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Özel Gereksinimli Çocukları Olan Ebeveynlerde Öz-şefkat ve Psikolojik Sağlamlık: Umudun Aracı Rolü

Yıl 2020, Cilt: 49 Sayı: 2, 690 - 705, 28.10.2020

Öz

Bu çalışmanın amacı, özel gereksinimli çocukların ebeveynlerinde öz-şefkat ve psikolojik sağlamlık arasındaki ilişkide umudun aracı rolünü incelemektir. Çalışmanın katılımcıları 120 ebeveynden (95 kadın, 25 erkek) oluşmaktadır. Yapılan ön analizler psikolojik sağlamlığın cinsiyet, gelir, eğitim düzeyi ve yaşa göre anlamlı düzeyde farklılaşmadığını ortaya koymuştur. Yol analizi sonuçları, önerilen modelin model uyum indekslerinin mükemmel olduğunu göstermiştir (χ2 / df = .03, p .001; RMSEA = .00; CFI = 1.00; TLI = 1.00; GFI = .99). Değişkenler arasındaki ilişkilerin incelenmesi sonucunda, öz-şefkat ve umut arasında ve umut ile psikolojik sağlamlık arasında anlamlı derecede pozitif yönde ilişkiler olduğu bulunmuştur. Modelin özel gereksinimli çocukların ebeveynlerinin umut puanlarında %5 ve psikolojik sağlamlık puanlarında %16 düzeyinde bir varyans açıkladığı bulunmuştur. Bu sonuçlar, ilgili literatür ve bu ebeveynlerde psikolojik sağlamlığı geliştirmeye yönelik olası müdahaleler doğrultusunda tartışılmıştır. 

