The Knowledge Level of Turkish Rheumatoid Arthritis Patients About Their Diseases
Öz
Aim: This study aims to assess the level of disease specific knowledge of the patients with Rheumatoid Arthritis
Materials and Methods: A total of 225 RA patients were included in this study. Patients’ demographic and clinic data and information resources were recorded. In order to evaluate the awareness levels of patients, the “Patient Knowledge Questionnaire in Rheumatoid Arthritis (PKQ-RA)” was used.
Results: The mean age and disease duration of patients were found to be 52.8±10.8 and 6.7±6.5 years, respectively. Most of the patients (86.7%) reported that they had gained the information about RA from their physicians. Internal consistency of the Turkish version of PKQ-RA was high with Cronbach’s alpha of 0.71 and test-retest intra-class correlation coefficient was 0.94. The total PKQ-RA scores were 15.1±12.6 (ranging: 0-27). Patients’ knowledge levels differentiated according to their age, education, socioeconomic status, and family history of disease.
Discussion and Conclusion: This is the first study to investigate Turkish RA patients’ awareness levels of the disease. Having insufficient information about the disease has always been a general problem in RA patients. In this study, it was determined that the knowledge levels of our patients were not significantly high. Thus, to be able to increase the patients’ awareness, some individualized precautions should be taken by physicians.
Anahtar Kelimeler
Kaynakça
- Pytel A, Wrzosek Z. Estimation of patient knowledge on rheumatoid arthritis in the range of their own disease-preliminary study. Adv Clin Exp Med. 2012;21:343-51.
- Polluste K, Kallikorm R, Lember M. Level of knowledge and sources of information about the rheumatoid arthritis in Estonian patients. Rheumatol Int 2014;34:675-81.
- American College of Rheumatology Ad Hoc Committee on Clinical Guidelines. Guidelines for the management of rheumatoid arthritis. Arthritis Rheum 1996;39:713-722.
- Viller F, Guillemin F, Briancon S, Moum T, Suurmeijer T, van den Heuvel W. Compliance to drug treatment of patients with rheumatoid arthritis: a 3 year longitudinal study. J Rheumatol 1999;26:2114-22.
- Hill J, Bird H. Patient knowledge and misconceptions of osteoarthritis assessed by a validated self-completed knowledge questionnaire (PKQ-OA). Rheumatology 2007;46:796-800.
- Ndosi M, Johnson D, Young T, Hardware B, Hill J, Hale C, et al. Effects of needs-based patient education on self-efficacy and health outcomes in people with rheumatoid arthritis: a multicentre, single blind, randomised controlled trial. Ann Rheum Dis. 2016;75:1126-32.
- Dequeker J, Rasker JJ, Woolf AD. Educational issues in rheumatology. Bailliére’s Clin Rheum 200;14: 715-29.
- Kyngäs H). Patient education: Perspective of adolescents with a chronic disease. Journal of Clinical Nursing 2003;12:744-51.
- Zangi HA, Ndosi M, Adams J, Andersen L, Bode C, Boström C, et al. EULAR recommendations for patient education for people with inflammatory arthritis.Ann Rheum Dis 2015;74:954-62.
- Albano MG, Giraudet-Le Quintrec JS, Crozet C, d’lvemois JF. Characteristics and development of therapeutic patient education in rheumatoid arthritis: analysis of the 2003–2008 literature.Joint Bone Spine 2010;77:405-10.