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EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ

Yıl 2022, Cilt: 7 Sayı: 3, 993 - 1018, 30.12.2022
https://doi.org/10.47115/jshs.1125628

Öz

Amaç: Dinamik, çok boyutlu ve çeşitli bir halk sağlığı sorunudur. Doğuştan veya akut bir hastalık ve yaralanma kaynaklı meydana gelen geçici/kalıcı bir sorun olarak ortaya çıkıp bireyleri engelli yakınına bakmak durumunda bırakabilir. Bakım vericiler fiziksel ve psikolojik sağlık sorunları yaşama açısından yüksek oranda risk taşırlar. Nitekim bakım vericiler sağlıklı çocuk bakımı sağlayanlardan daha yüksek bakım yükü, stress ve daha düşük yaşam kalitesi bildirmişlerdir. Bakım vericilerin etkili ve güvenli bakım verme stratejileri hakkındaki bilgilerini geliştiren uygulamalar, stres kaynaklı sorunlarını azaltabilir/önleyebilir ve yaşam kalitelerini iyileştirebilir. Roy'un Adaptasyon modeli, yaşam kalitesini arttırma ve stresi azaltmada, çeşitli sorunlarla başa çıkmada en yaygın kullanılan hemşirelik modellerinden biridir. Araştırma, eğitim ve progresif gevşeme egzersizleri temelli bir uygulamanın zihinsel engelli bireylerin bakım vericilerinin yaşam kalitesi, algıladıkları stres ve başa çıkma yolları üzerine etkisini belirlemek amacıyla planlanmıştır.
Yöntem: Araştırmada; randomize kontrollü, 3 deney, 1 kontrol gruplu, ön test-son test deneysel tasarım kullanılacaktır. Araştırma örneklemini 10 rehabilitasyon merkezinden 4’ü küme randomizasyon yöntemi kullanılarak seçilecek ve rehabilite edilen zihinsel engelli birey bakım vericileri (her grup 39 birey) oluşturacaktır. Araştırmada 1. Deney Grubu’na 4 hafta model temelli yüzyüze eğitim ve gevşeme egzersizi uygulamaları, ve 4 hafta egzersiz danışmanlığı uygulanacaktır. 2.Deney Grubu’na model temelli eğitim ve gevşeme egzersizlerinin yer aldığı mobil uygulama tasarlanarak 8 hafta erişimleri sağlanacaktır. 3. Deney Grubu’na yüzyüze 4 haftalık eğitim ve 4 haftalık mobil uygulamadan erişimleri sağlanacaktır. Kontrol Grubu’na müdehale yapılmayacaktır. Veriler Kişisel Bilgi Formu, Yetişkin Bakıcı Yaşam Kalitesi Anketi, Algılanan Stres Ölçeği, Stresle Başa Çıkma Yolları Anketi kullanılarak elde edilecektir. Veriler SPSS 22 paket programıyla değerlendirilecek ve istatistiksel anlamlılık p<0,05 kabul edilecektir.
Bulgular: Çalışma verileri toplandığında bulgulara yer verilecektir.
Sonuç ve Önerileri: Bu araştırmayla, uygulanan yöntemlerin, bakım vericilerin yaşam kalitesini artırması, bakım vericilerin stresini azaltması ve stresle başa çıkma yollarını öğrenmelerini sağlayacağı ve bu anlamda sonraki araştırmalara kanıt sağlayabilecek bir model olması açısından önemli olduğu düşünülmektedir.

Destekleyen Kurum

Çalışma için herhangi bir kurum veya kuruluştan mali destek alınmamıştır.

Teşekkür

Yazarlar araştırmaya gönüllü olarak katılan tüm katılımcılara, rehabilitasyon merkezi müdürlerine, tez izleme komitesi ve mobil tasarımda yer alan hocalarımıza teşekkürlerini sunar.

