MEDICAL SOCIAL WORK PRACTICES IN SYMPTOM MANAGEMENT

Yıl 2022, , 103 - 119, 30.06.2022

Mustafa Karataş , Mehmet Başcıllar , Merve Deniz Pak Güre

https://doi.org/10.46218/tshd.1055610

Öz

Symptom management is the whole of care given to improve the quality of life of individuals with chronic diseases. Multidisciplinary teams are required to provide physical and psychosocial care. Social workers are members of multidisciplinary teams where symptom management is carried out within the scope of medical social work. Interventions are necessary for areas such as improving the quality of life of patients and families, increasing problem-solving skills, providing access to needed resources, determining treatment and care processes with the interaction of patients, family members, caregivers, and healthcare professionals, and ultimately ensuring well-being. This study aims to reveal the roles, functions, and medical social work practices in symptom management. The role of the social worker as consultant, trainer, advocator, and policy developer comes to the fore. Medical social work practice in symptom management aimed to establish therapeutic relationships with the client system, to ensure the current symptoms are accepted by them, and to guide the treatment and care processes of the intervention.

Anahtar Kelimeler

Symptom, Symptom Management, Chronic Diseases

SEMPTOM YÖNETİMİNDE TIBBİ SOSYAL HİZMET UYGULAMALARI

Öz

Semptom yönetimi özellikle kronik hastalığı olan bireylerin yaşam kalitelerini yükseltmek için verilen bakımın bütünüdür. Fiziksel ve psikososyal bakımın sağlanmasında multidisipliner ekiplere ihtiyaç duyulmaktadır. Sosyal hizmet uzmanları tıbbi sosyal hizmet kapsamında yaptıkları mesleki çalışmalarda semptom yönetiminin gerçekleştirildiği çok disiplinli ekiplerin bir üyesidir. Hastaların ve ailelerin yaşam kalitesinin yükseltilmesi, problem çözme becerilerinin arttırılması, gereksinim duyulan kaynaklara erişim sağlanması, tedavi ve bakım süreçlerinin hastalar, aile üyeleri, bakım verenler ve sağlık profesyonellerinin etkileşimiyle belirlenmesi ve nihai olarak tam iyilik halinin sağlanması gibi alanlarda sosyal hizmet uzmanlarının müdahaleleri gerekli olmaktadır. Bu çalışmanın amacı sosyal hizmet uzmanlarının semptom yönetimi sürecinde rollerinin, işlevlerinin ve tıbbi sosyal hizmet uygulamalarının ortaya konulmasıdır. Bu çerçevede sosyal hizmet uzmanlarının danışman, eğitmen, savunucu ve politika geliştirici rolleri ön plana çıkmaktadır. Semptom yönetimi kapsamındaki tıbbi sosyal hizmet uygulamasında ise müracaatçı sistemiyle terapötik ilişkilerin kurulması, mevcut semptomların müracaatçı tarafından kabullenilmesi, tedavi ve bakım süreçlerine müracaatçı sisteminin yön vermesinin sağlanması amaçlanmaktadır.

