Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels

Yıl 2021, Cilt: 14 Sayı: 1, 223 - 232, 04.01.2021

Feride Yarar Melike Akdam İpek Çarpan Seçil Topal Hande Şenol Fatih Tekin

https://doi.org/10.31362/patd.758161

Cited By: 1

Öz

Purpose: The aim of this study is to investigate the effects of the financial burdens, familial and social life, personal strain due to psychological burdens and stress coping behaviors on the anxiety, depression and quality of life of mothers with a disabled child.
Materials and Methods: Mothers (33.32±6.31 years) of 50 disabled children (7.66±3.96 years) included in the study and were evaluated with Impact on Family Scale, Hospital Anxiety and Depression Scale and Nottingham Health Profile.
Results: A moderately correlation was found between the depression and anxiety levels of the mothers and all parameters except the coping (p<0.05). A high degree correlation was found between quality of life of mothers and financial burden and familial and social impact, and a moderately positive correlation with personal strain and coping (p<0.05). Also correlations were found between the sleep and all parameters of IFS (p<0.05). IFS affects the anxiety and depression levels of the mothers (p<0.05). Quality of life of mothers were affected by the IFS.
Conclusion: Having a disabled child was inevitable for mothers to have problems in familial and social life. The psychological and physical loads cause mothers to experience personal difficulties and imbalances, and have also affected their depression and anxiety levels.

Anahtar Kelimeler

Disabled Children, Anxiety, Depression, Quality of Life, Impact of Family Scale

Özürlü bir çocuğa sahip olmanın annelerin kaygı, depresyon ve yaşam kalitesi düzeylerine etkisi

Öz

Amaç: Bu çalışmanın amacı, özürlü çocuğu olan annelerin mali, ailesel, sosyal ve psikolojik yüklere bağlı kişisel baskı ve stresle başa çıkma davranışlarının anksiyete, depresyon ve yaşam kalitesi üzerine etkilerini araştırmaktır.
Gereç ve Yöntem: Çalışmaya 50 özürlü çocuğun (7.66 ± 3.96 yıl) anneleri (33.32 ± 6.31 yıl) dahil edildi ve Aile Etki Ölçeği, Hastane Anksiyete ve Depresyon Ölçeği ve Nottingham Sağlık Profili Üzerindeki Etkisi ile değerlendirildi.
Bulgular: Annelerin depresyon ve anksiyete düzeyleri ile başa çıkma parametresi dışındaki tüm parametreler arasında orta düzeyde korelasyon bulundu (p<0.05). Annelerin yaşam kalitesi ile mali yük ve ailesel ve sosyal etki arasında yüksek derecede, kişisel zorlanma ve başa çıkma ile orta derecede pozitif korelasyon bulundu (p<0.05). Ayrıca uyku ile Aile Etki Ölçeği'nin tüm parametreleri arasında korelasyon bulundu (p<0.05). Aile Etki Ölçeği, annelerin kaygı ve depresyon düzeyleri ile yaşam kalitelerini de etkilemekteydi (p<0.05).
Sonuç: Özürlü bir çocuğa sahip olan annelerin ailesel ve sosyal yaşamda sorun yaşamaları kaçınılmazdır. Psikolojik ve fiziksel yükler annelerin kişisel zorlanmalar ve dengesizlikler yaşamasına neden olurken, depresyon ve kaygı düzeylerini de etkilemiştir.