Kaynakça

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The Effect of an Application Based on Training and Progressive Muscle Relaxation Exercises on The Quality of Life, Perceived Stress and Ways of Coping of Caregivers of Mentally Disabled Individuals: A Randomized Controlled Study Protocol

Yıl 2022, Cilt: 7 Sayı: 3, 993 - 1018, 30.12.2022
https://doi.org/10.47115/jshs.1125628

Öz

Aim: It is a dynamic, multidimensional and diverse public health problem. It may arise as a temporary/permanent problem caused by a congenital or acute illness and injury, and may make individuals have to look after their disabled relatives. Caregivers carry a high risk of experiencing physical and psychological health problems. Indeed, caregivers reported higher care burden, stress, and lower quality of life than healthy child care providers. Practices that improve caregivers' knowledge of effective and safe caregiving strategies can reduce/prevent stress-related problems and improve their quality of life. Roy's Adaptation Model is one of the most widely used nursing models to increase quality of life, reduce stress and cope with various problems. The research was planned to determine the effect of an application based on education and progressive relaxation exercises on the quality of life, perceived stress and coping ways of caregivers of individuals with intellectual disabilities.
Method: In the research; randomized controlled, 3 experiments, 1 control group, pretest-posttest experimental design will be used. The research sample will consist of 4 out of 10 rehabilitation centers selected using the cluster randomization method and the caregivers of the rehabilitated individuals with mental disabilities (39 individuals in each group). In the study, 4 weeks of model-based face-to-face training and relaxation exercises and 4 weeks of exercise counseling will be applied to the 1st Experimental Group. The 2nd Experimental Group will be accessed for 8 weeks by designing a mobile application that includes model-based training and relaxation exercises. 3. The Experimental Group will be provided with 4 weeks of face-to-face training and 4 weeks of mobile application access. No interference will be made to the Control Group. Data will be obtained by using Personal Information Form, Adult Caregiver Quality of Life Questionnaire, Perceived Stress Scale, Ways of Coping with Stress Questionnaire. The data will be evaluated with the SPSS 22 package program and statistical significance will be accepted as p<0.05.
Results: When the study data is collected, the findings will be included.
Conclusion and Suggestions: It is thought that the methods applied in this study are important in terms of increasing the quality of life of caregivers, reducing the stress of caregivers and helping them learn ways to cope with stress, and in this sense, it is a model that can provide evidence for future research.