Anahtar Kelimeler

Semptom, Semptom Yönetimi, Kronik Hastalıklar, Tıbbi Sosyal Hizmet

Kaynakça

• Alpert, C. M., Smith, M. A., Hummel, S. L., & Hummel, E. K. (2017). Symptom burden in heart failure: assessment, impact on outcomes, and management.Heart failure reviews,22(1), 25-39.
• Altilio, T. (2007). Pain Management-Speaking to Social Work. Social Work Today. https://www.socialworktoday.com/archive/novdec2007p44.shtml
• Armstrong, T. S. (2003). Symptoms experience: a concept analysis. In Oncology nursing forum, 30(4), 601-606.
• Barsevick, A. M., Whitmer, K., Nail, L. M., Beck, S. L., & Dudley, W. N. (2006). Symptom cluster research: conceptual, design, measurement, and analysis issues. Journal of pain and symptom management, 31(1), 85-95.
• Bookbinder, M., & McHugh, M. E. (2010). Symptom management in palliative care and end of life care.Nursing Clinics,45(3), 271-327.
• Brant, J. M., Beck, S., & Miaskowski, C. (2010). Building dynamic models and theories to advance the science of symptom management research. Journal of Advanced Nursing, 66(1), 228-240.
• Brockopp, D. Y., Brockopp, G., Warden, S., Wilson, J., Carpenter, J. S., & Vandeveer, B. (1998). Barriers to change: a pain management project. International journal of nursing studies, 35(4), 226-232.
• Burch, J., Taylor, C., Wilson, A., & Norton, C. (2021). Symptoms affecting quality of life after sphincter-saving rectal cancer surgery: A systematic review. European Journal of Oncology Nursing, 101934.
• Cabrera, V. J., Hansson, J., Kliger, A. S., & Finkelstein, F. O. (2017). Symptom management of the patient with CKD: the role of dialysis.Clinical Journal of the American Society of Nephrology,12(4), 687-693.
• Chiou, P. Y., Kuo, B. I. T., Lee, M. B., Chen, Y. M., Chuang, P., & Lin, L. C. (2006). A programme of symptom management for improving quality of life and drug adherence in AIDS/HIV patients. Journal of advanced nursing,55(2), 169-179.
• Chou, F. Y., Holzemer, W. L., Portillo, C. J., & Slaughter, R. (2004). Self-care strategies and sources of information for HIV/AIDS symptom management.Nursing research,53(5), 332-339.
• Conchon, M. F., Nascimento, L. A. D., Fonseca, L. F., & Aroni, P. (2015). Sede perioperatória: uma análise sob a perspectiva da Teoria de Manejo de Sintomas. Revista da Escola de Enfermagem da USP, 49, 122-128.
• Crabtree-Hartman, E. (2018). Advanced symptom management in multiple sclerosis. Neurologic clinics, 36(1), 197-218.
• Dodd, M., Janson, S., Facione, N., Faucett, J., Froelicher, E. S., Humphreys, J., ... & Taylor, D. (2001). Advancing the science of symptom management. Journal of advanced nursing, 33(5), 668-676.
• Flythe, J. E., Hilliard, T., Lumby, E., Castillo, G., Orazi, J., Abdel-Rahman, E. M., ... & Mehrotra, R. (2019). Fostering innovation in symptom management among hemodialysis patients: paths forward for insomnia, muscle cramps, and fatigue. Clinical journal of the American Society of Nephrology, 14(1), 150-160.
• Gorin, S. S., Krebs, P., Badr, H., Janke, E. A., Jim, H. S., Spring, B., Mohr, D. C., Berendsen, M. A., & Jacobsen, P. B. (2012). Meta-analysis of psychosocial interventions to reduce pain in patients with cancer. Journal of Clinical Oncology, 30(5), 539.
• Hagmann, C., Cramer, A., Kestenbaum, A., Durazo, C., Downey, A., Russell, M., ... & Roeland, E. J. (2018). Evidence-based palliative care approaches to non-pain physical symptom management in cancer patients. In Seminars in oncology nursing(Vol. 34, No. 3, pp. 227-240). WB Saunders.
• Humphreys, J., Janson, S., Donesky, D. A., Dracup, K., Lee, K. A., Puntillo, K., Faucett, J. A., Aouizerat, B., Miaskowski, C., Baggott, C., Carrieri-Kohlman, V., Barger, M., Franck, L., Kennedy, C., & University of California, San Francisco, School of Nursing, Symptom Management Faculty Group. (2014). Theory of symptom management. In M. J. Smith & P. R. Liehr (Eds.), Middle range theory for nursing (pp. 141–164). Springer Publishing Company.
