Özel Gereksinimli Çocuğu olan Annelerin Kaygı Düzeyleri ile Eş Desteği Arasındaki İlişki

Öz

Bu araştırmada, özel gereksinimli çocuğa sahip annelerin algıladıkları eş desteği ile kaygı düzeyleri arasındaki ilişkinin incelenmesi amaçlanmıştır. Bu kapsamda çalışma, aile temelli destek gereksinimlerinin belirlenmesine katkı sunmayı hedeflemektedir. İlişkisel tarama modelinde yürütülen çalışmanın örneklemini İstanbul Avrupa Yakası'ndaki özel eğitim ve rehabilitasyon merkezlerine devam eden çocukların anneleri oluşturmuştur. Veriler Kişisel Bilgi Formu, Beck Anksiyete Envanteri ve Eş Desteği Ölçeği aracılığıyla toplanmış, betimsel istatistikler, Pearson korelasyon analizi, bağımsız örneklem t testi ve tek yönlü varyans analizi kullanılarak çözümlenmiştir. Algılanan eş desteği ile kaygı düzeyi arasında negatif yönde ancak istatistiksel olarak anlamlı olmayan bir ilişki bulunmuştur. Annelerin kaygı düzeyleri öğrenim durumuna göre farklılaşmazken, özel gereksinimli çocuğun cinsiyetine göre anlamlı farklılık göstermiştir. Bulgular, annelerin kaygı düzeylerinin yalnızca eş desteğiyle açıklanamayacağını, aile, sosyal destek ve kültürel bağlamı içeren bütüncül müdahalelerin önemli olduğunu göstermektedir.

Anahtar Kelimeler

• Eş desteği
• kaygı
• anneler
• özel gereksinimli çocuk
• sosyal destek

Etik Beyan

Çalışma için İstanbul Kent Üniversitesi Lisansüstü Eğitim Bilimleri Etik Kurulu'ndan etik onay alınmıştır. Tarih: 09.04.2025, Karar No: 2025-03. Tüm katılımcılar çalışmanın amacı hakkında bilgilendirilmiş ve gönüllü olarak katılmışlardır.

Teşekkür

Bu çalışmanın her aşamasında desteklerini esirgemeyen anneme ve babama; akademik yolculuğum boyunca yanımda olan, sabrı ve teşvikiyle beni her zaman motive eden sevgili eşime en içten teşekkürlerimi sunarım.

The Relationship Between Anxiety Levels and Spousal Support Among Mothers of Children with Special Needs

Öz

This study examined the relationship between perceived spousal support and anxiety levels among mothers of children with special needs, with the aim of informing family-centered support practices. The study employed a correlational survey design and included mothers of children attending special education and rehabilitation centers on the European side of Istanbul. Data were collected using a Personal Information Form, the Beck Anxiety Inventory, and the Spousal Support Scale. Descriptive statistics, Pearson correlation analysis, independent-samples t tests, and one-way analysis of variance were used to analyze the data. A negative but statistically nonsignificant relationship was found between perceived spousal support and anxiety levels. Mothers’ anxiety levels did not differ significantly according to their education level but differed significantly according to the gender of the child with special needs. The findings suggest that maternal anxiety cannot be explained solely by perceived spousal support and highlight the importance of comprehensive interventions addressing family circumstances, social support, and the broader cultural context.

Anahtar Kelimeler

• spousal support
• anxiety
• mothers
• children with special needs
• social support

Etik Beyan

Ethical approval was obtained from İstanbul Kent Üniversitesi Lisansüstü Eğitim Bilimleri Etik Kurulu. Date: 09.04.2025, Decision No: 2025-03 All participants were informed about the purpose of the study and participated voluntarily.

Teşekkür

I would like to express my deepest gratitude to my mother and father for their unwavering support at every stage of this study, and to my beloved wife, who has been by my side throughout my academic journey, always motivating me with her patience and encouragement.

Kaynakça

1. Acitelli, L. K., & Abbey Antonucci, T. C. (1994). Gender differences in the link between marital support and satisfaction in older couples. Journal of Personality and Social Psychology, 67(4), 688–698. https://doi.org/10.1037/0022-3514.67.4.688
2. Ahmetoğlu, E., & Aral, N. (2005). Zihinsel engelli çocukların yaşlarına ve engellerinin tanılandığı zamana göre anne kaygı düzeylerinin incelenmesi. Çağdaş Eğitim Dergisi, 30(321), 17–23.
3. Akandere, M., Acar, M., & Baştuğ, G. (2009). Zihinsel ve fiziksel engelli çocuğa sahip anne ve babaların yaşam doyumu ve umutsuzluk düzeylerinin incelenmesi. Selçuk Üniversitesi Sosyal Bilimler Enstitüsü Dergisi, 22, 23–32.
4. Al-Kuwari, M. G. (2007). Psychological health of mothers caring for mentally disabled children in Qatar. Neurosciences Journal, 12(4), 312-317.
5. American Psychiatric Association. (2022). Diagnostic and Statistical Manual of Mental Disorders (5th ed., text rev.; DSM-5-TR).
6. Beck, A. T., & Emery, G. (1985). Anxiety disorders and phobias: A cognitive perspective. Basic Books.
7. Beck, A.T., Epstein, N., Brown, G., & Steer, R. A. (1988). An inventory for measuring clinical anxiety: Psychometric properties. Journal of Consulting and Clinical Psychology, 56(6), 893-897. https://doi.org/10.1037/0022-006X.56.6.893
8. Benson, P. R. (2012). Network characteristics, perceived social support, and psychological adjustment in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 42, 2597-2610. https://doi.org/10.1007/s10803-012-1517-9

9. Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Harvard University Press.
10. Bronfenbrenner, U., & Morris, P. A. (2006). The bioecological model of human development. In W. Damon & R. M.
11. Lerner (Eds.), Handbook of child psychology (6th ed., pp. 793–828). Wiley.
12. Cavkaytar, A., Ceyhan, E., Adıgüzel, O. C., & Uysal, H. (2012). Investigating education and support needs of families who have children with intellectual disabilities. Turkish Online Journal of Qualitative Inquiry, 3(4), 79–99.
13. Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98(2), 310-357. https://doi.org/10.1037/0033-2909.98.2.310
14. Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. https://doi.org/10.1111/j.1365-2788.2010.01258.x
15. Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47(4-5), 231-237. https://doi.org/10.1046/j.1365-2788.2003.00485.x
16. Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629-642. https://doi.org/10.1007/s10803-012-1604-y
17. Hofstede, G. (2001). Culture’s consequences: Comparing values, behaviors, institutions and organizations across nations (2nd ed.). Sage.
18. House, J. S. (1983). Work stress and social support (Addison-Wesley series on occupational stress). Addison-Wesley Educational Pub.
19. Kağıtçıbaşı, Ç. (2007). Family, self, and human development across cultures: Theory and applications. Lawrence Erlbaum Associates.
20. Kara, T., & Alpgan, Ö. (2022). Maternal perception of spousal support in raising children with developmental disability in the context of family and child variables. Journal of Child and Adolescent Psychiatric Nursing, 35(3), 250–256. https://doi.org/10.1111/jcap.12372
21. Karadağ, G. (2009). Engelli çocuğa sahip annelerin yaşadıkları güçlükler ile aileden algıladıkları sosyal destek ve umutsuzluk düzeyleri. TAF Preventive Medicine Bulletin, 8(4), 315-322.
22. Karasar, N. (2012). Bilimsel araştırma yöntemi (24. bs.). Nobel Akademik Yayıncılık.
23. Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: a review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6
24. Kersh, J., Hedvat, T., Hauser-Cram, P., & Warfield, M. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 883-893. https://doi.org/10.1111/j.1365-2788.2006.00906.x
25. Lamb, M. E. (2010). The role of the father in child development (5th ed.). Wiley.
26. Ören, B., & Aydın, R. (2020). Engelli çocuğa sahip ebeveynlerde bakım veren yükü ve depresyon durumlarının incelenmesi. Celal Bayar Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi, 7(3), 302-309. https://doi.org/10.34087/cbusbed.682392
27. Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11(2), 92-98. https://doi.org/10.1111/jppi.12072
28. Rakap, S., Vural-Batık, M., & Coleman, H. (2023). Predictors of family burden in families caring for children with special needs. Journal of Childhood, Education & Society, 4(1), 56–71. https://doi.org/10.37291/2717638X.202341245
29. Rakap, S., & Vural-Batık, M. (2024). Mitigating the impact of family burden on psychological health in parents of children with special needs: Buffering effects of resilience and social support. Journal of Applied Research in Intellectual Disabilities, 37(1), e13179. https://doi.org/10.1111/jar.13179
30. Rydzewska, E., Dunn, K., Cooper, S. A., & Kinnear, D. (2021). Mental ill‐health in mothers of people with intellectual disabilities compared with mothers of typically developing people: a systematic review and meta‐analysis. Journal of Intellectual Disability Research, 65(6), 501-534. https://doi.org/10.1111/jir.12827
31. Sen, A. (2007). Identidad y violencia: la ilusión del destino. Katz editores.
32. Sevgi, G., & Ayran, G. (2024). Investigating the caregiving burden and stress of mothers with children with special needs. Journal of Pediatric Nursing, 77, e538–e545. https://doi.org/10.1016/j.pedn.2024.05.020
33. Şahin, H., Çakmak, A. & Erdem, Y. (2025). Özel ihtiyaçlı çocuğun annelerinin aile yükü ve sosyal izolasyon durumlarının değerlendirilmesi. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi, 26 (1), 67-81. https://doi.org/10.21565/ozelegitimdergisi.1339610
34. Ulusoy, M., Şahin, N., & Erkmen, H. (1998). Turkish version of the Beck Anxiety Inventory: Psychometric properties. Journal of Cognitive Psychotherapy, 12(2), 163-172.
35. Yildirim Dogru, S. S., & Arslan, E. (2008). Comparison of trait and state anxiety levels in mothers with a disabled child. The Journal of Institute of Social Sciences, 19, 543-553.