Araştırma Makalesi
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Demans Hastalarının Bakım Verenlerinin Sosyal Medya Kullanımı

Yıl 2026, Cilt: 9 Sayı: 2, 276 - 283, 25.03.2026
https://doi.org/10.38108/ouhcd.1472294
https://izlik.org/JA75CS52YU

Öz

Amaç: Bu çalışma, Ocak ve Şubat 2022 tarihleri arasında Facebook gruplarındaki paylaşımları analiz ederek Alzheimer hastalığı ve ilişkili demans hastalarının bakım verenlerinin en sık karşılaştığı sorunları ortaya çıkarmak amacıyla yürütülmüştür.
Yöntem: Facebook gruplarında katılımcıların paylaşımları "Alzheimer", "Demans", "Alzheimer hastasının bakımı", "Demans hastasının bakımı" anahtar sözcükleri ile taranmıştır. Facebook'un dokuz grup hesabında 24.912 kullanıcısı ve 50.107 paylaşımı bulunmaktadır. Facebook gruplarındaki paylaşımlar belirlendikten sonra paylaşımların modifiye tematik analizi açık ve eksenel kodlama yöntemleri kullanılarak yapılmıştır.
Bulgular: Tematik analize göre paylaşımların %45,4'ü bilgi istemek, %32,0'ı çaresizlik, %22.6'sı destek aramak ve destek sağlamak için yazılmıştır. Sonuç olarak paylaşımlar deneyimleri paylaşmak, benzer deneyimleri yaşayan diğerlerinden destek almak/vermek ve yardım etmek için bir fırsat olmuştur.
Sonuç: Bu çalışmaya göre, Facebook grupları demanslı hastaların bakıcıları tarafından en çok bilgi arama, umutsuzluk, destek arama ve destek verme amacıyla kullanılmaktadır. İnsanların bu paylaşımları deneyimlerini paylaşma, destek alma ve sunma ve benzer şeyler yaşamış olanlardan yardım isteme yolu olarak kullandıkları tespit edilmiştir.