Kaynakça

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  • Ghazawy, E. R., Mohammed, E. S., Mahfouz, E. M., Abdelrehim, M. G. (2020). Determinants of caregiver burden of persons with disabilities in a rural district in Egypt. BMC Public Health, 20(1), 1-10.
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  • İbrahimoğlu, Ö., Kanan, N. (2017). The effect of progressive muscle relaxation exercises after endotracheal extubation on vital signs and anxiety level in open heart surgery patients. Journal of the Turkish Society of Intensive Care/Türk Yogun Bakim Dernegi Dergisi, 15(3).
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  • Jacob, S., Sharma, S. (2018). Efficacy of progressive muscular relaxation on coping strategies and management of stress, anxiety and depression. Int J Indian Psychol, 6, 106-124.
  • Ji, B., Sun, M., Yi, R., Tang, S. (2014). Multidisciplinary parent education for caregivers of children with autism spectrum disorders. Archives of Psychiatric Nursing, 28(5), 319-326.
  • Joseph, S., Becker, S., Elwick, H., & Silburn, R. (2012). Adult carers quality of life questionnaire (AC-QoL): development of an evidence-based tool. Mental Health Review Journal, 17, 57-69.
  • Karaaslan Eşer, A. (2021). Kanser tedavisinde oral antikanser ilaç kullanan hastalar için geliştirilen mobil uygulamanın ilaç uyumu ve semptomlar üzerine etkisi. Sağlık Bilimleri Üniversitesi, Hamidiye Sağlık Bilimleri Enstitüsü, Hemşirelik Ana Bilim Dalı, Hemşirelik Esasları, Doktora tezi, İstanbul.
  • Kleefman, M., Jansen, D. E., Stewart, R. E., & Reijneveld, S. A. (2014). The effectiveness of Stepping Stones Triple P parenting support in parents of children with borderline to mild intellectual disability and psychosocial problems: a randomized controlled trial. BMC Medicine, 12(1), 1-10.
  • Kramer, J. M., van Bokhoven, H. (2009). Genetic and epigenetic defects in mental retardation. The International Journal of Biochemistry & Cell Biology, 41(1), 96-107.
  • Lai, M. H. (2021). Bootstrap confidence intervals for multilevel standardized effect size. Multivariate Behavioral Research, 56(4), 558-578.
  • Lee, M. H., Matthews, A. K., Park, C. (2019). Determinants of health-related quality of life among mothers of children with cerebral palsy. Journal of Pediatric Nursing, 44, 1-8.
  • Lee, M. H., Park, C., Matthews, A. K., Hsieh, K. (2017). Differences in physical health, and health behaviors between family caregivers of children with and without disabilities. Disability and Health Journal, 10(4), 565-570.
  • Liu, K., Chen, Y., Wu, D., Lin, R., Wang, Z., Pan, L. (2020). Effects of progressive muscle relaxation on anxiety and sleep quality in patients with COVID-19. Complementary Therapies in Clinical Practice, 39, 101-132.
  • Lok, N., Buldukoglu, K., Barcin, E. (2020). Effects of the cognitive stimulation therapy based on Roy's adaptation model on Alzheimer's patients’ cognitive functions, coping‐adaptation skills, and quality of life: A randomized controlled trial. Perspectives in Psychiatric Care, 56(3), 581-592.
  • Marcolino, M. S., Oliveira, J. A. Q., D'Agostino, M., Ribeiro, A. L., Alkmim, M. B. M., Novillo-Ortiz, D. (2018). The impact of mHealth interventions: systematic review of systematic reviews. JMIR mHealth and uHealth, 6(1), e23.
  • Mohammadi, K., Mehralian, H. A., Abolhasani, S., Khairi, S., Aghabozorgi, F. (2019). Investigation the effect of program based on Roy’s adaptation model on general health of offspring of people with multiple sclerosis. Journal of Clinical Nursing and Midwifery, 8(3).
  • Mowla, F., Khanjari, S., Inanlou, M. (2017). Contribution of benson's relaxation technique and brief psycho-educational intervention on quality of life of primary caregivers of Iranian children with chronic diseases. Journal of Pediatric Nursing, 35, 65-71.
  • Nobakht, Z., Rassafiani, M., Hosseini, S. A., Hosseinzadeh, S. (2020). A web-based daily care training to improve the quality of life of mothers of children with cerebral palsy: A randomized controlled trial. Research in Developmental Disabilities, 105, 103731.
  • Novais, P. G. N., Batista, K. D. M., Grazziano, E. D. S., Amorim, M. H. C. (2016). The effects of progressive muscular relaxation as a nursing procedure used for those who suffer from stress due to multiple sclerosis. Revista Latino-Americana de Enfermagem, 24.
  • Özgündöndü, B., Metin, Z. G. (2019). Effects of progressive muscle relaxation combined with music on stress, fatigue, and coping styles among intensive care nurses. Intensive and Critical Care Nursing, 54, 54-63.
  • Patel, D.R., Greydanus, D.E., Merrick, J., Rubin, I. L. (2016). “ntroduction to intellectual and developmental disabilities. Editors: Rubin, I. L., Merrick, J., Greydanus, D. E. Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. p.5-12. Cham: Springer.
  • Patel, D. R., Apple, R., Kanungo, S., Akkal, A. 2018. Intellectual disability: definitions, evaluation and principles of treatment. Pediatric Medicine, 1(11), 10-21037/pm.2018.12.02.
  • Patel, D. R., Cabral, M. D., Ho, A., Merrick, J. (2020). A clinical primer on intellectual disability. Translational Pediatrics, 9(1), 23.
