Talasemi Hastalarında Sağlıklı Yaşam Biçimi Davranışları

Yıl 2018, Cilt: 7 Sayı: 1, 77 - 86, 31.03.2018

Ayşegül İşler Dalgıç , Emine Efe , Ayla Kaya , Süreyya Sarvan , Hayriye Başer

Öz

Sağlıklı yaşam biçimi davranışlarının geliştirilmesi
bireyin genel sağlık ve iyilik durumunu iyileştirmeyi amaçlar. Talasemi
hastalarında sağlıklı yaşam biçimi davranışlarını belirleyen çalışmaya
rastlanmamıştır. Bu nedenle çalışma literatüre önemli katkı sağlamakta ve
talasemi hastalarının yararına, hemşireler için önemli veriler sunmaktadır.
Literatürde bu konudaki bilgi açığını gidermeye yönelik planlanan bu çalışmanın
amacı, talasemi hastalarında sağlıklı yaşam biçimi davranışlarını
belirlemektir.

Bu tanımlayıcı
çalışma, Türkiye’nin Antalya İli’nde iki farklı hastanede takip ve tedavi edilen (9 yaş ve üzeri) 151 talasemi
hastası ile gerçekleştirildi. Araştırmanın
verileri, Kişisel Bilgi Formu
ve
Sağlıklı Yaşam Biçimi Davranışları
Ölçeği-II kullanılarak elde
edildi.

Ölçeğin genel cronbach alpha güvenirlik katsayısı
0.93. Katılımcıların ölçek toplam puan ortalaması 2.48±0.03'dir. Eğitim,
çalışma durumu, kardeş sayısı, oturduğu yerleşim yeri ile puan ortalamaları
arasında istatiksel olarak anlamlı bir fark vardı (p<0.05).

Sonuç olarak; talasemi hastalığına sahip bireylerin
sağlıklı yaşam biçimi davranışları puan ortalamaları orta düzeyde bulunmuştur. Bu doğrultuda talasemi hastaları ile
çalışan hemşireler, hastalarına sağlıklı yaşam biçimi davranışı kazandırma
konusunda bilgilendirmede önemli bir konuma sahiptirler. Araştırmadan elde
edilen sonuçlar doğrultusunda hemşireler tarafından, talasemi hastalığına sahip
bireylerin yaşam tarzı değişimine yönelik eğitim ve danışmanlık programlarının
hazırlanması, eğitimin etkinliğinin değerlendirilmesi ve sağlıklı yaşam biçimi
davranışlarını etkileyen faktörler konusundaki bilgilerin uygulamalara
yansıtılması önerilmektedir. 

Anahtar Kelimeler

Talasemi major, sağlıklı yaşam biçimi davranışları

Healthy Lifestyle Behaviors in Patients with Thalassemia Major

Öz

Healthy Lifestyle Behaviors promotion purposes usual
health and wellness position of the persons. No previous studies have been
reported to determine healthy lifestyle behaviors in patients with thalassemia
major. Therefore, this study is suggested to contribute to the recent
literature by providing significant data about patients with thalassemia major
for nurses. Because there is a limited number of studys in the literature, this
study aims to investigate the healthy lifestyle behaviors in patients with
thalassemia major.

This
descriptive study was conducted with 151 follow-up and treated patients with
thalassemia major (9 years old and above) in two hospitals in Antalya. The
study data was analyzed with a Personal Information Form and the Healthy
Lifestyle Behaviors Scale-II.

The
Cronbach Alpha reliability coefficient was 0.93. The total scale score was
2.48±0.03. There was a statistically significant difference between the mean
scores and educational level, employment status, number of siblings, place of
residence of participants (p<0.05).

The mean total score of patients with thalassemia major healthy lifestyle behaviours scale was
found to be a moderate level.
Therefore, health professionals especially nurses who work with patients with thalassemia
major are considered to undertake a great responsibility to assist them to
maintain healthy lifestyle behaviors. According to the results obtained from
the research, it is suggested that training and consulting programs be prepared
for the improvement of lifestyles in patients with thalassemia major and the
effectiveness of this training be evaluated, information about the factors
affecting and their healthy lifestyle behaviours be reflected to practical
processes by nurses. 

