Otizm Araştırmaları Perspektifinden Katılımlı Araştırma Yöntemleri

Öz

ÖZ Bu makalede, bilimsel araştırma sürecine katılımlı araştırma yöntemlerinin entegre edilmesinin öneminden bahsedilmektedir. Katılımlı araştırma yöntemi, araştırılan olguyla direkt veya dolaylı yönden ilişkili hedef kitlenin—bu, otizm araştırmaları özelinde, otistik topluluk anlamına gelmektedir—araştırma sürecine dahil edilmesi şeklinde tanımlanabilir. Bu makalede, katılımlı araştırma yaklaşımının temel unsurları ve bir araştırma sürecinde (araştırma sorusu belirleme, araştırmanın tasarlanması, veri toplama ve araştırma bulgularının yayımlanması gibi) nasıl uygulanabileceği adım adım anlatılmaktadır. Otistik topluluktan oluşan özne-danışma komiteleri ile bu olguyu bizzat deneyimleyenlerden danışmanlık alınması, katılımlı araştırma yöntemine örnek bir strateji olarak sunulmuştur. Katılımlı araştırma yönteminin, araştırmaların kalitesini artırarak araştırma bulgularının uygulamaya çevrilmesini kolaylaştırdığı, otizm topluluğuna anlamlı faydalar sağladığı ve araştırmacılar ile otistik topluluk arasındaki güç dengesizliğini azaltıp iş birliği, etkileşim ve güveni artırdığı vurgulanmaktadır.

Anahtar Kelimeler

• Katılımlı araştırma
• otizm araştırmaları
• topluluk katılımı
• nöroçeşitlilik
• yöntem

Participatory Research Methods from the Perspective of Autism Studies

Öz

ABSTRACT This article discusses the importance of integrating participatory research methods into scientific research process. Participatory research methods can be defined as involving the target group, which is directly or indirectly related to the phenomenon being studied—specifically, in autism research, this refers to the autistic community—in the research process. The article provides the key elements of the participatory research approach and how it can be applied in various stages of a research process (such as defining the research question, designing the research, data collection, and publishing research findings) step-by-step. Consulting with subject-advisory committees, consisting of members from the autistic community, meaning seeking advice from those who have personally experienced the phenomenon, is presented as an example strategy for participatory research methods. This article emphasizes that participatory research methods enhance the quality of research, facilitate the translation of research findings into practice, provide meaningful benefits to the autism community, and reduce the power imbalance between researchers and the autistic community while increasing collaboration, interaction, and trust.

Anahtar Kelimeler

• Participatory research
• autism research
• community involvement
• neurodiversity
• method

Kaynakça

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