Anahtar Kelimeler

Özürlü Çocuk, Anksiyete, Depresyon, Yaşam Kalitesi, Aile Etki Ölçeği

Kaynakça

• Leonardi M, Bickenbach J, Ustun TB, Kostanjsek N, Chatterji S. The definition of disability: what is in a name? The Lancet 2006;368(9543):1219-1221.
• Barnes C. Theories of disability and the origins of the oppression of disabled people in western society. In Disability and society: Routledge; p. 43-60.
• Vonneilich N, Lüdecke D, Kofahl C. The impact of care on family and health-related quality of life of parents with chronically ill and disabled children. Disabil Rehabil 2016;38(8):761-767.
• Beydemir F, Cavlak U, Yolacan S, Ekici G. Reliability and validity of Turkish version of the impact on family scale: assessment of depressive symptoms and quality of life in mothers with cerebral palsied children. J Med Sci 2009;9(4):175-184.
• DeRigne L, Porterfield S. Employment change and the role of the medical home for married and single-mother families with children with special health care needs. Social science & medicine 2010;70(4):631-641.
• Park EY, Nam SJ. Time burden of caring and depression among parents of individuals with cerebral palsy. Disabil Rehabil 2019;41(13):1508-1513.
• Pocinho, M., & Fernandes, L. Depression, Stress and Anxiety among Parents of Sons with Disabilities. PPRJ 2018;1(1):103.
• Veisson M. Depression symptoms and emotional states in parents of disabled and non-disabled children. SBP Journal 1999;27(1):87-97.
• Ones K, Yilmaz E, Cetinkaya B, Caglar N. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). NNR 2005;19(3):232-237.
• Bumin G, Günal A, Tükel Ş. Anxiety, depression and quality of life in mothers of disabled children. SDÜ Tıp Fakültesi Dergisi 2008;15(1):6-11.
• Diwan S, Chovatiya H, Diwan J. Depression and quality of life in mothers of children with cerebral palsy. NJIRM 2011;35(15.53):81-90.
• Stein RE, Riessman CK. The development of an impact-on-family scale: preliminary findings. Med Care 1980;18(4):465-472.
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67(6):361-370.
• Aydemir Ö, Guvenir T, Kuey L, Kultur S. Validity and reliability of Turkish version of hospital anxiety and depression scale. Turk Psikiyatri Derg 1997;8(4):280-287.
• Hunt SM, McKenna SP, McEwen J, Williams J, Papp E. The Nottingham Health Profile: subjective health status and medical consultations. Social Science & Medicine. Part A: Medical Psychology & Medical Sociology 1981;15(3):221-229.
• Kücükdeveci AA, McKenna SP, Kutlay S, Gürsel Y, Whalley D, Arasil T. The development and psychometric assessment of the Turkish version of the Nottingham Health Profile. International journal of rehabilitation research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue internationale de recherches de readaptation 2000;23(1):31-38.
• Keller D, Honig AS. Maternal and paternal stress in families with school‐aged children with disabilities. American journal of orthopsychiatry 2004;74(3):337-348.
• Sen E, Yurtsever S. Difficulties experienced by families with disabled children. J Spec Pediatr Nurs 2007;12(4):238-52.
• Davis E, Shelly A, Waters E, Boyd R, Cook K, Davern M. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child: care, health and development 2010;36(1):63-73.
• Telci EA, Yarar F, Cavlak U, Atalay OT. Comparison of musculoskeletal pain distribution, quality of life and hopelessness level in mothers with disabled children in different ambulation levels. J Back Musculoskelet 2018;31(2):305-313.
• Tekinarslan IC. A comparison study of depression and quality of life in Turkish mothers of children with Down syndrome, cerebral palsy, and autism spectrum disorder. Psychol Rep 2013;112(1):266-287.
• Smith TB, Innocenti MS, Boyce GC, Smith, CS. Depressive symptomatology and interaction behaviors of mothers having a child with disabilities. Psychol Rep 1993;73(3):1184-1186.
• Ware Jr JE. Conceptualization and measurement of health-related quality of life: comments on an evolving field. Arch Phys Med Rehabil 2003;84:43-51.
• Rone-Adams SA, Stern DF, Walker V. Stress and compliance with a home exercise program among caregivers of children with disabilities. Pediatr Phys Ther 2004;16(3):140-148.
• Hernandez NE, Kolb S. Effects of relaxation on anxiety in primary caregivers of chronically ill children. Pediatric Nursing 1998;24(1):51.
• Byrne MB, Hurley DA, Daly L, Cunningham CG. Health status of caregivers of children with cerebral palsy. Child: care, health and development 2010;36(5):696-702.
• Raina P, O'Donnell M., Rosenbaum P, Brehaut J, Walter SD, Russell D. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005;115(6):626-636.