Anahtar Kelimeler

Thalassaemia Major, Healthy Lifestyle Behaviors, Nurse

Kaynakça

• 1. Asadi F, Askari M. The Effectiveness of cognitive behavioral therapy (CBT) group training in mental health among thalassemia patients in Bandar Abbas. Jamaican Journal of Science and Technology 2015; 26: 150-162.
• 2. Ayoub MD, Radi SA, Azab AM, et al. Quality of life among children with beta-thalassemia major treated in Western Saudi Arabia. Saudi Medical Journal 2013; 34: 1281-1286.
• 3. Nederi M, Hormozi M, Ashrafi M, Amamdadi A. Evaluation of mental health and related factors among patients with beta-thalassemia major in South East of Iran. Iranian Journal Psychiatry 2012; 7: 47-51.
• 4. Smiers FJ, Krishnamurti L, Lucarelli G. Hematopoietic stem cell transplantation for hemoglobinopathies: current practice and emerging trends. Pediatr Clin North Am 2010; 57: 181-205.
• 5. Yeşilipek A. Hematopoetic stem cell transplantation in patients with beta thalassemia major. Archive and Survey Journal 2014; 23: 49-59.
• 6. Ansari SH, Baghersalimi A, Azarkeivan A, Nojomi M, Hassanzadeh RA. Quality of life in patients with thalassemia major. Iranian Journal of Pediatric Hematology Oncology 2014; 4: 57-63.
• 7. Karadamar M, Yiğit R, Sungur MA. An analysis of the healthy lifestyle behaviors of adolescents. Anadolu Nursing and Health Sciences Journal 2014; 17: 131-139.
• 8. Savaşan A, Ayten M, Ergene O. Healthy lifestyle behaviors and desperation in coronary arterial patients. Journal of Psychiatry Nursing 2013; 4: 1-6.
• 9. Altay B, Çavuşoğlu F, Güneştaş İ. Healthy life behaviors of nurses in a medicine faculty hospital and related factors. Dokuz Eylül University Nursing Faculty E-Journal 2015; 8: 12-18.
• 10. Kim HJ, Choi-Kwon S, Kim H, Park YH, Koh CK. Health-promoting lifestyle behaviors and psychological status among Arabs and Koreans in the United Arab Emirates. Research in Nursıng Health 2015; 38: 133-141.
• 11. Yi M, Kim J. Factors influencing health-promoting behaviors in Korean breast cancer survivors. European Journal of Oncology Nursing 2013; 17: 138-145.
• 12. Beydağ KM, Uğur E, Sonakı C, Yürügen B. Effects of health and life course on the healthy lifestyle behaviors of university students. Gümüşhane University Health Sciences Journal 2014; 3: 599-609.
• 13. Bahar Z, Beşer A, Gördes N, Ersin F, Kıssal A. Reliability and validity of Healthy Life Behaviors Scale II. Cumhuriyet University Nursing School Journal 2008; 12: 1-13.
• 14. Lyrakos GN, Vini D, Aslani H, Drosou-Servou M. Psychometric properties of the specific thalassemia quality of life instrument for adults. Patient Preference and Adherence 2012; 6: 477-497.
• 15. Khurana A, Katyal S, Marwaha RK. Psychosocial burden in thalassaemia. Indian J Pediatr 2006; 73: 877-880.
• 16. Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L. Quality of life in patients with thalassemia intermedia compared to thalassemia major. Annals New York Academy of Sciences 2005; 1054: 457-461.
• 17. Tefler P, Constantinidou G, Andreou P, Christou S, Modell B, Angastiniotis M. Quality of life in thalassemia. Annals New York Academy of Sciences 2005; 1054: 273-282.
• 18. Majid S, Abidi M. Quality of life and coping styles of care-givers of patients suffering from thalassemia major. International Journal Medical Pharmaceutical Sciences 2013; 3: 41-48.
• 19. Onat G, Aba YA. Health-promoting lifestyles and related factors among pregnant women. Turk Journal Public Health 2014; 12: 69-79.
• 20. Hwang WJ, Saeng Hong O, Rankin SH. Predictors of health-promoting behavior associated with cardiovascular diseases among Korean blue-collar workers. Asia Pac J Public Health 2015; 27: 691-702.
• 21. Kim C, Park J, Kang SW. Health-Promoting lifestyles and cardio-metabolic risk factors among international students in South Korea. Collegian 2014; 22: 215-223.
• 22. Sivrikaya AH, Sivrikaya S, Altun ÖŞ. An analysis of healthy life behaviors in physical education and sports school students. Balıkesir Journal of Health Sciences 2013; 2: 133-138. 23. Kang SW, Yoo JS. Health-promoting lifestyle and depression in metabolic syndrome patients in Korea. International Journal of Nursing Practice 2012; 18: 268-274.
• 24. Küçükberber N, Özdilli K, Yorulmaz H. An analysis of the healthy life style behaviors of cardiac patients and related factors. Anadolu Journal of Cardiology 2011; 11: 619-626.
• 25. Drevenhorn E, Bengston A, Allen JK, Sa¨Ljo R, Kjellgren KI. Counselling on lifestyle factors in hypertension care after training on the stages of change model. European Journal of Cardiovascular Nursing 2007; 6: 46-53.
• 26. Efe E, İşler A, Sarvan S, Başer H, Yeşilipek A. Complementary and alternative medicine use in children with thalassaemia. Journal of Clinical Nursing 2013; 22: 760-769.
• 27. Post-White J, Fitzgerald M, Hageness S. Complementary and alternative medicine use in children with cancer and general and specialty pediatrics. Journal of Pediatric Oncology Nursing 2009; 26: 7-15.
• 28. Jafari H, Lahsaeizadeh S, Jafari P, Karimi M. Quality of life in thalassemia major: reliability and validity of the persian version of the sf-36 questionnaire. J Postgrad Med 2008; 54: 273-275.
• 29. Sobota A, Yamashita R, Xu Y, Trachtenberg F, Kohlbry P, Kleinert DA, Giardina PJ, Kwiatkowski JL, Foote D, Thayalasuthan V, Porter JB, Thompson AA, Schilling L, Quinn CT, Neufeld EJ. Quality of life in thalassemia: A comparison of SF-36 results from the thalassemia longitudinal cohort to reported literature and the US norms. Am J Hematol 2011; 86: 92-95. 30. Özkan S, Yılmaz E. Healthy life behaviors of hospital nurses. Fırat Medical Services Journal 2008; 3: 89-105.