Evaluation of Self-Efficacy and Health-Related Quality of Life in Pediatric-Onset Multiple Sclerosis Patients

Öz

Objective: To assess the self-efficacy level and health-related quality of life in pediatric-onset multiple sclerosis (POMS) patients.

Material and Methods: A cross-sectional study was conducted between January-April 2022 at Hacettepe University Department of Pediatric Neurology using The Pediatric Rating of Chronic Illness Self-Efficacy (PRCISE) Scale and Pediatric Quality of Life Inventory (PedsQL).

Results: Twenty-nine POMS patients with a median age of 16.4 years (F/M: 20/9) were included in the study. The mean PRCISE Scale score was 101.8±22.4 and the mean PedsQL score was 66.5±16.2. Both scores were lower than previously reported in the literature.

Conclusion: Lower self-efficacy and HRQoL levels might be attributed to fatigue which is common in POMS. The impact of the COVID-19 pandemic on mental health and quality of life should be addressed in patients with POMS.

Anahtar Kelimeler

• self efficacy
• health-related quality of life
• pediatric-onset multiple sclerosis

Çocukluk Çağı Başlangıçlı Multipl Skleroz Hastalarında Öz Yeterlilik ve Sağlıkla İlişkili Yaşam Kalitesinin Değerlendirilmesi

Öz

Amaç: Bu çalışma ile çocukluk çağı başlangıçlı multipl skleroz (çMS) hastalarının öz yeterlilik ve sağlıkla ilişkili yaşam kalitesi düzeylerinin değerlendirilmesi amaçlanmıştır. Gereç ve

Yöntemler: Ocak 2022 – Nisan 2022 tarihleri arasında kesitsel olarak gerçekleştirilen bu çalışmada çMS tanılı hastalalar Pediatrik Kronik Hastalık İçin Öz Yeterlilik Ölçeği (PKHÖYÖ) ve Çocuk Çağı Yaşam Kalitesi Ölçekleri (ÇÇYKÖ) ile değerlendirilmiştir.

Bulgular: Ortalama yaşları 16.4 yıl olan 29 çMS hastası (K/E:20/9) çalışmaya katılmıştır. PKHÖYÖ ortalaması 101.8±22.4 puan elde edilmiş olup, ÇÇYKÖ skorlamasında ortalama 66.5±16.2 puan elde edilmiştir. Her iki değerin literatürde daha önceki yapılmış olan çalışmalardan düşük olduğu görülmüştür.

Sonuç: Pediatrik Kronik Hastalık İçin Öz Yeterlilik Ölçeği ve ÇÇYKÖ ortalama skorlarının düşük olması çMS hastalarında yaygın görülen kronik yorgunlukla ilişkili olabilir. Ayrıca COVID-19 pandemisinin çMS hastalarında mental sağlık ve yaşam kalitesi üzerindeki etkisi de bu sonuçlar yorunmlanırken göz önünde bulundurulmalıdır.

Anahtar Kelimeler

• öz yeterlilik
• yaşam kalitesi
• çocukluk çağı,
• multipl sklerosis

Kaynakça

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