Living with My Intellectually Disabled Sibling: A Qualitative Research
Öz
This study aims to identify the life experiences of individuals who have intellectually disabled siblings and their views on this situation. 10 individuals participated in the study. The design of this study is qualitative research; we used a semi-structured interview form for data collection. Ethical approval of the study and individual consent of the participants was obtained. We performed a thematic analysis in analysing the data. We conducted the study under three categories: thinking, emotion/behaviour and coping; and eight main themes: having a disabled sibling, thoughts about the attitude of people around, feelings about having a disabled sibling, the way of showing love to the disabled sibling, experiencing difficulties in the family, experiencing difficulties in making explanations to the people around, practices they perform in the face of difficulties. Although having an intellectually disabled sibling is challenging for the non-disabled sibling, it is also enabling them to gain maturity and developmental features.
Anahtar Kelimeler
Destekleyen Kurum
Funding Statement: This research is funded by the Scientific Research Projects Coordination Unit of Akdeniz University (Project code: TSA-2020-5322)
Etik Beyan
This research is funded by the Scientific Research Projects Coordination Unit of Akdeniz University (Project code: TSA-2020-5322)
Kaynakça
- Aksoy, A. B. & Berçin Yıldırım, G. (2008). A study of the relationships and acknowledgement of non-disabled children with disabled siblings. Journal of Educational Sciences in Theory and Practice, 8(3), 769-779.
- Atkin, K., & Tozer, R. (2014). Personalisation, family relationships and autism: Conceptualising the role of adult siblings. Journal of Social Work, 14(3), 225-242. https://doi.org/10.1177/1468017313476453
- Benson, P. R. & Karlof, K. L. (2008). Child, parent and family predictors of latter adjusment in sibling of children with autism. Research in Autism Spectrum Disorders, 2(4), 583-600. https://doi.org/10.1016/j.rasd.2007.12.002
- Beyer, J. F. (2009). Autism spectrum disorders and sibling relationships: Research and strategies. Education and Training in Developmental Disabilities, 44(4), 444-452. https://www.jstor.org/stable/24234254
- Bilal, E. & Dağ, I. (2005). The comparison of stress, locus of control and coping styles in mothers of children with mild mental dıiability and in mothers of typically devoloping children. Turk. J. Child. Adolesc. Ment. Health. 12(2), 56–68.
- Burke, M.M., Taylor, J.L., Urbano, R. & Hodapp, R.M. (2012). Predictors of Future Caregiving by Adult Siblings of Individuals With Intellectual and Developmental Disabilities. Journal of Intellectual & Developmental Disability, 117(1):33-47. https://doi.org/10.1352/1944-7558-117.1.33
- Coyle, C.E., Kramer, J. & Mutchler, J.E. (2014). Aging together: Sibling carers of adults with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 11(4),302-312. https://doi.org/doi.org/10.1111/jppi.12094
- Creswell, J. W. (2018). Nitel araştırma yöntemleri: Beş yaklaşıma göre nitel araştırma ve araştırma deseni (M. Bütün ve S. B. Demir, Çev., Yay. haz.). Siyasal Kitapevi.
- Emerson, E. & Giallo, R. (2014). The wellbeing of siblings of children with disabilities. Research in Developmental Disabilities, 35(9), 2085-2092, https://doi.org/10.1016/j.ridd.2014.05.001
- Er, M. (2006). Child, illness, parents and siblings. Journal of Child Health and Diseases, 49, 155-168.
