Salgının Otizm Spektrum Bozukluğu Olan Kişilerin Bakıcıları Üzerindeki Etkisi: bir kapsam incelemesi

Yıl 2023, , 543 - 560, 31.12.2023

Odete Nombora , Andreia Certo

https://doi.org/10.25279/sak.1087315

Öz

Introdução: Pessoas com Perturbações do Espectro do Autismo (PEA) têm dificuldade de adaptação às mudanças e novas rotinas, principalmente em situações de crise como uma pandemia. Tal proporciona maior responsabilidade e stress emocional aos cuidadores, podendo ter consequências negativas para a sua saúde mental. Portanto, é crucial criar estratégias de coping e de promoção de saúde mental nesta população. Pretende-se fazer uma reflexão sobre o impacto da pandemia na saúde mental dos cuidadores de pessoas com PEA e identificar estratégias que podem ser adotadas e medidas preventivas.Material e Método: revisão de escopo da literatura publicada sobre o tópico na base de dados PubMed/MEDLINE. Resultados: Os resultados realçam o stress emocional vivenciado pelos cuidadores de pessoas com PEA durante a pandemia da COVID-19. A interrupção do suporte nos serviços de saúde, o encerramento de escolas e de instituições de apoio socio-ocupacional e as demandas domésticas, foram alguns dos desafios identificados. Destaca-se o papel da continuidade dos cuidados para famílias de pessoas com PEA durante a pandemia e a necessidade de implementar programas de suporte flexíveis e oportunos. A telemedicina, foi das intervenções mais realçadas para a continuidade dos cuidados e implementação de medidas de apoio e suporte dos cuidadores. Conclusões: A pandemia da COVID-19 afetou negativamente a saúde mental de pessoas com PEA e dos seus cuidadores. É importante impulsionar a expansão e desenvolvimento de programas de apoio e intervenções adaptadas. É necessário trabalho multidisciplinar para ultrapassar os desafios impostos pela pandemia, tanto no momento atual, como no período pós-pandémico.

Anahtar Kelimeler

Covid-19, Otizm spektrum bozukluğu, Otizm, Bakıcılar, Ebeveynler, Ruh sağlığı

TO Impacto Da Pandemıa Nos Cuıdadores De Pessoas Com Perturbações Do Espectro Do Autısmo: uma revisão de escopo

Öz

Introduction: People with Autism Spectrum Disorders (ASD) have difficulty adapting to changes and new routines, especially in crisis situations such as a pandemic. This provides caregivers with greater responsibility and emotional stress, which can have negative consequences for their mental health. Therefore, it is crucial to create coping and mental health promotion strategies in this population. We aim to reflect on the impact of the pandemic on the mental health of caregivers of people with ASD and identify strategies that can be adopted and preventive measures.

Material and Methods: a scoping review of the literature published on the topic using PubMed/MEDLINE database. Results: The results highlight the emotional stress experienced by caregivers of people with ASD during the COVID-19 pandemic. The interruption of support in health services, the closure of schools and socio-occupational support institutions and domestic demands were some of the challenges identified. The role of continuity of care for families of people with ASD during the pandemic and the need to implement flexible and timely support programs is highlighted. Telemedicine was one of the most highlighted interventions for the continuity of care and the implementation of support measures for caregivers. Conclusions: The COVID-19 pandemic has negatively affected the mental health of people with ASD and their caregivers. It is important to drive the expansion and development of support programs and adapted interventions. Multidisciplinary work is needed to overcome the challenges imposed by the pandemic, both at the current moment and in the post-pandemic period.

Anahtar Kelimeler

Covid-19, Autism spectrum disorder, Autism, caregivers, parents, mental health

Kaynakça

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