Kaynakça

  • Abdollahpour I, Nedjat S, Salimi Y, Noroozian M, Majdzadeh R. (2015). Which variable is the strongest adjusted predictor of quality of life in caregivers of patients with Dementia?. Psychogeriatrics, 15(1), 51-57. https://doi.org/10.1111/psyg.12094
  • Ar Y, Karanci AN. (2019). Turkish adult children as caregivers of parents with Alzheimer’s disease: Perceptions and caregiving experiences. Dementia, 18(3), 882- 902. https://doi.org/10.1177/147130121 7693400
  • Bradley EH, Curry LA, Devers KJ. (2007). Qualitative data analysis for health services research: Developing taxonomy, themes, and theory. Health Services Research, 42(4), 1758–1772. https://doi.org/10.1111 /j.1475-6773.2006.00684.x
  • Çınar S, Boztepe H. (2020). The use of social media among parents of infants with cleft lip and/or palate. Journal of Pediatric Nursing, 54, 91-96. https://doi.org/10.1016/j.pedn.2020.05.007
  • Corbin J, Strauss A. (2015). Basics of qualitative research: Techniques and procedures for developing grounded theory. Sage Publications.
  • Dauphinot V, Delphin-Combe F, Mouchoux C, Dorey A, Bathsavanis A, Makaroff Z, Krolak- Salmon P, et al. (2015). Risk factors of caregiver burden among patients with Alzheimer’s disease or related disorders: A cross-sectional study. Journal Alzheimer Disorder, 44(3), 907–906. https://doi.org/10.3233/JAD-142337
  • Duggan M, Page D. (2015). Mobile messaging and social media 2015. Pew Research Center. Pew Res Center's Internet Sci Tech. https://www.pewresearch.org/ internet/2015/08/19/mobile-messaging-and-social-media-2015/
  • Emmady PD, Schoo C, Tadi P. (2023.) Major Neurocognitive Disorder (Dementia). In: StatPearls. StatPearls Publishing, Treasure Island (FL), https://www.ncbi.nlm.nih.gov/books/NBK557444/
  • Erdelez S, Tanacković SF, Balog KP. (2019). Online behavior of the Alzheimer's disease patient caregivers on croatian online discussion forum. Proceedings of the Association for Information Science and Technology, 56(1), 78-88. https://doi.org/10.1002/ pra2.8
  • Esandi N, Nolan M, Canga-Armayor N, Pardavila-Belio MI, Canga-Armayor A. (2021). Family Dynamics and the Alzheimer’s Disease Experience. Journal of Family Nursing, 27(2), 124-135. https://doi.org/10. 1177/1074840720986611
  • Gao C, Chapagain NY, Scullin MK. (2019). Sleep duration and sleep quality in caregivers of patients with dementia: A systematic review and meta-analysis. JAMA network open, 2(8), e199891-e199891. https://doi.org/10.1001/jamanetworkopen .2019.9891
  • Gencer ZT, Daşlı Y, Biçer EB. (2019). New approaches in health communication: Using dıgıtal media. Journal of Selcuk University Vocational School of Social Sciences, 22 (1), 42-52.
  • Geysi A. (2019). The role of social media in health communication: investigation of social media usage of health institutions in Kocaeli. Kocaeli University Institute of Social Sciences, Department of Public Relations and Publicity, Master's Thesis.
  • Iribarren S, Stonbraker S, Suero-Tejeda N, Granja M, Luchsinger JA, Mittelman M, Lucero R, et al. (2019). Information, communication, and online tool needs of Hispanic family caregivers of individuals with Alzheimer’s disease and related Dementias. Informatics for Health and Social Care, 44(2), 115-134.
  • Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. (2013). A new dimension of health care: Systematic review of the uses, benefits, and limitations of social media for health communication. Journal of Medical Internet Research, 15(4), 1933. https://doi.org/10.2196/jmir.1933
  • Novais T, Dauphinot V, Krolak-Salmon P, Mouchoux C. (2017). How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies. BMC Geriatrics, 17(86), 1-18. https://doi.org/10.1186/s12 877-017-0481-9
  • Soner S, Aykut S. (2017). Alzheimer's disease-processed caregiver family members' difficulties and social work. Ahi Evran University Journal of Social Sciences Institute, 3(2), 375-387.
  • Soong A, Au ST, Kyaw BM, Theng YL, Car LT. (2020). Information needs and information seeking behaviour of people with Dementia and their non-professional caregivers: a scoping review. BMC Geriatrics, 20(1), 1-17. https://doi.org/10.1186/s12877-020-1454-y
  • Tulek, Z., Baykal, D., Erturk, S., Bilgic, B., Hanagasi, H., & Gurvit, I. H. (2020). Caregiver burden, quality of life and related factors in family caregivers of dementia patients in Turkey. Issues in mental health nursing, 41(8), 741-749.
  • Yorulmaz E, Dirik G. (2021). Dementia caregivers and cognitive behavioral therapy: A systematic review. Current Approaches in Psychiatry, 13(2), 170-191. https://doi.org/10.18863/pgy.732086

Social Media Use of Caregivers of Dementia Patients

Yıl 2026, Cilt: 9 Sayı: 2, 276 - 283, 25.03.2026
https://doi.org/10.38108/ouhcd.1472294
https://izlik.org/JA75CS52YU

Öz

Objective: This study was carried out to reveal the most common problems of caregivers of Alzheimer's disease and related Dementia patients by analyzing the posts in Facebook groups between January and February 2022.
Methods: In the Facebook groups, the posts of the participants were scanned with the keywords "Alzheimer", "Dementia", "care of the patient with Alzheimer "care of the patient with Dementia". Facebook has 24.912 users and 50.107 posts in nine group accounts. After the posts in the Facebook groups were determined, the modified thematic analysis of the posts was made using open and axial coding methods.
Results: According to the thematic analysis, 45.4% of the posts were written to ask for information, 32.0% to to express helplessness, 22.6 % to seek and provide support. As a result, the posts were an opportunity to share experiences, to receive/give support and help from others with similar experiences.
Conclusions: According to this study, Facebook groups are most commonly used by caregivers of patients with dementia for information seeking, dejection, support seeking, and support giving. It has been established that people use the posts as a way to exchange experiences, get and offer support, and ask for assistance from others who have gone through similar things.
Keywords: Nursing, patient care, patient with alzheimer/dementia

