Using the Internet for Health-Related Information from Perspectives of the Patients with Chronic Diseases and Their Relatives

Öz

Objective: This study was conducted to investigate patients’ with chronic diseases and their relatives’experiences and characteristics of internet usage for access to health-related information. Material-Method: 196 patients and 171 relatives included in this study. The data of the study was collected using literature based questionnaires developed by the researchers. Results: In the study, 68.8% of the patients and 71.9% of the relatives used internet for access to health-related information. The difference between participants in terms of using the internet for health-related information was determined in variables including age, type and numbers of chronic diseases. Additionally, their internet using frequency, searching topics and online resources used to access to health-related information were significantly different (p<0.05). More than half of the participants (Patients: 65.4%; Relatives:56.9%) stated they did not share the information obtained from the internet with health care providers, and no internet source has been recommended by health professionals. Conclusions: Results of the study indicated that although characteristics of seeking health related information on the internet were different between patients and relatives, their experiences and opinions were similar on the issue. According to this, health care professionals should consider the internet usage status for access to health-related information of the patients and relatives and lead them to use reliable and up to date internet resources.

Anahtar Kelimeler

• Access to Information,Chronic Disease,Internet,Nursing

Kaynakça

1. Rice RE. Influences, usage, and outcomes of internet health information searching: Multivariate results from the Pew surveys. Int J Med Inform 2006; 75 (1): 8-28.
2. Akerkar SM, Kanitkar M, Bichile LS. Use of the internet as a resource of health information by patients: A clinic-based study in the Indian population. J Postgrad Medicine 2005; 51 (2): 116-18.
3. Jeannot JG, Froehlichc F, Wietlisbacha V, Burnanda B, Terraza O, Vadera JP. Patient use of the internet for health care information in Switzerland. Swiss Med Wkly 2004; 134 (21-22): 307–12.
4. AlGhamdi KM, Moussa NA. Internet use by the public to search for health-related information. Int J Med Inform 2012; 81 (6): 363–73.
5. Wangberg S, Andreassen H, Kummervold P, Wynn R, Sørensen T. Use of the internet for health purposes: Trends in Norway 2000–2010. Scand J Caring Sci 2009; 23: 691–96.
6. Ybarra ML, Suman M. Help seeking behavior and the internet: A national survey. Int J Med Inform 2006; 75 (1): 29-41.
7. Cline RJW, Penner LA, Harper FWK, Foster TS, Ruckdeschel JC, Albrecht TL. The roles of patients’ internet use for cancer information and socioeconomic status in oncologist-patient communication. J Oncol Pract 2007; 3 (3): 167-71.
8. Lee CJ, Gray SW, Lewis N. Internet use leads cancer patients to be active health care consumers. Patient Educ Couns 2010; 81S: S63-9 http://doi:10.1016/j.pec.2010.09.004.

9. Kitchens B, Harle CA, Li S. Quality of health-related online search results. Decis Support Syst 2014; 57: 454–62.
10. Taha J, Sharit J, Czaja S. Use of and satisfaction with sources of health information among older internet users and nonusers. Gerontologist 2009; 49 (5): 663–73.
11. Ayers SL, Kronenfeld JJ. Chronic illness and health-seeking information on the Internet. Health (London) 2007; 11 (3): 327– 47.
12. Adams E, Boulton M, Watson E. The information needs of partners and family members of cancer patients: a systematic literature review. Patient Educ Couns 2009; 77: 179–86.
13. Lopez Gomez M, Feliu J, Sereno M, Gomez Raposo C, Casado-Saenz E. Internet use for medical research among cancer patients and their relatives in Spain. Ann Oncol 2008; 19 (11): 1976-7.
14. Sajid MS, Shakir AJ, Baig MK. Information on the internet about colorectal cancer: patient attitude and potential toward web browsing. A prospective observational study. Can J Surg 2011; 54 (5): 339-43.
15. AlGhamdi KM, Almohedib MA. Internet use by dermatology outpatients to search for health information. Int J Dermatol 2011 50: 292–99.
16. Duplaga M. The acceptance of e-health solutions among patients with chronic respiratory conditions. Telemed J E-Health 2013; 19 (9): 683-91.
17. Duplaga M. Health-related internet user among patients suffering from chronic diseases. Eur J Public Health 2016; 26 (Suppl-1): 471-72.
18. Seto E, Cafazzo JA, Rizo C, Bonert M, Fong E, Chan CT. Internet use by end-stage renal disease patients. Hemodial Int 2007; 11: 328–32.
19. Nettleton S, Burrows R, O’Malley L. The mundane reality of the everyday lay use of the internet for health and their consequences for media convergence. Sociol Health Illn 2005; 27: 972–92.
20. Zhang Y, Jones B, Spalding M, Young R, Ragain M. Use of the internet for health information among primary care patients in rural West Texas. South Med J 2009; 102 (6): 595-601.
21. Ebel MD, Stellamanns J, Keinki C, Rudolph I, Huebner J. Cancer patients and the internet: a survey among german cancer patients. J Canc Educ 2017; 32 (3): 503-08.
22. Nayır E, Tanrıverdi O, Karakas Y, Kılıçkap S, Turhal NS, Avcı N, Okutur K, Koca D, Erdem D, Abali H, Yamac D, Bilir C, Karcan T. Tendency of cancer patients and their relatives to use internet for health-related searches: Turkish Oncology Group (TOG) Study. J BUON 2016; 21 (3): 714-9.
23. Bundorf MK, Wagner TH, Singer SJ, Baker LC. Who searches the internet for health information?. Health Serv Res 2006; 41 (3 Pt 1): 819-36.
24. Gordon MM, Capell HA, Madhok R. The use of the internet as a resource for health information among patients attending rheumatology clinic. Rheumatology 2002; 41 (12): 1402–5.
25. Diaz JA, Griffith RA, Ng JJ, Reiner SE, Friedman PD, Moulton AW. Patients’ use of the internet for medical information. J Gen Intern Med 2002; 17 (3): 180–85.
26. Jadhav A, Sheth A, Pathak J. Analysis of online information searching for cardiovascular diseases on a consumer health information portal. AMIA Annu Symp Proc 2014; 2014: 739–48.
27. O’Connor JB, Johanson JF. Use of the web for medical information by a gastroenterology clinic population. JAMA 2000; 284 (15): 1962-64.
28. Littlechild SA, Barr L. Using the Internet for information about breast cancer: a questionnaire-based study. Patient Educ Couns 2013; 92 (3): 413–17.
29. Akman Yilmaz A, Izgu N, Kav S, Ozhan Elbas N. İç hastalıkları alanında çalışan hemşirelerin sağlıkla ilgili bilgiye ulaşmada internet kullanımına ilişkin görüş ve uygulamaları (Views and practices of nurses working at internal medicine wards about using internet to access health related information). GUSBD 2017; 6 (4): 57-68.
30. Estabrooks CA, O’leary KA, Ricker KL, Humphrey CK. The internet and access to evidence: How are nurses positioned? J Adv Nurs 2003; 42 (1): 73–81.
31. Gilmour JA, Scott SD, Huntington N. Nurses and internet health information: a questionnaire survey. J Adv Nurs 2008; 61 (1): 19-28.