  • Perakam, S., Devpura, G., Manohar, S., Kondapalli, A. (2019). The effect of Jacobson’s progressive muscle relaxation technique on depression in diabesity patients. Int J Health Sci Res, 9(3), 34-41.
  • Pisula, E., Porębowicz-Do, A. (2017). Family functioning, parenting stress and quality of life in mothers and fathers of Polish children with high functioning autism or Asperger syndrome. PLoS ONE, 12(10), e0186536.
  • Ramachandran, A., Vyas, N., Pothiyil, D. I. (2020). Stress among the caregivers of mentally disabled children visiting a rehabilitation centre in Chennai, Tamil Nadu–A cross-sectional study. Clinical Epidemiology and Global Health, 8(4), 1155-1157.
  • Riffin, C., Wolff, J. L., Estill, M., Prabhu, S., Pillemer, K. A. (2020). Caregiver Needs Assessment in Primary Care: Views of Clinicians, Staff, Patients, and Caregivers. Journal of the American Geriatrics Society, 68(6), 1262-1270.
  • Ron, K., Faltin, F., Ruggeri, F. (2012). Statistical methods in healthcare, edited by Ron Kenett. USA: Wiley. Rothwell, P. M. (2006). Factors that can affect the external validity of randomised controlled trials. PLoS Clinical Trials, 1(1): e9.
  • Roy, C., & Andrews, H. A. (1999). The Roy Adaptation Model. 2nd ed, Stamford: Appleton & Lange.
  • Roy, C. (2011). Research based on the Roy adaptation model: Last 25 years. Nursing Science Quarterly, 24(4), 312-320.
  • Şahin, N. H. & Durak, A. (1995). Stresle başa çıkma tarzları ölçeği: Üniversite öğrencileri için uyarlanması. Türk Psikoloji Dergisi, 10(34), 56-73.
  • Samadi, H., Samadi, S. A. (2020). Understanding different aspects of caregiving for individuals with autism spectrum disorders (ASDs) a narrative review of the literature. Brain Sciences, 10(8), 557.
  • Savari, K., Naseri, M., Savari, Y. (2021). Evaluating the role of perceived stress, social support, and resilience in predicting the quality of life among the parents of disabled children. International Journal of Disability, Development and Education, 1-15.
  • Scott, J. L., Dawkins, S., Quinn, M. G., Sanderson, K., Elliott, K. E. J., Stirling, C., ... Robinson, A. (2016). Caring for the carer: a systematic review of pure technology-based cognitive behavioral therapy (TB-CBT) interventions for dementia carers. Aging & Mental Health, 20(8), 793-803.
  • Shah, R., Ali, F. M., Finlay, A. Y, Salek, M. S. (2021). Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature. Health and Quality of Life Outcomes, 19(1), 1-35.
  • Stahl, J. E., Dossett, M. L., LaJoie, A. S., Denninger, J. W., Mehta, D. H., Goldman, R., ... & Benson, H. (2015). Relaxation response and resiliency training and its effect on healthcare resource utilization. PLoS One, 10(10), e0140212.
  • Tezcan, C. (2016). Sağlığa Yenilikçi Bir Bakış Açısı Mobil Sağlık, Tüsiad Yayınları, İstanbul, 29-71.
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  • Uğuz Selçuk, F. (2020). Kas iskelet sistemi sağlığı için akıllı telefon mobil uygulamasının geliştirilmesi. Pamukkale Üniversitesi, Sağlık Bilimleri Enstitüsü, Fizik Tedavi ve Rehabilitasyon Anabilim Dalı, Doktora Tezi, Deinizli.
  • Uzun, Ş. (2017). Sister Clista Roy: Adaptasyon Modeli, Hemşirelik teorileri ve modelleri. Editörler: Karadağ, A., Çalışkan, N., Baykara, Z. G. s. 370-442 İstanbul: Akademi Basın ve Yayıncılık.
  • Wicaturatmashudi, S., Erman, I. (2020). The effect of progressive muscle relaxation on stress in diabetes mellitus patient. Enfermería Clínica, 30, 104-107.
  • Wingo, B. C., Yang, D., Davis, D., Padalabalanarayanan, S., Hopson, B., Thirumalai, M., Rimmer, J. H. (2020). Lessons learned from a blended telephone/e-health platform for caregivers in promoting physical activity and nutrition in children with a mobility disability. Disability and Health Journal, 13(1), 100826.
  • Yılmaz, C. K., Aşiret, G. D., Çetinkaya, F., Oludağ, G., Kapucu, S. (2019). Effect of progressive muscle relaxation on the caregiver burden and level of depression among caregivers of older patients with a stroke: A randomized controlled trial. Japan Journal of Nursing Science, 16(2), 202-211.
  • Yılmaz, G. (2020). Mothers with disabled children: needs, stress levels and family functionality in rehabilitation. Scandinavian Journal of Caring Sciences, 34(2), 524-532.
  • Zablotsky, B., Bradshaw, C. P., Stuart, E. A. (2013). The association between mental health, stress, and coping supports in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(6), 1380–1393.
  • Zhao, L., Wu, H., Zhou, X., Wang, Q., Zhu, W. & Chen, J. (2012). Effects of progressive muscular relaxation training on anxiety, depression and quality of life of endometriosis patients under gonadotrophin‐releasing hormone agonist therapy. European Journal of Obstetrics & Gynecology and Reproductive Biology, 162, 211–215.
  • Zhou, K., Li, X., Li, J., Liu, M., Dang, S., Wang, D., Xin, X. (2015). A clinical randomized controlled trial of music therapy and progressive muscle relaxation training in female breast cancer patients after radical mastectomy: Results on depression, anxiety and length of hospital stay. European Journal of Oncology Nursing, 19(1), 54-59.
Toplam 85 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Konular Sağlık Kurumları Yönetimi
Bölüm Diğer
Yazarlar