Kaynakça

  • Akın, Ü., Akın, A., & Abacı, R. (2007). Öz-duyarlık Ölçeği: Geçerlik ve güvenirlik çalışması. Hacettepe University Journal of Education, 33, 1-10.
  • Akman, Y. & Korkut, F. (1993). Umut Ölçeği üzerine bir çalıma [A study on the hope scale.]. Hacettepe Üniversitesi Eğitim Fakültesi Dergisi ,9, 193-202.
  • Beckman, P. J. (1991). Comparison of mothers’ and fathers’ perceptions of the effect of young individuals with and without disabilities. American Journal on Mental Retardation, 95, 585–585.
  • Carver, C. S. (1998). Resilience and thriving: Issues, models, and linkages. Journal of Social Issues, 54, 245–266.
  • Doğan, T. (2015). Kısa Psikolojik Sağlamlık Ölçeği’nin Türkçe uyarlaması: Geçerlik ve güvenirlik çalışması. The Journal of Happiness & Well-Being, 3(1), 93-102.
  • Duggal, D., Sacks-Zimmerman, A. & Liberta, T. (2016) The impact of hope and resilience on multiple factors in neurosurgical patients. Cureus, 8(10): e849.
  • Eakes, G. G., Burke, M. L., & Hainsworth, M. A. (1998). Middle range theory of chronic sorrow. Image – the Journal of Nursing Scholarship, 30(2), 179–184.
  • Embury, P. S. & Saklofske, H. D. (2014). Resilience interventions for youth in diverse populations. Springer, New York.
  • Emerson, E., Graham, H., McCulloch, A., Blacher, J., Hatton, C., & Llewellyn, G. (2009). The social context of parenting 3-year-old children with developmental delay in the UK. Child: Care, Health, and Development, 35(1), 63–70.
  • Fraenkel, J., Wallen, N. & Hyun, H. (2011). How to design and evaluate research in education (8th ed.). US: McGraw-Hill Education.
  • Garmezy, N. (1991). Resiliency and vulnerability to adverse developmental outcomes associated with poverty. American Behavioral Scientist, 34, 416-430.
  • Golan, S. V. (2016): The subjective well-being of parents of children with developmental disabilities: The role of hope as predictor and fosterer of well-being. Journal of Social Work in Disability & Rehabilitation, doi: http://dx.doi.org/10.1080/1536710X.2016.1162119.
  • Graungaard, A., Andersen, J., & Skov, L. (2011). When resources get sparse: A longitudinal, qualitative study of emotions, coping and resource-creation when parenting a young child with severe disabilities. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 15, 115–136.
  • Green, S. E. (2007). We’re tired, not sad: Benefits and burdens of mothering a child with a disability. Social Science & Medicine, 64(1), 150–163.
  • Harms, P. D., Brady, L., Wood, D., & Silard, A. (2018). Resilience and well-being. In E. Diener, S. Oishi, & L. Tay (Eds.), Handbook of well-being. Salt Lake City, UT: DEF Publishers. DOI: nobascholar.com.
  • Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., & Bolt, D. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24, 449–457.
  • Heiman, T. (2002). Parents of children with disabilities: Resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities, 14, 159–171.
  • Hope, N., Koestner, R. & Milyavskaya, M. (2014). The role of self-compassion in goal pursuit and well-being among university freshmen. Self and Identity, 13:5, 579-593.
  • Horton, T. V. & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46(4), 382–399.
  • IBM Corp. (2011). IBM SPSS Statistics for Windows. Version 20.0. Armonk. NY: IBM Corp.
  • Jevne, R. F. (1991). It all begins with hope: Patients, caregivers, and bereaved speak out. San Diego, CA: Luray Media.
  • Juvonen, J. & Leskinen, M. (1994). The function of onset and offset responsibility perceptions in fathers' and mothers' adjustment to their child's developmental disability. Psychosocial Perspectives in Disability [Special issue]. Journal of Social Behavior and Personality, 9, 349-368.
  • Kayfitz, A. D., Gragg, M. N., & Orr, R. R. (2010). Positive experiences of mothers and fathers of individuals with autism. Journal of Applied Research in Intellectual Disabilities, 23, 337–343.
  • Kline, R. B. (1998). Methodology in the social sciences. Principles and practice of structural equation modeling. Guilford Press.
  • Lloyd, J. T. & Hastings, R. (2006). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53:12, 957–968.
  • McConnell, D., Savage, A. & Breitkreuz, R. (2014). Resilience in families raising children with disabilities and behavior problems. Research in Developmental Disabilities, 35(4):833-48.
  • Menninger, K. (1959). Hope: The academic lecture. The American Journal of Psychiatry, 481- 491.
  • Neff, D. K. (2003). The science of self-compassion. In C. Germer & R. Siegel (Eds), Compassion and wisdom in psychotherapy (pp.79-92). New York: Guilford Press.
  • Neff, D. K. & Dahm, A. K. (2015). Self-compassion: What it is, what it does, and how it relates to mindfulness. In M. Robinson, B. Meier & B. Ostafin (Eds.) Mindfulness and self-regulation (pp.121-137). New York: Springer.
  • Neff, D. K. & Faso, J. D. (2014). Self-compassion and well-being in parents of children with autism. Mindfulness, 6:4, 938–947.
  • Neff, D. K. & McGeehee, P. (2010). Self-compassion and psychological resilience among adolescents and young adults. Self and Identity, 9, 225-240.
  • Neff, K. D., Rude, S. S., & Kirkpatrick, K. L. (2007). An examination of self-compassion in relation to positive psychological functioning and personality traits. Journal of Research in Personality, 41(4), 908–916. https://doi.org/10.1016/j.jrp.2006.08.002.
  • Newacheck, P. W., Inkelas, M., & Kim, S. E. (2004). Health services use and health care expenditures for children with disabilities. Pediatrics, 114, 79–85. doi:10.1542/peds.114.1.79.
  • Ong, A. D., Edwards, L. M., & Bergeman, C. S. (2006). Hope as a source of resilience in later adulthood. Personality and Individual Differences, 41(7), 1263–1273.
  • Scorgie, K. I. (1996). From devastation to transformation: Managing life when a child is disabled. Doctoral Dissertation, University of Alberta.
  • Sears, S. & Kraus, S. (2009). I think therefore i om: Cognitive distortions and coping style as mediators for the effects of mindfulness meditation on anxiety, positive and negative affect, and hope. Journal of Clinical Psychology, 65(6), 561-73.
  • Smith, B. W., Tooley, E. M., Christopher, P., & Kay, V. S. (2010). Resilience as the ability to bounce back: A neglected personal resource? Journal of Positive Psychology, 5, 166-176.
  • Snyder, C. R. (2002). Hope theory: Rainbows in the mind. Psychological Inquiry, 13, 249-275.
  • Snyder, C. R., Irving, L., & Anderson, J. R. (1991). Hope and health: Measuring the will and the ways. In C. R. Snyder & D. R. Forsyth (Eds.), Handbook of social and clinical psychology: The health perspective (pp. 285–305). Elmsford, NY: Pergamon.
  • Umphrey, L. R., & Sherblom, J. C., (2014). The relationship of hope to self-compassion, relational social skill, communication apprehension, and life satisfaction. International Journal of Wellbeing, 4(2), 1-18.doi:10.5502/ijw.v4i2.1.
  • Werner, E. E., & Smith, R.S. (1992). Overcoming the odds: High-risk children from birth to adulthood. Ithaca, NY: Cornell University Press.
  • Yang, Y., Zhang, M. & Kou, Y. (2016) Self-compassion and life satisfaction: The mediating role of hope. Personality and Individual Differences, 98, 91-95.

