The Impact of Pain in Individuals with Cerebral Palsy on Parents

Yıl 2024, Cilt: 14 Sayı: 2, 204 - 209, 22.05.2024

Demet Gözaçan Karabulut , Sezen Tezcan

https://doi.org/10.33631/sabd.1344437

Öz

Aim: The aim of this study is to evaluate the pain seen in individuals with Cerebral Palsy (CP) and to investigate its impacts on the parents.
Material and Methods: The study included 66 individuals with Cerebral Palsy aged between 6-16, with a mean age of 8.83±3.17. The levels of the individuals included in the study were determined using the Gross Motor Function Classification System and the Manual Ability Classification System. The pain intensity of the individuals with Cerebral Palsy was assessed through a visual analog scale reported by the parents. The Impact on Family Scale was used to determine the state of the parents' impact.
Results: A significant positive correlation was found between the visual analog scale and sub-parameters of the Impact on Family Scale, excluding the coping parameter (p<0.05). A statistically significant result was found when comparing the Impact on Family Scale total scores according to the Gross Motor Function Classification System levels (p=0.026). Parents stated that their children with CP most frequently experienced leg pain, at a rate of 34.8%.
Conclusion: Our results showed that the prevalence of pain in children with Cerebral Palsy is high. The pain problems observed in individuals with Cerebral Palsy negatively impact their parents in many financial, social and familial aspects. The assessment and prevention of pain in children with CP is an important issue for both children and parents.

Anahtar Kelimeler

Cerebral Palsy, Disabilities, Pain, Parents

Serebral Palsili Bireylerde Görülen Ağrının Ebeveynler Üzerindeki Etkisi

Öz

Amaç: Bu çalışmanın amacı, Serebral Palsili (SP) bireylerde görülen ağrının değerlendirilmesi ve ebeveyne olan etkisini araştırmaktır.
Gereç ve Yöntemler: Çalışmaya yaş ortalaması 8,83±3,17 olan 6-16 yaş arası 66 SP’li birey dahil edildi. Çalışmaya dahil edilen bireylerin Kaba Motor Fonksiyon Sınıflama Sistemi ve El Becerileri Sınıflama Sistemi ile seviyeleri belirlendi. SP’li bireyin ağrı şiddeti görsel analog skalası ile ebeveyn raporu şeklinde değerlendirildi. Ebeveynlerin etkilenim durmunun belirlenmesi için Aile Etki Ölçeği kullanıldı.
Bulgular: Görsel analog skalası ile Aile Etki Ölçeği’nin başa çıkma parametresi hariç diğer alt parametreler arasında pozitif yönde anlamlı bir ilişki bulundu (p<0,05). Kaba Motor Fonksiyon Sınıflama Sistemi seviyelerine göre Aile Etki Ölçeği toplam puanları karşılaştırıldığında istatistiksel olarak anlamlı bir sonuç bulundu (p=0,026). Ebeveynler Serebral Palsili çocuklarının en sık %34,8 bacak ağrısı yaşadığını belirtti.
Sonuç: Sonuçlarımız Serebral Palsili çocuklarda ağrı prevalansının yüksek olduğunu gösterdi. Serebral Palsili bireylerde görülen ağrı problemleri ebeveynlerini finansal, sosyal ve ailesel yönden birçok boyutta olumsuz etkilemektedir. SP’li çocuklarda ağrının değerlendirilmesi ve önlenmesine yönelik yaklaşımlar hem çocuklar hem de ebeveynler açısından önemli bir konudur.

Anahtar Kelimeler

Ağrı, Ebeveynler, Engelliler, Serebral Palsi

Kaynakça

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