APPLYING GORDON'S FUNCTIONAL HEALTH PATTERNS MODEL TO A CHILD WITH THALASSEMIA MAJOR AND WATSON'S HUMAN CARING THEORY TO THE CHILD'S MOTHER: A HOLLISTIC CASE REPORT

Öz

Purpose: It was aimed to evaluate and care for the pediatric patient who was followed up with the diagnosis of thalassemia major and had graft-versus host disease in accordance with the Gordon's Functional Health Patterns Model (GFPHM) and to give care to the mother in accordance with Watson's Human Caring Model (WHCM). Method: The data of the child patient were collected from her mother, caregiver health personnel and related records. The data of mother was collected from herself. The collected data were evaluated with NANDA nursing diagnoses. Besides, collected data synthesized in accordance with Gordon's Functional Health Patterns Model And Watson's Human Caring Theory. Findings: Child and her mother’s nursing health care needs were met in accordance with GFPHM and WHCM. Conclusions: Providing care according to nursing theories relieves both the patient and the caregiver in chronic diseases with complications that may result in death. Since mothers are usually the primary caregivers of the children who are a very special patient group, the health care needs of both children and their mothers must be met. Nurses should consider health care needs of both the children and their caregivers. Nursing theories could be used for giving care and increasing quality of nursing care.

Anahtar Kelimeler

• Child
• Gordon
• Mother
• Thalassemia Major
• Watson

Kaynakça

1. [1] Engin, E., Yıldırım, F., & Purutçuoğlu, E. (2021). Psychosocial Problems of Children with Chronic Diseases: A Review Focusing On Pediatric Social Work Interventions. The Journal of Current Pediatrics, 19, 271-279.
2. [2] Ak, B. Child with Chronic Life-threatening/Fatal Disease and Nursing Approach. In: Pediatric Nursing, Conk Z, Başbakkal Z, Bal Yılmaz H, Et Al. (Edt), Akademisyen Tıp Kitabevi, Ankara, 2013, pp.905-922.
3. [3] Aydemir, T., & Çetin, Ş. (2019). Kronik Hastalıklar ve Psikososyal Bakım. Journal Of Anatolian Medical Research, 4(3), 109-115.
4. [4] Çavuşoğlu, H. Child Health and Diseases Nursing. S.58-62, Sistem Ofset Yayınevi. Ankara, 2008.
5. [5] Arslan, F., Çalışır, H. Hematological System Diseases and Nursing Care in Children, In: Pediatric Nursing, Conk Z, Başbakkal Z, Bal Yılmaz H, Et Al. (Edt), Akademisyen Tıp Kitabevi, Ankara, 2013, pp. 419-459.
6. [6] Kacır, A. Assessment of "quality of life" after hematopoietic stem cell transplantation in pediatric patients. Istanbul Medipol University Faculty of Medicine Child Health And Diseases USA Specialization In Medicine, 2019.
7. [7] Çölgeçen, E., & Ferahbas, A. (2011). Kutanöz Graft-Versus-Host Hastaligi/Cutaneous Graft-Versus-Host Disease. Turk Dermatoloji Dergisi, 5(4), 92.
8. [8] Çalışır, H., & Güneş, Z. (2005). Akut Graft Versus Host Hastalığı Olan Çocuklarda Hemşirelik Yaklaşımı. Ege Üniversitesi Hemşirelik Fakültesi Dergisi, 21(1), 135-144.