Kaynakça

  • Abdollahpour I, Nedjat S, Salimi Y, Noroozian M, Majdzadeh R. (2015). Which variable is the strongest adjusted predictor of quality of life in caregivers of patients with Dementia?. Psychogeriatrics, 15(1), 51-57. https://doi.org/10.1111/psyg.12094
  • Ar Y, Karanci AN. (2019). Turkish adult children as caregivers of parents with Alzheimer’s disease: Perceptions and caregiving experiences. Dementia, 18(3), 882- 902. https://doi.org/10.1177/147130121 7693400
  • Bradley EH, Curry LA, Devers KJ. (2007). Qualitative data analysis for health services research: Developing taxonomy, themes, and theory. Health Services Research, 42(4), 1758–1772. https://doi.org/10.1111 /j.1475-6773.2006.00684.x
  • Çınar S, Boztepe H. (2020). The use of social media among parents of infants with cleft lip and/or palate. Journal of Pediatric Nursing, 54, 91-96. https://doi.org/10.1016/j.pedn.2020.05.007
  • Corbin J, Strauss A. (2015). Basics of qualitative research: Techniques and procedures for developing grounded theory. Sage Publications.
  • Dauphinot V, Delphin-Combe F, Mouchoux C, Dorey A, Bathsavanis A, Makaroff Z, Krolak- Salmon P, et al. (2015). Risk factors of caregiver burden among patients with Alzheimer’s disease or related disorders: A cross-sectional study. Journal Alzheimer Disorder, 44(3), 907–906. https://doi.org/10.3233/JAD-142337
  • Duggan M, Page D. (2015). Mobile messaging and social media 2015. Pew Research Center. Pew Res Center's Internet Sci Tech. https://www.pewresearch.org/ internet/2015/08/19/mobile-messaging-and-social-media-2015/
  • Emmady PD, Schoo C, Tadi P. (2023.) Major Neurocognitive Disorder (Dementia). In: StatPearls. StatPearls Publishing, Treasure Island (FL), https://www.ncbi.nlm.nih.gov/books/NBK557444/
  • Erdelez S, Tanacković SF, Balog KP. (2019). Online behavior of the Alzheimer's disease patient caregivers on croatian online discussion forum. Proceedings of the Association for Information Science and Technology, 56(1), 78-88. https://doi.org/10.1002/ pra2.8
  • Esandi N, Nolan M, Canga-Armayor N, Pardavila-Belio MI, Canga-Armayor A. (2021). Family Dynamics and the Alzheimer’s Disease Experience. Journal of Family Nursing, 27(2), 124-135. https://doi.org/10. 1177/1074840720986611
  • Gao C, Chapagain NY, Scullin MK. (2019). Sleep duration and sleep quality in caregivers of patients with dementia: A systematic review and meta-analysis. JAMA network open, 2(8), e199891-e199891. https://doi.org/10.1001/jamanetworkopen .2019.9891
  • Gencer ZT, Daşlı Y, Biçer EB. (2019). New approaches in health communication: Using dıgıtal media. Journal of Selcuk University Vocational School of Social Sciences, 22 (1), 42-52.
  • Geysi A. (2019). The role of social media in health communication: investigation of social media usage of health institutions in Kocaeli. Kocaeli University Institute of Social Sciences, Department of Public Relations and Publicity, Master's Thesis.
  • Iribarren S, Stonbraker S, Suero-Tejeda N, Granja M, Luchsinger JA, Mittelman M, Lucero R, et al. (2019). Information, communication, and online tool needs of Hispanic family caregivers of individuals with Alzheimer’s disease and related Dementias. Informatics for Health and Social Care, 44(2), 115-134.
  • Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. (2013). A new dimension of health care: Systematic review of the uses, benefits, and limitations of social media for health communication. Journal of Medical Internet Research, 15(4), 1933. https://doi.org/10.2196/jmir.1933
  • Novais T, Dauphinot V, Krolak-Salmon P, Mouchoux C. (2017). How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies. BMC Geriatrics, 17(86), 1-18. https://doi.org/10.1186/s12 877-017-0481-9
  • Soner S, Aykut S. (2017). Alzheimer's disease-processed caregiver family members' difficulties and social work. Ahi Evran University Journal of Social Sciences Institute, 3(2), 375-387.
  • Soong A, Au ST, Kyaw BM, Theng YL, Car LT. (2020). Information needs and information seeking behaviour of people with Dementia and their non-professional caregivers: a scoping review. BMC Geriatrics, 20(1), 1-17. https://doi.org/10.1186/s12877-020-1454-y
  • Tulek, Z., Baykal, D., Erturk, S., Bilgic, B., Hanagasi, H., & Gurvit, I. H. (2020). Caregiver burden, quality of life and related factors in family caregivers of dementia patients in Turkey. Issues in mental health nursing, 41(8), 741-749.
  • Yorulmaz E, Dirik G. (2021). Dementia caregivers and cognitive behavioral therapy: A systematic review. Current Approaches in Psychiatry, 13(2), 170-191. https://doi.org/10.18863/pgy.732086
Toplam 20 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Ruh Sağlığı Hemşireliği
Bölüm Araştırma Makalesi
Yazarlar