• Jacox, A., Carr, D., Payne, R., & Berde, C. (1994). Management of cancer pain (Vol. 9). AHCPR publication.
• Kim, H. J., McGuire, D. B., Tulman, L., & Barsevick, A. M. (2005). Symptom clusters: concept analysis and clinical implications for cancer nursing. Cancer nursing, 28(4), 270-282.
• Koshy, A. O., Gallivan, E. R., McGinlay, M., Straw, S., Drozd, M., Toms, A. G., ... & Witte, K. K. (2020). Prioritizing symptom management in the treatment of chronic heart failure.ESC Heart Failure,7(5), 2193-2207.
• Lenz, E. R., & Pugh, L. C. (2003). The theory of unpleasant symptoms. Middle range theory for nursing, 69-90.
• Linder, L. (2010). Analysis of the UCSF Symptom Management Theory: implications for pediatric oncology nursing. Journal of Pediatric Oncology Nursing, 27(6), 316-324.
• Lyons, K. S., & Lee, C. S. (2018). The theory of dyadic illness management. Journal of Family Nursing, 24(1), 8-28.
• MacDonald, J. E. (2000). A deconstructive turn in chronic pain treatment: A redefined role for social work. Health & social work, 25(1), 51-58.
• Mendenhall, M. (2003). Psychosocial aspects of pain management: A conceptual framework for social workers on pain management teams. Social work in health care, 36(4), 35-51.
• Miaskowski, C., Barsevick, A., Berger, A., Casagrande, R., Grady, P. A., Jacobsen, P., ... & Marden, S. (2017). Advancing symptom science through symptom cluster research: Expert panel proceedings and recommendations. JNCI: Journal of the National Cancer Institute, 109(4), 1-9.
• Morlion, B., Pergolizzi, J. & Huygen, F. (2011). The Core Multidisciplinary Team. Towards a Multidisciplinary Approach in Chronic Pain Management. https://www.pae-eu.eu/wp-content/uploads/2013/12/Multidisciplinary-approach-in-chronic-pain-management.pdf
• Mosher, C. E., Ott, M. A., Hanna, N., Jalal, S. I., & Champion, V. L. (2017). Development of a symptom management intervention: qualitative feedback from advanced lung cancer patients and their family caregivers. Cancer nursing, 40(1), 66-75.
• Murtagh, F. E. M., Addington‐Hall, J. M., Donohoe, P., & Higginson, I. J. (2006). Symptom management in patients with established renal failure managed without dialysis.EDTNA‐ERCA Journal,32(2), 93-98.
• NASW. (2019). Pain Management Best Practices Inter-Agency Task Force Draft Report on Pain Management Best Practices. Retrieved 03 Ocak from https://www.socialworkers.org/LinkClick.aspx?fileticket=F1A-lt2Boio%3D&portalid=0
• National Institutes of Health State-of-the-Science Panel. (2003). National Institutes of Health State-of-the-Science Conference Statement: symptom management in cancer: pain, depression, and fatigue, July 15–17, 2002.Journal of the National Cancer Institute,95(15), 1110-1117.
• Noble, N. (2018). Symptom management in women undergoing the menopause. Nursing Standard, 32(22), 53-64.
• O'connor, N. R., & Corcoran, A. M. (2012). End-stage renal disease: symptom management and advance care planning.American family physician,85(7), 705-710.
• Otis-Green, S., Lucas, S., Spolum, M., Ferrell, B., & Grant, M. (2008). Promoting excellence in pain management and palliative care for social workers. Journal of social work in end-of-life & palliative care, 4(2), 120-134.
• Parker Oliver, D., Wittenberg-Lyles, E., Washington, K. T., & Sehrawat, S. (2009). Social work role in hospice pain management: A national survey. Journal of social work in end-of-life & palliative care, 5(1-2), 61-74.
• Pituskin, E., Fairchild, A., Dutka, J., Gagnon, L., Driga, A., Tachynski, P., ... & Ghosh, S. (2010). Multidisciplinary team contributions within a dedicated outpatient palliative radiotherapy clinic: a prospective descriptive study. International Journal of Radiation Oncology, 78(2), 527-532.
• Reese, D. J., & Sontag, M.-A. (2001). Successful interprofessional collaboration on the hospice team. Health & social work, 26(3), 167-175.
