Yıl 2021, Cilt 14 , Sayı 1, Sayfalar 223 - 232 2021-01-04

Özürlü bir çocuğa sahip olmanın annelerin kaygı, depresyon ve yaşam kalitesi düzeylerine etkisi
Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels

Feride YARAR [1] , Melike AKDAM [2] , İ̇pek ÇARPAN [3] , Seçil TOPAL [4] , Hande ŞENOL [5] , Fatih TEKİN [6]


Amaç: Bu çalışmanın amacı, özürlü çocuğu olan annelerin mali, ailesel, sosyal ve psikolojik yüklere bağlı kişisel baskı ve stresle başa çıkma davranışlarının anksiyete, depresyon ve yaşam kalitesi üzerine etkilerini araştırmaktır. Gereç ve Yöntem: Çalışmaya 50 özürlü çocuğun (7.66 ± 3.96 yıl) anneleri (33.32 ± 6.31 yıl) dahil edildi ve Aile Etki Ölçeği, Hastane Anksiyete ve Depresyon Ölçeği ve Nottingham Sağlık Profili Üzerindeki Etkisi ile değerlendirildi. Bulgular: Annelerin depresyon ve anksiyete düzeyleri ile başa çıkma parametresi dışındaki tüm parametreler arasında orta düzeyde korelasyon bulundu (p<0.05). Annelerin yaşam kalitesi ile mali yük ve ailesel ve sosyal etki arasında yüksek derecede, kişisel zorlanma ve başa çıkma ile orta derecede pozitif korelasyon bulundu (p<0.05). Ayrıca uyku ile Aile Etki Ölçeği'nin tüm parametreleri arasında korelasyon bulundu (p<0.05). Aile Etki Ölçeği, annelerin kaygı ve depresyon düzeyleri ile yaşam kalitelerini de etkilemekteydi (p<0.05). Sonuç: Özürlü bir çocuğa sahip olan annelerin ailesel ve sosyal yaşamda sorun yaşamaları kaçınılmazdır. Psikolojik ve fiziksel yükler annelerin kişisel zorlanmalar ve dengesizlikler yaşamasına neden olurken, depresyon ve kaygı düzeylerini de etkilemiştir.
Purpose: The aim of this study is to investigate the effects of the financial burdens, familial and social life, personal strain due to psychological burdens and stress coping behaviors on the anxiety, depression and quality of life of mothers with a disabled child. Materials and Methods: Mothers (33.32±6.31 years) of 50 disabled children (7.66±3.96 years) included in the study and were evaluated with Impact on Family Scale, Hospital Anxiety and Depression Scale and Nottingham Health Profile. Results: A moderately correlation was found between the depression and anxiety levels of the mothers and all parameters except the coping (p<0.05). A high degree correlation was found between quality of life of mothers and financial burden and familial and social impact, and a moderately positive correlation with personal strain and coping (p<0.05). Also correlations were found between the sleep and all parameters of IFS (p<0.05). IFS affects the anxiety and depression levels of the mothers (p<0.05). Quality of life of mothers were affected by the IFS. Conclusion: Having a disabled child was inevitable for mothers to have problems in familial and social life. The psychological and physical loads cause mothers to experience personal difficulties and imbalances, and have also affected their depression and anxiety levels.
  • Leonardi M, Bickenbach J, Ustun TB, Kostanjsek N, Chatterji S. The definition of disability: what is in a name? The Lancet 2006;368(9543):1219-1221.
  • Barnes C. Theories of disability and the origins of the oppression of disabled people in western society. In Disability and society: Routledge; p. 43-60.
  • Vonneilich N, Lüdecke D, Kofahl C. The impact of care on family and health-related quality of life of parents with chronically ill and disabled children. Disabil Rehabil 2016;38(8):761-767.
  • Beydemir F, Cavlak U, Yolacan S, Ekici G. Reliability and validity of Turkish version of the impact on family scale: assessment of depressive symptoms and quality of life in mothers with cerebral palsied children. J Med Sci 2009;9(4):175-184.
  • DeRigne L, Porterfield S. Employment change and the role of the medical home for married and single-mother families with children with special health care needs. Social science & medicine 2010;70(4):631-641.
