KLİNİĞİMİZDE MULTİPLE SKLEROZ TANISI İLE İZLENEN HASTALARIN KLİNİK DEMOGRAFİK VERİLERİNİN ÖZÜRLÜLÜK İLE İLİŞKİSİ

Öz

Amaç: Multipl Skleroz (MS) genç erişkinlerde özürlülüğün sık nedenlerden birisidir. Bu çalışmada MS tanısı ile takip edilen hastaların klinik ve demografik verilerini engellilik açısından değerlendirmeyi amaçladık. Gereç ve Yöntemler: Bu retrospektif çalışmada MS polikliniğinde 9 Temmuz-9 Eylül 2022 tarihleri arasındaki iki aylık dönemde izlenen 195 hasta, hastane kayıt sistemi aracılığıyla değerlendirildi. Bulgular: Genişletilmiş engellilik durum ölçeği (EDSS) değerlendirmesi ile cinsiyet açısından fark saptanmadı (p>0,05). Doğal olarak progresif grupta EDSS daha yüksek bulundu. Ailesinde MS olan hastalarda sporadik vakalara göre EDSS farkı saptanmadı (p>0,05). Çalışmamızda medeni durum ile engellilik arasında evli olanlarda daha yüksek EDSS yönünde bir ilişki saptandı (p<0,05). Daha yüksek eğitim düzeyi daha düşük EDSS ile ilişkili bulundu. Kronik hastalıkların varlığı EDSS artışı ile uyumlu bulundu (p<0,05). İstihdam açısından bakıldığında ise çalışan grubun EDSS’si daha düşük bulunurken, çalışmak isteyip çalışamayan ve kendi isteğiyle çalışmayan grupta EDSS daha yüksek bulundu (p<0,05). Sigara içmek de engellilik gelişimi için bir risk faktörü olarak bulundu (p<0,05). Sonuç: Hastaların yaşam kalitelerinin arttırılması için aile, istihdam, eğitim, sigara içimi, yaşam tarzı önerileri ile gibi alanlarda farkındalığın oluşması klinik demografik verilerin paylaşılması ile mümkün olabilir. Hastalarının sosyal anlamda desteklenmesi bireysel ve toplumsal yükü azaltabilir.

Anahtar Kelimeler

• Multiple skleroz
• özürlülük
• klinik demografik veriler

Clinical Demographic Data and Disability in Patients Diagnosed with Multiple Sclerosis Followed in Our Clinic

Öz

Objective: Multiple sclerosis (MS) is one of the leading causes of disability among young people worldwide. This study aimed to evaluate the clinical and demographic characteristics of patients who were followed up with a diagnosis of MS in terms of disability. Material and Methods: This retrospective study evaluated 195 patients who applied to the MS outpatient clinic between July 9, 2022 and September 9, 2022, using the hospital data system. Results: There was no difference in the evaluation of Expanded Disability Status Scale (EDSS) in terms of gender (p>0.05). Naturally, EDSS was found to be higher in the progressive group. There was no difference in EDSS in patients with MS in their families compared to sporadic cases (p>0.05). Our study found a correlation between marital status and disability, with a higher EDSS among those who were married. (p>0.05). Higher education level was associated with lower EDSS (p<0.05). The presence of chronic diseases was found to be compatible with an increase in EDSS. In terms of employment, the EDSS of the working group was lower, but the EDSS was higher in the group who wanted to work but could not work and who did not work by choice (p<0.05). Smoking was also found to be a risk factor for developing disability (p<0.05). Conclusion: Improving patients’ quality of life may be possible by raising awareness in areas such as family, employment, education, smoking, and lifestyle, through the sharing of clinical and demographic data. Social support of MS patients can reduce individual and social burden.

Anahtar Kelimeler

• Multiple sclerosis
• disability
• clinical demographic data

Kaynakça

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