• Rogers, K. A., & MacDonald, M. (2015). Therapeutic yoga: symptom management for multiple sclerosis.The Journal of Alternative and Complementary Medicine,21(11), 655-659.
• Rosenberg, J. P., Bullen, T., & Maher, K. (2015). Supporting family caregivers with palliative symptom management: a qualitative analysis of the provision of an emergency medication kit in the home setting. American Journal of Hospice and Palliative Medicine, 32(5), 484-489.
• Schapiro, R. T. (1994). Symptom management in multiple sclerosis. Annals of Neurology, 36(1), S123-S129.
• Sieppert, J. D. (1996). Attitudes toward and knowledge of chronic pain: A survey of medical social workers. Health & social work, 21(2), 122-130.
• Sikorskii, A., Given, C. W., Given, B., Jeon, S., Decker, V., Decker, D.,& McCorkle, R. (2007). Symptom management for cancer patients: a trial comparing two multimodal interventions. Journal of pain and symptom management,34(3), 253-264.
• Silva, L. A. G. P. D., Lopes, V. J., & Mercês, N. N. A. D. (2021). Symptom management theory applied to nursing care: scoping review. Revista Brasileira de Enfermagem, 74(1),1-9.
• So, W. K., Marsh, G., Ling, W. M., Leung, F. Y., Lo, J. C., Yeung, M., & Li, G. K. (2009). The symptom cluster of fatigue, pain, anxiety, and depression and the effect on the quality of life of women receiving treatment for breast cancer: a multicenter study. In Oncology nursing forum, 36(4), 205-214.
• Spirig, R., Moody, K., Battegay, M., & De Geest, S. (2005). Symptom management in HIV/AIDS: advancing the conceptualization. Advances in Nursing Science,28(4), 333-344.
• Sukati, N. A., Mndebele, S. C., Makoa, E. T. S., Ramukumba, T. S., Makoae, L. N., Seboni, N. M., ... & Holzemer, W. L. (2005). HIV/AIDS symptom management in Southern Africa. Journal of Pain and Symptom Management,29(2), 185-192.
• Taberna, M., Gil Moncayo, F., Jané-Salas, E., Antonio, M., Arribas, L., Vilajosana, E., ... & Mesía, R. (2020). The multidisciplinary team (MDT) approach and quality of care. Frontiers in oncology, 10, 85-91.
• Tarolli, C. G., Zimmerman, G. A., Auinger, P., McIntosh, S., Horowitz, R. K., Kluger, B. M., ... & Holloway, R. G. (2020). Symptom burden among individuals with Parkinson disease: A national survey. Neurology: Clinical Practice, 10(1), 65-72.
• Thida, M., Asdornwised, U., Thosingha, O., Dumavibhat, C., & Chansatitporn, N. (2021). Symptom Experience, Symptom Management Strategies, and Health Related Quality of Life among People with Heart Failure. Pacific Rim International Journal of Nursing Research, 25(3), 359-374.
• Tomita, A., Burns, J. K., King, H., Baumgartner, J. N., Davis, G. P., Mtshemla, S., Nene, S., & Susser, E. (2016). Beyond symptom management: Family relations, unmet needs of persons living with severe mental illnesses, and potential implications for social work in South Africa. Social work in health care, 55(1), 12-27.
• Van Vu, D., Molassiotis, A., Ching, S. S. Y., & Le, T. T. (2017). Effects of Qigong on symptom management in cancer patients: a systematic review. Complementary therapies in clinical practice,29, 111-121.
• Wantland, D. J., Holzemer, W. L., Moezzi, S., Willard, S. S., Arudo, J., Kirksey, K. M., ... & Huang, E. (2008). A randomized controlled trial testing the efficacy of an HIV/AIDS symptom management manual. Journal of Pain and Symptom Management,36(3), 235-246.
• Webber, K., Davies, A. N., Leach, C., & Waghorn, M. (2021). Symptom prevalence and severity in palliative cancer medicine. BMJ Supportive & Palliative Care.1, 1-3.
• Wilcock, A. (2001).Symptom management in advanced cancer. Radcliffe Publishing.
• Wilkie, D. J., & Ezenwa, M. O. (2012). Pain and symptom management in palliative care and at end of life.Nursing outlook,60(6), 357-364.
• Ziemssen, T. (2011). Symptom management in patients with multiple sclerosis. Journal of the neurological sciences,311, S48-S52.