  • Park EY, Nam SJ. Time burden of caring and depression among parents of individuals with cerebral palsy. Disabil Rehabil 2019;41(13):1508-1513.
  • Pocinho, M., & Fernandes, L. Depression, Stress and Anxiety among Parents of Sons with Disabilities. PPRJ 2018;1(1):103.
  • Veisson M. Depression symptoms and emotional states in parents of disabled and non-disabled children. SBP Journal 1999;27(1):87-97.
  • Ones K, Yilmaz E, Cetinkaya B, Caglar N. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). NNR 2005;19(3):232-237.
  • Bumin G, Günal A, Tükel Ş. Anxiety, depression and quality of life in mothers of disabled children. SDÜ Tıp Fakültesi Dergisi 2008;15(1):6-11.
  • Diwan S, Chovatiya H, Diwan J. Depression and quality of life in mothers of children with cerebral palsy. NJIRM 2011;35(15.53):81-90.
  • Stein RE, Riessman CK. The development of an impact-on-family scale: preliminary findings. Med Care 1980;18(4):465-472.
  • Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67(6):361-370.
  • Aydemir Ö, Guvenir T, Kuey L, Kultur S. Validity and reliability of Turkish version of hospital anxiety and depression scale. Turk Psikiyatri Derg 1997;8(4):280-287.
  • Hunt SM, McKenna SP, McEwen J, Williams J, Papp E. The Nottingham Health Profile: subjective health status and medical consultations. Social Science & Medicine. Part A: Medical Psychology & Medical Sociology 1981;15(3):221-229.
  • Kücükdeveci AA, McKenna SP, Kutlay S, Gürsel Y, Whalley D, Arasil T. The development and psychometric assessment of the Turkish version of the Nottingham Health Profile. International journal of rehabilitation research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue internationale de recherches de readaptation 2000;23(1):31-38.
  • Keller D, Honig AS. Maternal and paternal stress in families with school‐aged children with disabilities. American journal of orthopsychiatry 2004;74(3):337-348.
  • Sen E, Yurtsever S. Difficulties experienced by families with disabled children. J Spec Pediatr Nurs 2007;12(4):238-52.
  • Davis E, Shelly A, Waters E, Boyd R, Cook K, Davern M. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child: care, health and development 2010;36(1):63-73.
  • Telci EA, Yarar F, Cavlak U, Atalay OT. Comparison of musculoskeletal pain distribution, quality of life and hopelessness level in mothers with disabled children in different ambulation levels. J Back Musculoskelet 2018;31(2):305-313.
  • Tekinarslan IC. A comparison study of depression and quality of life in Turkish mothers of children with Down syndrome, cerebral palsy, and autism spectrum disorder. Psychol Rep 2013;112(1):266-287.
  • Smith TB, Innocenti MS, Boyce GC, Smith, CS. Depressive symptomatology and interaction behaviors of mothers having a child with disabilities. Psychol Rep 1993;73(3):1184-1186.
  • Ware Jr JE. Conceptualization and measurement of health-related quality of life: comments on an evolving field. Arch Phys Med Rehabil 2003;84:43-51.
  • Rone-Adams SA, Stern DF, Walker V. Stress and compliance with a home exercise program among caregivers of children with disabilities. Pediatr Phys Ther 2004;16(3):140-148.
  • Hernandez NE, Kolb S. Effects of relaxation on anxiety in primary caregivers of chronically ill children. Pediatric Nursing 1998;24(1):51.
  • Byrne MB, Hurley DA, Daly L, Cunningham CG. Health status of caregivers of children with cerebral palsy. Child: care, health and development 2010;36(5):696-702.
  • Raina P, O'Donnell M., Rosenbaum P, Brehaut J, Walter SD, Russell D. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005;115(6):626-636.
Birincil Dil en
Konular Rehabilitasyon
Yayınlanma Tarihi Ocak 2021
Bölüm Araştırma Makalesi
Yazarlar

Orcid: 0000-0001-9938-7513
Yazar: Feride YARAR
Kurum: PAMUKKALE UNIVERSITY
Ülke: Turkey


Orcid: 0000-0002-3405-9030
Yazar: Melike AKDAM
Kurum: KTO KARATAY ÜNİVERSİTESİ
Ülke: Turkey


