 350: 1752-62.

Pediatrik palyatif bakımda verilen hizmet kalitesini belirleyen faktörler

Yıl 2022, Cilt: 3 Sayı: 4, 372 - 375, 26.12.2022
https://doi.org/10.47582/jompac.1192801

Öz

Pediatrik palyatif bakım ülkemizde ve dünyanın pek çok ülkesinde yeni gelişen bir alt uzmanlık alanıdır. Hayatı tehdit eden hastalığı olan çocukların sayısı ülkemizde de gün geçtikçe artmaktadır. Bu hastalara verilecek olan palyatif bakımın kalitesini belirlenmesi, verilecek hizmetin kalitesini arttıracaktır. Bu derlemenin amacı pediatrik palyatif bakımın hizmet kalite standartlarını tanımlamaktır.

Kaynakça

  • Population Reference Bureau. 2014 World population data. 2014. Available from http://www.prb.org/pdf14/2014- world-population-data-sheet_eng.pdf.
  • Connor SR, Downing J and Marston J. Estimating the global need for palliative care for children: a cross-sectional analysis. J Pain Symptom Manag 2017; 53: 171-7.
  • Organization WH. Integrating palliative care and symptom relief into paediatrics: a WHO guide for health-care planners, implementers and managers 2018.
  • World Health Organization (WHO) definition of palliative care for Children. http://www.who.int/cancer/palliative/definition/en/accessed . Oct 23, 2018.
  • Knaul FM, Farmer PE, Krakauer EL, et al. Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report. The Lancet 2018; 391: 1391-454.
  • Knapp C, Woodworth L, Wright M, et al. Pediatric palliative care provision around the world: a systematic review. Pediatric Blood Cancer 2011; 57: 361-8.
  • Arias-Casais N, Garralda E, Pons JJ, et al. Mapping paediatric palliative care development in the WHO-European region: Children living in low-middle income countries are less likely to access it. J Pain Symptom Manag 2020.
  • Connor S. Global Atlas of Palliative Care, 2nd Ed 2020. 2. ed. 2020.
  • Craig F, Huijer HA-S, Benini F, et al. IMPaCCT: standards for paediatric palliative care in Europa. Eur J Palliat Care 2007; 14: 109-14.
  • Harputluoğlu N, Özdemir SA and Çelik T. Çocuk Palyatif Bakım Hakkında Çocuk Hekimlerinin Bilgi Düzeyi. Çocuk Acil ve Yoğun Bakım Derg 2020;7: 112-6
  • Jones BL, Contro N and Koch KD. The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring. Pediatrics 2014; 133: S8-S15.
  • Mathews L. Pain in children: neglected, unaddressed and mismanaged. Ind J Palliat Care 2011; 17: S70.
  • Ekim A and Ocakcı AF. Knowledge and attitudes regarding pain management of pediatric nurses in Turkey. Pain Manag Nurs 2013; 14: e262-e7.
  • Mandic CG, Johaningsmeir S, Corden TE, Earle A, Acevedo-Garcia D and Gordon JB. Impact of caring for children with medical complexity on parents’ employment and time. Community, Work & Family 2017; 20: 444-58.
  • Woodgate RL, Edwards M, Ripat JD, Borton B and Rempel G. Intense parenting: a qualitative study detailing the experiences of parenting children with complex care needs. BMC pediatrics 2015; 15: 1-15.
  • Pediatric palliative care and hospice care commitments, guidelines, and recommendations. Pediatrics 2013; 132: 966-72.
  • Himelstein BP, Hilden JM, Boldt AM and Weissman D. Pediatric palliative care. New Engl J Med 2004; 350: 1752-62.
Toplam 17 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Konular Sağlık Kurumları Yönetimi
Bölüm Review [en] Derleme [tr]
Yazarlar

Fatma Zehra Öztek Çelebi

Şanlıay Şahin 0000-0001-8418-1889

Yayımlanma Tarihi 26 Aralık 2022
Yayımlandığı Sayı Yıl 2022 Cilt: 3 Sayı: 4

Kaynak Göster

AMA Öztek Çelebi FZ, Şahin Ş. Pediatrik palyatif bakımda verilen hizmet kalitesini belirleyen faktörler. J Med Palliat Care / JOMPAC / Jompac. Aralık 2022;3(4):372-375. doi:10.47582/jompac.1192801

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