9. [9] Velioğlu, P. Hemşirelikte Kavram ve Kuramlar. İstanbul. 1999;pp.24-26.
10. [10] Kaya H., Atar NY, Eskimez Z. Nursing Models and Theories. İçinde: Atabek AT, Karadağ A, Editör. Nursing Fundamentals: The Science and Art of Nursing. Akademi Basın ve Yayıncılık, İstanbul. 2012; p.80-92.
11. [11] Keleş, MN., Eroğlu, K. (2023). The use of theory or model in studies on postpartum care: A narrative review. International Journal of Nursing Knowledge, 1-1, https://doi.org/10.1111/2047-3095.12411.
12. [12] Gordon, M. Patterns of Functional Health and Clinical Decision Making. In: Erdemir F, Yılmaz E, Editör. Use of Nursing Classification Systems in Clinical Practice, Education, Research and Management. Baskent University Symposium Book, Ankara. 2003;87-93.
13. [13] Erdemir, F., Taş Arslan, F. Child with Oncological Problems and Nursing Care, İçinde: Pediatric Nursing, Conk Z, Başbakkal Z, Bal Yılmaz H, et al. (Edt), Akademisyen Tıp Kitabevi, Ankara, 2013, ss769-822.
14. [14] Gengo e Silva Butcher, R. D. C., & Jones, D. A. (2021). An integrative review of comprehensive nursing assessment tools developed based on Gordon's Eleven Functional Health Patterns. International Journal of Nursing Knowledge, 32(4), 294-307.
15. [15] Ratliffe, C. E., Harrigan, R. C., Haley, J., Tse, A., & Olson, T. (2002). Stress in Families with Medically Fragile Children. Issues in Comprehensive Pediatric Nursing, 25(3), 167-188.
16. [16] Umadevi, P., Varambally, S., Philip, M., & Gangadhar, B. N. (2013). Effect of Yoga Therapy on Anxiety and Depressive Symptoms and Quality-Of-Life Among Caregivers of In-Patients with Neurological Disorders At A Tertiary Care Center in India: A Randomized Controlled Trial. Indian Journal of Psychiatry, 55(Suppl 3), 385-389.
17. [17] Malerbi, F. E. K., Negrato, C. A., & Gomes, M. B. (2012). Assessment of psychosocial variables by parents of youth with type 1 diabetes mellitus. Diabetology & metabolic syndrome, 4(1), 1-10.
18. [18] Watson, J. Human Caring Science: A Theory Of Nursing. Second Edition. Sudbury, MA: Jones& Bartlett Learning. 2012.
19. [19] Erdemir, F. (2012) Nursing Diagnoses Hand book (Translation). Nobel Tıp Kitabevleri, İstanbul.
20. [20] Kapucu, S., Akyar, İ., Korkmaz, F.(2018). Pearson Nursing Diagnostics Handbook. 11. Baskıdan Çeviri. Ankara. Pelikan Kitapevi
21. [21] Karadağ, A., Çalışkan, N., Baykara, ZG. Hemşirelik Teorileri ve Modelleri. Akademi Basın Yayıncılık, İstanbul, 2017.
22. [22] Uğur, Ö. (2014). Symptom management of cancer patients. Türk Onkoloji Dergisi, 29(3): 125-135.
23. [23] Yazgı, Z., Yılmaz, M. (2019). Onkoloji Hastalarının Yaşadığı Psikososyal Sorunlarla Başetmesinde Hemşirenin Rolü. Adnan Menderes Üniversitesi Sağlık Bilimleri Fakültesi Dergisi, 4(1), 60-70.
24. [24] Uzşen, H.,& Başbakkal, Z. (2021). Psychosocial Nursing Approach in Pediatric Patients Treated in the Bone Marrow Transplantation Unit. Journal of Samsun Health Sciences, 6(1), 1-10.
25. [25] Kapucu, S. S., & KARACA, Y. (2008). Patient Assessment In Blood Stem Cell Transplantation and Care. CÜ Hemşirelik Dergisi, 12, 52-59.
26. [26] Chow, K., & Coyle, N. (2011). Providing palliative care to family caregivers throughout the bone marrow transplantation trajectory: Research and practice: Partners in care. Journal of Hospice & Palliative Nursing, 13(1), 7-13.
27. [27] Çamur, Z. The effect of parental participation in the care of hospitalized child on parental satisfaction and anxiety of both parent and child. Adnan Menderes Üniversitesi Sağlık Bilimleri Enstitüsü, Master thesis, Aydın, 2017.
28. [28] Özkan Arslan, İ., & Okumuş, H. (2012). A model where caring and healing meets: Watson’s theory of human caring. Hemşirelikte Araştırma Geliştirme Dergisi, 14(2), 61-72.