POLİOMYELİT SEKELİ OLAN BİREYLERDE SERBEST ZAMAN AKTİVİTELERİNİN TOPLUMSAL KATILIMLARINA ETKİSİ

Yıl 2015, Cilt: 14-15 Sayı: 1, 52 - 63, 31.12.2015

Gökçen Akyürek , Gonca Bumin

Öz

Bu çalışmanın amacı serbest zaman
aktivitelerinin poliomyelit sekeli olan bireylerin toplumsal katılımlarına
etkisini araştırmaktı. Çalışmaya Türkiye’nin çeşitli bölgelerinde yaşayan
poliomyelit sekelli 66 birey alındı. Bireylerin 
%33,3’ü kadın (n=21) ve yaş ortalaması 32,7±7,8
yıldı. Bireylere toplumsal katılımı
değerlendirmek için  Dünya Sağlık Örgütü
(DSÖ) Yetiyitimi Değerlendirme Çizelgesi II (WHO Disability Schedule II- WHO
DAS II) ve serbest zaman aktivitelerinden memnuniyeti değerlendirmek için
Serbest Zaman Değerlendirme Anketi (Leisure Satisfaction Scale-short form,
LSS-SF) uygulandı. Ölçekler arası ilişkilere spearman korelasyon
katsayısı ile bakıldı.  Bu nicel çalışma, odak grubu olan poliomyelitli
bireylerin serbest zaman memnuniyet ve toplumsal katılımları ile ilgili
bulgularını göstermektedir. Sonuçlar, poliomyelitli bireylerin serbest zaman aktivitelerinden
memnuniyetin; çevresel faktörler, iletişim ve etkileşim becerileri ile pozitif
yönde anlamlı bir ilişkiye sahip olduğunu gösterdi (p<0,05).
Bedensel engelli bireylerin serbest zaman aktivitelerine katılımlarının
teşvik edilmesi, toplumsal katılım düzeylerinin artması bakımından önemlidir.
Toplum ve politikalar, bu bireylerin serbest zaman aktivitelerine dahil
olmalarını destekleyecek girişimlerde bulunmaya çalışmalıdırlar.

Anahtar Kelimeler

Poliomyelit, katılım, serbest zaman, mobilite

Kaynakça

• Ahlström G, Karlsson U (2000). Disability and quality of life in individuals with post polio syndrome. Disability and Rehabilitation 22: 416-422.
• Akyürek G, Bumin G. (2015) Psychometric Properties Of The Leisure Satisfaction Scale (LSS) Among Turkish People With Disabilities. The 6th Asia-Pacific Occupational Therapy Congress. 2015 September 14-18, New Zealand. ( SÖZEL SUNUM).
• Beard JG, Ragheb MG (1980). Measuring leisure satisfaction. Journal of Leisure Research 1: 20–33.
• Bjornson, K. F., Belza, B., Kartin, D., Logsdon, R., McLaughlin, J., ve Thompson, E. A. (2008). The relationship of physical activity to health status and quality of life in cerebral palsy. Pediatric physical therapy, 20(3), 247. doi: 10.1097/PEP.0b013e318181a959.
• Burger H, Marincek C (2000). The influence of post-polio syndrome on independence and life satisfaction Disability and Rehabilitation 22: 318–322.
• Carpenter, C., Forwell, S., J., Jongbloed, L., E., ve Backman, C., L. (2007). Community Participation After Spinal Cord Injury. Archives Physical Medicine and Rehabilitation, 88: 427-33.
• Datillo, J. (1999). Leisure Education Program Palling: A Systematic Approach (2nd ed.). State College, PA: Venture Publishing, Inc.
• Fordyce CB, Gagne D, Jalili F, et al. (2008). Elevated serum inflammatory markers in post-poliomyelitis syndrome. J Neurol Sci;271:80–6.
• Gonzalez H, Khademi M, Andersson M, et al. (2002). Prior poliomyelitis-evidence of cytokine production in the central nervous system. J Neurol Sci;205:9–13. 

• Güner B. (2015). Kadınların spor ve serbest zaman etkı̇nlı̇klerı̇ne katılım sorunlarının değerlendı̇rı̇lmesı̇ Journal of International Sport Science 1(1):; 22-29.
• Hildegunn L, Jones K, Grenstad T, Dreyer V, Farbu E, Rekand T. (2007). Perceived disability, fatigue, pain and measured isometric muscle strength in patients with post-polio symptoms. Physiother Res Int;12:39–49.
• Hutchison, P., & McGill, J. (1998). Leisure Integration, and Community. 2 nd ed. Toronto, ON: Leisurability Publications, Inc.
• Jensen MP, Alschuler KN, Smith AE, Verrall AM, Goetz MC, Molton IR. (2011). Pain and fatigue in persons with postpolio syndrome: independent effects on functioning. Arch Phys Med Rehabil; 92:1796–801.
• Klein MG, Braitman LE, Costello R, Keenan MA, Esquenazi A. (2008). Actual and perceived activity levels in polio survivors and older controls: a longitudinal study. Arch Phys Med Rehabil;89:297–303.
• Kling C, Persson A, Gardulf A (2002b). The ADL ability and use of technical aids in persons with late effects of polio. Am J Occup Ther, 56: 457–461.
• Kling C, Persson A, Gardulf, A (2002a). The health-related quality of life of patients suffering from the late effects of polio (post-polio). Journal of Advanced Nursing 3: 164–173.

• Knox SH (1998). Treatment through play and leisure. In ME Neistadt, EB Crepeau (eds) Willard and Spackman’s Occupational Therapy (9th edition). Philadelphia, PA: Lippincott, pp. 382–90.

