Down sendromlu adölesanlarla aktiviteye katılım ve yaşam kalitesi

Öz

Amaç: Bu çalışmanın amacı, Down Sendromlu adölesanların aktivitelere katılımlarının yaşam kalitesiyle birlikte değerlendirilmesi ve normal gelişimli adölesanlarla karşılaştırılmasıdır.

Yöntem: Çalışmaya 30 adölesan dahil edildi. Bunlardan Down Sendromlu olan 15 olgu çalışma grubuna, normal gelişimli olan 15 olgu ise kontrol grubuna alındı. Aktivitelere katılımı değerlendirmek için Çocuk ve Ergen Katılım Ölçeği, yaşam kalitesini değerlendirmek için Çocuklar için Yaşam Kalitesi Ölçeği (13-18 yaş) ve kaba motor fonksiyonları değerlendirmek için Kaba Motor Fonksiyon Ölçeği-88 kullanıldı.

Bulgular: Kontrol grubundaki adölesanların kaba motor fonksiyonları, çalışma grubundaki adölesanlara kıyasla daha gelişmiş durumdaydı (p<0,05). Kontrol grubundaki adölesanların yaşam kalitesi fiziksel ve psikososyal yönden çalışma grubundaki olgulardan daha yüksekti (p<0,05). Çalışma grubundaki adölesanların toplumsal ve sosyal yaşama katılımları kontrol grubundaki adölesanlardan daha yüksekti (p<0,05). Kontrol grubundaki adölesanların ise ev içi katılımı daha yüksekti (p<0,05).

Sonuç: Down sendromlu adölesanların aktivitelere katılımı ve yaşam kalitesi, genel olarak normal gelişimli adölesanlara kıyasla daha düşüktür.

Anahtar Kelimeler

• Down Sendromu
• Motor Aktivite
• Toplumsal Katılım
• Yaşam Kalitesi

Participation in activity and quality of life in adolescents with Down Syndrome

Öz

Purpose: The aim of this study was to evaluate the participation of adolescents with Down syndrome in activities together with their quality of life and to compare them with adolescents with normal development.

Methods: Thirty adolescents were included in the study. Of these, 15 cases with Down syndrome were included in the study group, and 15 cases with normal development were included in the control group. The Child and Adolescent Participation Scale was used to assess participation in activities, the Pediatric Quality of Life Inventory (13-18 years) to evaluate the quality of life, and the Gross Motor Function Scale-88 to evaluate gross motor functions.

Results: The gross motor functions of adolescents in the control group were more developed compared to adolescents in the study group (p<0.05). The quality of life of the adolescents in the control group was higher in physical and psychosocial aspects than the adolescents in the study group (p<0.05). Participation in the community and social life of the subjects in the study group was higher than the adolescents in the control group (p<0.05). On the other hand, participation at home of adolescents in the control group was higher (p <0.05).

Conclusion: Participation in the activities and quality of life of adolescents with Down Syndrome is generally lower than adolescents with normal development.

Anahtar Kelimeler

• Down Syndrome
• Motor Activity
• Community Participation
• Quality of Life

Kaynakça

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