Self-compassion and Resilience in Parents of Children with Special Needs: The Mediating Role of Hope

Yıl 2020, Cilt: 49 Sayı: 2, 690 - 705, 28.10.2020

Öz

The purpose of this study was to explore hope as a mediator in the relationship between self-compassion and resilience in parents of children with special needs. Participants of the study were 120 parents (95 females, 25 males). The preliminary results showed that resilience scores of the participants don’t vary as a function of gender, income, education level and age. The results of the path analysis yielded that the model fit indices of the proposed model are perfect (χ2/df=.03, p.001; RMSEA= .00; CFI=1 .00; TLI= 1.00; GFI=.99). Examination of the relationships between the variables yielded that there are significantly positive connections between self-compassion and hope and also between hope and resilience. The model was found to explain a 5% variance in hope scores and 16% variance in resilience scores of parents of children with special needs. These results were discussed in line with the relevant literature as well as possible interventions for cultivation of resilience in these parents.

Kaynakça

  • Akın, Ü., Akın, A., & Abacı, R. (2007). Öz-duyarlık Ölçeği: Geçerlik ve güvenirlik çalışması. Hacettepe University Journal of Education, 33, 1-10.
  • Akman, Y. & Korkut, F. (1993). Umut Ölçeği üzerine bir çalıma [A study on the hope scale.]. Hacettepe Üniversitesi Eğitim Fakültesi Dergisi ,9, 193-202.
  • Beckman, P. J. (1991). Comparison of mothers’ and fathers’ perceptions of the effect of young individuals with and without disabilities. American Journal on Mental Retardation, 95, 585–585.
  • Carver, C. S. (1998). Resilience and thriving: Issues, models, and linkages. Journal of Social Issues, 54, 245–266.
  • Doğan, T. (2015). Kısa Psikolojik Sağlamlık Ölçeği’nin Türkçe uyarlaması: Geçerlik ve güvenirlik çalışması. The Journal of Happiness & Well-Being, 3(1), 93-102.
  • Duggal, D., Sacks-Zimmerman, A. & Liberta, T. (2016) The impact of hope and resilience on multiple factors in neurosurgical patients. Cureus, 8(10): e849.
  • Eakes, G. G., Burke, M. L., & Hainsworth, M. A. (1998). Middle range theory of chronic sorrow. Image – the Journal of Nursing Scholarship, 30(2), 179–184.
  • Embury, P. S. & Saklofske, H. D. (2014). Resilience interventions for youth in diverse populations. Springer, New York.
  • Emerson, E., Graham, H., McCulloch, A., Blacher, J., Hatton, C., & Llewellyn, G. (2009). The social context of parenting 3-year-old children with developmental delay in the UK. Child: Care, Health, and Development, 35(1), 63–70.
  • Fraenkel, J., Wallen, N. & Hyun, H. (2011). How to design and evaluate research in education (8th ed.). US: McGraw-Hill Education.
  • Garmezy, N. (1991). Resiliency and vulnerability to adverse developmental outcomes associated with poverty. American Behavioral Scientist, 34, 416-430.
  • Golan, S. V. (2016): The subjective well-being of parents of children with developmental disabilities: The role of hope as predictor and fosterer of well-being. Journal of Social Work in Disability & Rehabilitation, doi: http://dx.doi.org/10.1080/1536710X.2016.1162119.
  • Graungaard, A., Andersen, J., & Skov, L. (2011). When resources get sparse: A longitudinal, qualitative study of emotions, coping and resource-creation when parenting a young child with severe disabilities. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 15, 115–136.
  • Green, S. E. (2007). We’re tired, not sad: Benefits and burdens of mothering a child with a disability. Social Science & Medicine, 64(1), 150–163.
  • Harms, P. D., Brady, L., Wood, D., & Silard, A. (2018). Resilience and well-being. In E. Diener, S. Oishi, & L. Tay (Eds.), Handbook of well-being. Salt Lake City, UT: DEF Publishers. DOI: nobascholar.com.
  • Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., & Bolt, D. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24, 449–457.
  • Heiman, T. (2002). Parents of children with disabilities: Resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities, 14, 159–171.
  • Hope, N., Koestner, R. & Milyavskaya, M. (2014). The role of self-compassion in goal pursuit and well-being among university freshmen. Self and Identity, 13:5, 579-593.
  • Horton, T. V. & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46(4), 382–399.
  • IBM Corp. (2011). IBM SPSS Statistics for Windows. Version 20.0. Armonk. NY: IBM Corp.
