The Effect of an Application Based on Training and Progressive Muscle Relaxation Exercises on The Quality of Life, Perceived Stress and Ways of Coping of Caregivers of Mentally Disabled Individuals: A Randomized Controlled Study Protocol

Öz

Aim: It is a dynamic, multidimensional and diverse public health problem. It may arise as a temporary/permanent problem caused by a congenital or acute illness and injury, and may make individuals have to look after their disabled relatives. Caregivers carry a high risk of experiencing physical and psychological health problems. Indeed, caregivers reported higher care burden, stress, and lower quality of life than healthy child care providers. Practices that improve caregivers' knowledge of effective and safe caregiving strategies can reduce/prevent stress-related problems and improve their quality of life. Roy's Adaptation Model is one of the most widely used nursing models to increase quality of life, reduce stress and cope with various problems. The research was planned to determine the effect of an application based on education and progressive relaxation exercises on the quality of life, perceived stress and coping ways of caregivers of individuals with intellectual disabilities. Method: In the research; randomized controlled, 3 experiments, 1 control group, pretest-posttest experimental design will be used. The research sample will consist of 4 out of 10 rehabilitation centers selected using the cluster randomization method and the caregivers of the rehabilitated individuals with mental disabilities (39 individuals in each group). In the study, 4 weeks of model-based face-to-face training and relaxation exercises and 4 weeks of exercise counseling will be applied to the 1st Experimental Group. The 2nd Experimental Group will be accessed for 8 weeks by designing a mobile application that includes model-based training and relaxation exercises. 3. The Experimental Group will be provided with 4 weeks of face-to-face training and 4 weeks of mobile application access. No interference will be made to the Control Group. Data will be obtained by using Personal Information Form, Adult Caregiver Quality of Life Questionnaire, Perceived Stress Scale, Ways of Coping with Stress Questionnaire. The data will be evaluated with the SPSS 22 package program and statistical significance will be accepted as p<0.05. Results: When the study data is collected, the findings will be included. Conclusion and Suggestions: It is thought that the methods applied in this study are important in terms of increasing the quality of life of caregivers, reducing the stress of caregivers and helping them learn ways to cope with stress, and in this sense, it is a model that can provide evidence for future research.

Anahtar Kelimeler

• Intellectual disabled caregivers
• Model-based education
• Progressive relaxation exercises
• Life quality
• Mobile health

EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ

Öz

Amaç: Dinamik, çok boyutlu ve çeşitli bir halk sağlığı sorunudur. Doğuştan veya akut bir hastalık ve yaralanma kaynaklı meydana gelen geçici/kalıcı bir sorun olarak ortaya çıkıp bireyleri engelli yakınına bakmak durumunda bırakabilir. Bakım vericiler fiziksel ve psikolojik sağlık sorunları yaşama açısından yüksek oranda risk taşırlar. Nitekim bakım vericiler sağlıklı çocuk bakımı sağlayanlardan daha yüksek bakım yükü, stress ve daha düşük yaşam kalitesi bildirmişlerdir. Bakım vericilerin etkili ve güvenli bakım verme stratejileri hakkındaki bilgilerini geliştiren uygulamalar, stres kaynaklı sorunlarını azaltabilir/önleyebilir ve yaşam kalitelerini iyileştirebilir. Roy'un Adaptasyon modeli, yaşam kalitesini arttırma ve stresi azaltmada, çeşitli sorunlarla başa çıkmada en yaygın kullanılan hemşirelik modellerinden biridir. Araştırma, eğitim ve progresif gevşeme egzersizleri temelli bir uygulamanın zihinsel engelli bireylerin bakım vericilerinin yaşam kalitesi, algıladıkları stres ve başa çıkma yolları üzerine etkisini belirlemek amacıyla planlanmıştır. Yöntem: Araştırmada; randomize kontrollü, 3 deney, 1 kontrol gruplu, ön test-son test deneysel tasarım kullanılacaktır. Araştırma örneklemini 10 rehabilitasyon merkezinden 4’ü küme randomizasyon yöntemi kullanılarak seçilecek ve rehabilite edilen zihinsel engelli birey bakım vericileri (her grup 39 birey) oluşturacaktır. Araştırmada 1. Deney Grubu’na 4 hafta model temelli yüzyüze eğitim ve gevşeme egzersizi uygulamaları, ve 4 hafta egzersiz danışmanlığı uygulanacaktır. 2.Deney Grubu’na model temelli eğitim ve gevşeme egzersizlerinin yer aldığı mobil uygulama tasarlanarak 8 hafta erişimleri sağlanacaktır. 3. Deney Grubu’na yüzyüze 4 haftalık eğitim ve 4 haftalık mobil uygulamadan erişimleri sağlanacaktır. Kontrol Grubu’na müdehale yapılmayacaktır. Veriler Kişisel Bilgi Formu, Yetişkin Bakıcı Yaşam Kalitesi Anketi, Algılanan Stres Ölçeği, Stresle Başa Çıkma Yolları Anketi kullanılarak elde edilecektir. Veriler SPSS 22 paket programıyla değerlendirilecek ve istatistiksel anlamlılık p<0,05 kabul edilecektir. Bulgular: Çalışma verileri toplandığında bulgulara yer verilecektir. Sonuç ve Önerileri: Bu araştırmayla, uygulanan yöntemlerin, bakım vericilerin yaşam kalitesini artırması, bakım vericilerin stresini azaltması ve stresle başa çıkma yollarını öğrenmelerini sağlayacağı ve bu anlamda sonraki araştırmalara kanıt sağlayabilecek bir model olması açısından önemli olduğu düşünülmektedir.

Anahtar Kelimeler

• Zihinsel engelli bakım vericiler
• model temelli eğitim
• progresif gevşeme egzersizleri
• yaşam kalitesi
• mobil sağlık.

Destekleyen Kurum

Çalışma için herhangi bir kurum veya kuruluştan mali destek alınmamıştır.

Teşekkür

Yazarlar araştırmaya gönüllü olarak katılan tüm katılımcılara, rehabilitasyon merkezi müdürlerine, tez izleme komitesi ve mobil tasarımda yer alan hocalarımıza teşekkürlerini sunar.

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