Gönül Gökçay 0000-0003-0140-8668

Ayşe Çevirme 0000-0001-7116-2523

Erken Görünüm Tarihi 28 Aralık 2022
Yayımlanma Tarihi 30 Aralık 2022
Gönderilme Tarihi 3 Haziran 2022
Yayımlandığı Sayı Yıl 2022 Cilt: 7 Sayı: 3

Kaynak Göster

APA Gökçay, G., & Çevirme, A. (2022). EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ. Samsun Sağlık Bilimleri Dergisi, 7(3), 993-1018. https://doi.org/10.47115/jshs.1125628
AMA Gökçay G, Çevirme A. EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ. JSHS. Aralık 2022;7(3):993-1018. doi:10.47115/jshs.1125628
Chicago Gökçay, Gönül, ve Ayşe Çevirme. “EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ”. Samsun Sağlık Bilimleri Dergisi 7, sy. 3 (Aralık 2022): 993-1018. https://doi.org/10.47115/jshs.1125628.
EndNote Gökçay G, Çevirme A (01 Aralık 2022) EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ. Samsun Sağlık Bilimleri Dergisi 7 3 993–1018.
IEEE G. Gökçay ve A. Çevirme, “EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ”, JSHS, c. 7, sy. 3, ss. 993–1018, 2022, doi: 10.47115/jshs.1125628.
ISNAD Gökçay, Gönül - Çevirme, Ayşe. “EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ”. Samsun Sağlık Bilimleri Dergisi 7/3 (Aralık 2022), 993-1018. https://doi.org/10.47115/jshs.1125628.
JAMA Gökçay G, Çevirme A. EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ. JSHS. 2022;7:993–1018.
MLA Gökçay, Gönül ve Ayşe Çevirme. “EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ”. Samsun Sağlık Bilimleri Dergisi, c. 7, sy. 3, 2022, ss. 993-1018, doi:10.47115/jshs.1125628.
Vancouver Gökçay G, Çevirme A. EĞİTİM VE PROGRESİF GEVŞEME EGZERSİZLERİ TEMELLİ BİR UYGULAMANIN ZİHİNSEL ENGELLİ BİREYLERİN BAKIM VERİCİLERİNİN YAŞAM KALİTESİ, ALGILADIKLARI STRES VE BAŞA ÇIKMA YOLLARI ÜZERİNE ETKİSİ: RANDOMİZE KONTROLLÜ ÇALIŞMA PROTOKOLÜ. JSHS. 2022;7(3):993-1018.

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