Living with My Intellectually Disabled Sibling: A Qualitative Research

Yıl 2025, Cilt: 42 Sayı: 2

Sibel Çaynak , İlkay Keser , Şeyma Demiralay , Şerife Bilge Duran

https://doi.org/10.32600/huefd.1610698

Öz

This study aims to identify the life experiences of individuals who have intellectually disabled siblings and their views on this situation. 10 individuals participated in the study. The design of this study is qualitative research; we used a semi-structured interview form for data collection. Ethical approval of the study and individual consent of the participants was obtained. We performed a thematic analysis in analysing the data. We conducted the study under three categories: thinking, emotion/behaviour and coping; and eight main themes: having a disabled sibling, thoughts about the attitude of people around, feelings about having a disabled sibling, the way of showing love to the disabled sibling, experiencing difficulties in the family, experiencing difficulties in making explanations to the people around, practices they perform in the face of difficulties. Although having an intellectually disabled sibling is challenging for the non-disabled sibling, it is also enabling them to gain maturity and developmental features.

Anahtar Kelimeler

Intellectual disability , sibling , qualitative study

Etik Beyan

This research is funded by the Scientific Research Projects Coordination Unit of Akdeniz University (Project code: TSA-2020-5322)

Destekleyen Kurum

Funding Statement: This research is funded by the Scientific Research Projects Coordination Unit of Akdeniz University (Project code: TSA-2020-5322)

Zihinsel Engelli Kardeşimle Yaşamak: Nitel Bir Araştırma

Öz

Bu çalışma, zihinsel engelli kardeşi olan bireylerin yaşam deneyimlerini ve bu duruma ilişkin görüşlerini belirlemeyi amaçlamaktadır. Araştırmaya 10 kişi katılmıştır. Bu çalışmanın tasarımı nitel bir araştırmadır; veri toplamak için yarı yapılandırılmış görüşme formu kullanılmıştır. Araştırmanın etik onayı ve katılımcıların bireysel onamları alınmıştır. Verilerin analizinde tematik analiz yapılmıştır. Araştırma üç kategoride gerçekleştirilmiştir: düşünme, duygu/davranış ve başa çıkma ve sekiz ana tema: engelli kardeşe sahip olmak, çevredekilerin tutumlarına ilişkin düşünceler, engelli kardeşe sahip olmakla ilgili duygular, engelli kardeşe sevgi gösterme şekli, aile içinde yaşanan zorluklar, çevredekilere açıklama yapmada zorluk yaşanması, zorluklar karşısında yaptıkları uygulamalardır. Zihinsel engelli bir kardeşe sahip olmak, engelli olmayan kardeş için zorlayıcı olsa da aynı zamanda onun olgunluk ve gelişimsel özellikler kazanmasını da sağlamaktadır.

Anahtar Kelimeler

Zihinsel engelli , kardeş , nitel çalışma

Kaynakça

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