Orcid: 0000-0002-5910-8871
Yazar: İ̇pek ÇARPAN
Kurum: PAMUKKALE ÜNİVERSİTESİ
Ülke: Turkey


Orcid: 0000-0002-9164-3938
Yazar: Seçil TOPAL
Kurum: PAMUKKALE ÜNİVERSİTESİ
Ülke: Turkey


Orcid: 0000-0001-6395-7924
Yazar: Hande ŞENOL
Kurum: PAMUKKALE ÜNİVERSİTESİ
Ülke: Turkey


Orcid: 0000-0001-7829-7957
Yazar: Fatih TEKİN (Sorumlu Yazar)
Kurum: PAMUKKALE ÜNİVERSİTESİ
Ülke: Turkey


Tarihler

Yayımlanma Tarihi : 4 Ocak 2021

Bibtex @araştırma makalesi { patd758161, journal = {Pamukkale Tıp Dergisi}, issn = {}, eissn = {1308-0865}, address = {Pamukkale Üniversitesi Tıp Fakültesi Eğitim Blokları Kınıklı kampüsü 20070 Kınıklı, Denizli}, publisher = {Pamukkale Üniversitesi}, year = {2021}, volume = {14}, pages = {223 - 232}, doi = {10.31362/patd.758161}, title = {Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels}, key = {cite}, author = {Yarar, Feride and Akdam, Melike and Çarpan, İ̇pek and Topal, Seçil and Şenol, Hande and Teki̇n, Fatih} }
APA Yarar, F , Akdam, M , Çarpan, İ , Topal, S , Şenol, H , Teki̇n, F . (2021). Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels . Pamukkale Tıp Dergisi , 14. Cilt 1. Sayı , 223-232 . DOI: 10.31362/patd.758161
MLA Yarar, F , Akdam, M , Çarpan, İ , Topal, S , Şenol, H , Teki̇n, F . "Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels" . Pamukkale Tıp Dergisi 14 (2021 ): 223-232 <https://dergipark.org.tr/tr/pub/patd/issue/56734/758161>
Chicago Yarar, F , Akdam, M , Çarpan, İ , Topal, S , Şenol, H , Teki̇n, F . "Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels". Pamukkale Tıp Dergisi 14 (2021 ): 223-232
RIS TY - JOUR T1 - Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels AU - Feride Yarar , Melike Akdam , İ̇pek Çarpan , Seçil Topal , Hande Şenol , Fatih Teki̇n Y1 - 2021 PY - 2021 N1 - doi: 10.31362/patd.758161 DO - 10.31362/patd.758161 T2 - Pamukkale Tıp Dergisi JF - Journal JO - JOR SP - 223 EP - 232 VL - 14 IS - 1 SN - -1308-0865 M3 - doi: 10.31362/patd.758161 UR - https://doi.org/10.31362/patd.758161 Y2 - 2020 ER -
EndNote %0 Pamukkale Tıp Dergisi Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels %A Feride Yarar , Melike Akdam , İ̇pek Çarpan , Seçil Topal , Hande Şenol , Fatih Teki̇n %T Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels %D 2021 %J Pamukkale Tıp Dergisi %P -1308-0865 %V 14 %N 1 %R doi: 10.31362/patd.758161 %U 10.31362/patd.758161
ISNAD Yarar, Feride , Akdam, Melike , Çarpan, İ̇pek , Topal, Seçil , Şenol, Hande , Teki̇n, Fatih . "Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels". Pamukkale Tıp Dergisi 14 / 1 (Ocak 2021): 223-232 . https://doi.org/10.31362/patd.758161
AMA Yarar F , Akdam M , Çarpan İ , Topal S , Şenol H , Teki̇n F . Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels. Pamukkale Tıp Dergisi. 2021; 14(1): 223-232.
Vancouver Yarar F , Akdam M , Çarpan İ , Topal S , Şenol H , Teki̇n F . Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels. Pamukkale Tıp Dergisi. 2021; 14(1): 223-232.
IEEE F. Yarar , M. Akdam , İ. Çarpan , S. Topal , H. Şenol ve F. Teki̇n , "Impact of having a disabled child on mothers’ anxiety, depression and quality of life levels", Pamukkale Tıp Dergisi, c. 14, sayı. 1, ss. 223-232, Oca. 2021, doi:10.31362/patd.758161