  • Jevne, R. F. (1991). It all begins with hope: Patients, caregivers, and bereaved speak out. San Diego, CA: Luray Media.
  • Juvonen, J. & Leskinen, M. (1994). The function of onset and offset responsibility perceptions in fathers' and mothers' adjustment to their child's developmental disability. Psychosocial Perspectives in Disability [Special issue]. Journal of Social Behavior and Personality, 9, 349-368.
  • Kayfitz, A. D., Gragg, M. N., & Orr, R. R. (2010). Positive experiences of mothers and fathers of individuals with autism. Journal of Applied Research in Intellectual Disabilities, 23, 337–343.
  • Kline, R. B. (1998). Methodology in the social sciences. Principles and practice of structural equation modeling. Guilford Press.
  • Lloyd, J. T. & Hastings, R. (2006). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53:12, 957–968.
  • McConnell, D., Savage, A. & Breitkreuz, R. (2014). Resilience in families raising children with disabilities and behavior problems. Research in Developmental Disabilities, 35(4):833-48.
  • Menninger, K. (1959). Hope: The academic lecture. The American Journal of Psychiatry, 481- 491.
  • Neff, D. K. (2003). The science of self-compassion. In C. Germer & R. Siegel (Eds), Compassion and wisdom in psychotherapy (pp.79-92). New York: Guilford Press.
  • Neff, D. K. & Dahm, A. K. (2015). Self-compassion: What it is, what it does, and how it relates to mindfulness. In M. Robinson, B. Meier & B. Ostafin (Eds.) Mindfulness and self-regulation (pp.121-137). New York: Springer.
  • Neff, D. K. & Faso, J. D. (2014). Self-compassion and well-being in parents of children with autism. Mindfulness, 6:4, 938–947.
  • Neff, D. K. & McGeehee, P. (2010). Self-compassion and psychological resilience among adolescents and young adults. Self and Identity, 9, 225-240.
  • Neff, K. D., Rude, S. S., & Kirkpatrick, K. L. (2007). An examination of self-compassion in relation to positive psychological functioning and personality traits. Journal of Research in Personality, 41(4), 908–916. https://doi.org/10.1016/j.jrp.2006.08.002.
  • Newacheck, P. W., Inkelas, M., & Kim, S. E. (2004). Health services use and health care expenditures for children with disabilities. Pediatrics, 114, 79–85. doi:10.1542/peds.114.1.79.
  • Ong, A. D., Edwards, L. M., & Bergeman, C. S. (2006). Hope as a source of resilience in later adulthood. Personality and Individual Differences, 41(7), 1263–1273.
  • Scorgie, K. I. (1996). From devastation to transformation: Managing life when a child is disabled. Doctoral Dissertation, University of Alberta.
  • Sears, S. & Kraus, S. (2009). I think therefore i om: Cognitive distortions and coping style as mediators for the effects of mindfulness meditation on anxiety, positive and negative affect, and hope. Journal of Clinical Psychology, 65(6), 561-73.
  • Smith, B. W., Tooley, E. M., Christopher, P., & Kay, V. S. (2010). Resilience as the ability to bounce back: A neglected personal resource? Journal of Positive Psychology, 5, 166-176.
  • Snyder, C. R. (2002). Hope theory: Rainbows in the mind. Psychological Inquiry, 13, 249-275.
  • Snyder, C. R., Irving, L., & Anderson, J. R. (1991). Hope and health: Measuring the will and the ways. In C. R. Snyder & D. R. Forsyth (Eds.), Handbook of social and clinical psychology: The health perspective (pp. 285–305). Elmsford, NY: Pergamon.
  • Umphrey, L. R., & Sherblom, J. C., (2014). The relationship of hope to self-compassion, relational social skill, communication apprehension, and life satisfaction. International Journal of Wellbeing, 4(2), 1-18.doi:10.5502/ijw.v4i2.1.
  • Werner, E. E., & Smith, R.S. (1992). Overcoming the odds: High-risk children from birth to adulthood. Ithaca, NY: Cornell University Press.
  • Yang, Y., Zhang, M. & Kou, Y. (2016) Self-compassion and life satisfaction: The mediating role of hope. Personality and Individual Differences, 98, 91-95.
Toplam 42 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Eğitim Üzerine Çalışmalar
Bölüm Makaleler
Yazarlar

Zeynep Aydın Sünbül 0000-0001-8084-2344

Meltem Aslan Gördesli Bu kişi benim 0000-0002-9989-9516

Yayımlanma Tarihi 28 Ekim 2020
Gönderilme Tarihi 9 Haziran 2020
Yayımlandığı Sayı Yıl 2020 Cilt: 49 Sayı: 2

Kaynak Göster

APA Aydın Sünbül, Z., & Aslan Gördesli, M. (2020). Self-compassion and Resilience in Parents of Children with Special Needs: The Mediating Role of Hope. Çukurova Üniversitesi Eğitim Fakültesi Dergisi, 49(2), 690-705. https://doi.org/10.14812/cuefd.749645

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