• Kurar İ, Baltacı F. (2014). Halkın Boş Zaman Değerlendirme Alışkanlıkları: Alanya Örneği International Journal of Science Culture and Sport ,Special Issue 2, 39-52.
• Law M, Polatajko H, Baptiste S, Townsend E, eds (1997). Core concepts of occupational therapy. In Canadian Association of Occupational Therapists, Enabling Occupation: An Occupational Therapy Perspective. Ottawa, ON: CAOT Publications ACE, pp. 29–56.
• Norusis MJ (1997). SPSS for Windows (Version 8.0) [computer software]. Chicago, IL: SPSS.
• Lord SR, Allen GM, Williams P, Gandevia SC. (2002). Risk of falling: predictors based on reduced strength in persons previously affected by polio. Arch Phys Med Rehabil,;83:757–63. 

• Mc Manus, V., Corcoran, P., ve Perry, I. J. (2008). Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC pediatrics, 8(1), 50.
• Mihaylov, S. I., Jarvis, S. N., Colver, A. F., ve Beresford, B. (2004). Identification and description of environmental factors that influence participation of children with cerebral palsy. Developmental Medicine and Child Neurology, 46(5), 299-304.
• Nollet F, Beelen A, Twisk JW, Lankhorst GJ, De VM. (2003). Perceived health and physical functioning in postpoliomyelitis syndrome: a 6-year prospective follow-up study. Arch Phys Med Rehabil;84:1048–56. 

• Palisano, R. J., Orlin, M., Chiarello, L. A., Oeffinger, D., Polansky, M., Maggs, J. Ve diğerleri. (2011). Determinants of intensity of participation in leisure and recreational activities by youth with cerebrel palsy. Archives Physical Medicine and Rehabilitation, 92: 1468-76.
• Powdthavee, N. (2009). What happens to people before and after disability? Focusing effects, lead effects, and adaptation in different areas of life. Social Science and Medicine, 69: 1834-44.
• Primeau, L A . (2003). Play and Leisure. In: Crepeau EB, Cohn ES, Boyt Schell B A (eds.). Willard and Spackman's Occupational Therapy (pp. 354-360). Philadelphia: Lippincott Williams and Wilkins.

• Rupp MA, Sweetman R, Sosa AE, Smither JA, McConnell DS (2017). Searching for Affective and Cognitive Restoration: Examining the Restorative Effects of Casual Video Game Play. Hum Factors. 2017 Jun 1.
• Sarkamö T.(2017). Cognitive, emotional, and neural benefits of musical leisure activities in aging and neurological rehabilitation: A critical review. Ann Phys Rehabil Med. Apr 28.
• Sorenson EJ, Daube JR, Windebank AJ. (2005). A 15-year follow-up of neuromuscular function in patients with prior poliomyelitis. Neurology;64:1070–2.
• Stolwijk-Swuste JM, Beelen A, Lankhorst G, Nollet F. (2007). Impact of age and co-morbidity on the functioning of patients with sequelae of poliomyelitis: a cross-sectional study. J Rehabil Med;39:56–62. 

• Stolwijk-Swuste JM, Tersteeg I, Beelen A, Lankhorst GJ, Nollet F. (2010). The impact of age and comorbidity on the progression of disability in late-onset sequelae of poliomyelitis. Arch Phys Med Rehabil;91:523–8.
• Stumbo, N.J., & Peterson, CA. (2004). Therapeutic Recreation Program Design: Principles and Procedures. 4 t h Edition. San Francisco, California: Pearson Education, Lie.
• Thorén-Jönsson A-L (2001). Ability and perceived difficulty in daily activities in people with poliomyeli- tis sequelae. Journal of Rehabilitation Medicine 33: 4–11.
• Trigg, R., Wood, V. A., & Hewer, R. L. (1999). Social reintegration after stroke: the first stages in the development of the subjective index of physical and social outcome (SIPSO). Clinical Rehabilitation, 13: 341-53.
• Uluğ, B., Ertuğrul, A., Göğüş, A., ve Kabakçı, E. (2001). Yetiyitimi değerlendirme çizelgesinin şizofreni hastalarında geçerlilik ve güvenilirliği. Türk Psikiyatri Dergisi, 12(2): 121-130.
• Vanner, E. A., Block, P., Christodoulou, C. C., Horowitz, B. P., & Krupp, L. B. (2008). Pilot study exploring quality of life and barriers to leisure-time physical activity in persons with moderate to severe multiple sclerosis. Disability Health Journal, 1: 558-65.
• Wennerberg S, Ahlström G (2000). Illness narratives of persons with post-polio syndrome. Journal of Advanced Nursing 31: 354–361.
• Willén C, Grimby G (1998). Pain, physical activity, and dis- ability in individuals with late effects of polio. Archives of Physical and Medical Rehabilitation 79: 915–919.
• Willen C, Thoren-Jonsson AL, Grimby G, Sunnerhagen KS. (2007). Disability in a 4-year follow-up study of people with post-polio syndrome. J Rehabil Med;39:175–80.
• Winberg, C, Flansbjer UB, Carlsson, G, Rimmer, J, Lexell J. (2014). Physical activity in persons with late effects of polio: A descriptive study. Disability and Health Journal, 7(3): 302-308.
• Yalon-Chamovitz, S., Weiss, P. L. (2008). Virtual reality as a leisure activity for young adults with physical and intellectual disabilities. Research in Developmental Disabilities, 29: 273-287.