Yeliz Sürme 0000-0002-0851-0254

Eda Albayrak Günday 0000-0002-0271-2955

Handan Topan 0000-0002-8559-3268

Gönderilme Tarihi 24 Nisan 2024
Kabul Tarihi 23 Ocak 2025
Yayımlanma Tarihi 25 Mart 2026
DOI https://doi.org/10.38108/ouhcd.1472294
IZ https://izlik.org/JA75CS52YU
Yayımlandığı Sayı Yıl 2026 Cilt: 9 Sayı: 2

Kaynak Göster

APA Sürme, Y., Albayrak Günday, E., & Topan, H. (2026). Social Media Use of Caregivers of Dementia Patients. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi, 9(2), 276-283. https://doi.org/10.38108/ouhcd.1472294
AMA 1.Sürme Y, Albayrak Günday E, Topan H. Social Media Use of Caregivers of Dementia Patients. Ordu University J Nurs Stud. 2026;9(2):276-283. doi:10.38108/ouhcd.1472294
Chicago Sürme, Yeliz, Eda Albayrak Günday, ve Handan Topan. 2026. “Social Media Use of Caregivers of Dementia Patients”. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi 9 (2): 276-83. https://doi.org/10.38108/ouhcd.1472294.
EndNote Sürme Y, Albayrak Günday E, Topan H (01 Mart 2026) Social Media Use of Caregivers of Dementia Patients. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi 9 2 276–283.
IEEE [1]Y. Sürme, E. Albayrak Günday, ve H. Topan, “Social Media Use of Caregivers of Dementia Patients”, Ordu University J Nurs Stud, c. 9, sy 2, ss. 276–283, Mar. 2026, doi: 10.38108/ouhcd.1472294.
ISNAD Sürme, Yeliz - Albayrak Günday, Eda - Topan, Handan. “Social Media Use of Caregivers of Dementia Patients”. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi 9/2 (01 Mart 2026): 276-283. https://doi.org/10.38108/ouhcd.1472294.
JAMA 1.Sürme Y, Albayrak Günday E, Topan H. Social Media Use of Caregivers of Dementia Patients. Ordu University J Nurs Stud. 2026;9:276–283.
MLA Sürme, Yeliz, vd. “Social Media Use of Caregivers of Dementia Patients”. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi, c. 9, sy 2, Mart 2026, ss. 276-83, doi:10.38108/ouhcd.1472294.
Vancouver 1.Yeliz Sürme, Eda Albayrak Günday, Handan Topan. Social Media Use of Caregivers of Dementia Patients. Ordu University J Nurs Stud. 01 Mart 2026;9(2):276-83. doi:10.38108/ouhcd.1472294